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Old 02-15-2012, 11:22 AM   #1
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Not diagnosed CP but looking for knowledge

Hi there!
My daughter was born at 27 weeks and had a Grade IV intraventricular brain haemorrage. It resolved leaving damage but obviously we didnt know what to expect.

She is now nearly 3

She has had no follow up scans since discharged from the neonatal unit. I can only guess this is because every few month the physiotheripist did a 5 min check on her and was happy with her progress. We have all noted that her right side does have minimal stiffness. She does have developmental delay and cannot talk.

However - stay with me here, i'll get to my point! - she has suffered from vomitting daily since coming home. It was first though it was reflux/dairy intolerance but its being going on for years and no medication has ever really solved the situation We have been passed from pillar to post, to all different departments. I am SURE it is not reflux, but no-one can be bothered to take any responsibility for her care.

Several friends who have children with CP, and one neonatologist, has suggested that CP can affect swallowing and vommiting is very common. Can this possibily be? Does anyone have any information on this? Can neurology dept look into any of this? Or am i barking up the wrong tree?

Please excuse my lack of knowledge and if i have offended anyone. CP was something we absolutely expected so we have been open minded all her life.

Next month now Physiotherapy will now see our daughter for an appointment, as her walking seems clumbsy and she will only use her left hand for clapping, dancing etc - the right hand and leg stays stiff for things like this, and when she "dances"(vibrates on one leg ).

 
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Old 02-22-2012, 12:56 AM   #2
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Re: Not diagnosed CP but looking for knowledge

I know that some people with CP do have a hard time swallowing, but I haven't really heard too much of vomitting...

Neurologist would be a great person to see for this. He/she can tell you how to handle it, and what to expect in the future. Good luck with that.

 
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Old 03-14-2012, 11:56 AM   #3
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Re: Not diagnosed CP but looking for knowledge

Yes this can be, my friends son has CP and has had an operation to stop him vomiting as the muscles wern't working and he wasn't able to eat properly.

Probably not the neurologist, Do you have an overall paed for her? If not, ENT specialists (ear nose and throat) are proabably your best bet.

 
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