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Old 02-22-2012, 02:32 PM   #1
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Feeling somewhat down

Hey Guys,

I'm new to this board and just want people to talk to. Lately, I have been having a difficult time with my CP. I just feel very lonely and like people don't understand. I don't have mild CP, but I am unaffected mentally. I feel like I don't relate to others because they are non disabled, mildly disabled, or too severely disabled to communicate. I just feel so stuck in the middle. Has anyone else felt like this? Especially if you are in a chair like me, and you need help to do almost everything?

I have spastic quadriplegia CP and need help with all my daily living tasks except eating and speaking. I can write too but slower.

 
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Old 02-23-2012, 09:49 PM   #2
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Re: Feeling somewhat down

I know how you feel. All of my life, I have felt that way. I was born with mild CP, but when I was a kid, I couldn't run as fast as the other kids, and I walked different than them. I hardly had any friends at the time. Now that I am an adult, I am tired that a lot of people don't understand CP at all. I wish more people can be more educated about it. Anyway, you are definately not alone. Welcome to the board.

 
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Old 02-27-2012, 08:31 PM   #3
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Re: Feeling somewhat down

Your name says it all. You are awesome. I'm not sure i can give you any specific advice. My son is moderately affected by cp but has some mobility. It is great that you have your speech as when that is impacted the avenues are fewer. I know my son(8) is having issues with socialising and obviously as you get older it becomes more poignant. Are there any social groups around you that you can reach out to?

 
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Old 03-02-2012, 11:58 PM   #4
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Re: Feeling somewhat down

Just letting you know I am here also. I have spastic diplegia and I feel like I've been through it all, as far as not having a place to fit in the world. I know what it's like to grow up not being one of the "normal" kids but still feeling all the emotions anybody would. At this point I am walking with two canes but having difficulty. When I am nervous, which is anytime people are staring at me, which is most of the time, I have trouble bending my knees when walking. It's very hard to move with two straight legs. I need a doctor who knows something about adults with CP. All I can find near me are doctors for children and it's not helpful at all. So anyway I'm in the same boat as a couple of you--an adult who understands. You can ask me anything or talk about anything you want.

 
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Old 03-03-2012, 09:52 AM   #5
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Re: Feeling somewhat down

It seems like there are a lot of support groups for kids but none really for young adults. (I'm tuning 21 soon) I guess I'm in this really weird transition period right now.

 
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