It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cerebral Palsy Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 08-25-2012, 01:10 PM   #1
Junior Member
(female)
 
Join Date: Aug 2012
Location: Boonville, NY United States
Posts: 17
cass24 HB User
mild Spastic Diplegia

Dear everyone,

I`m a new person, in this thread I have mild spastic diplegia cerebral palsy, and I`m 28, years old. I was diagnosing at 3 months because I was favoring my left hand. In addition, specialist told my parents that infants at those ages do not favoring hands. My mother had told me that placenta abruption had occurred and Meconium Aspiration had also gone into my lung. I was two weeks over due I had very long nails. My kidney, lung and heart had stopped working. Furthermore, I was purple blue when I was an infant, and had three episodes of grand mal seizures right after birth, this occurred until I was 8, years old in 1992. I have moderate to severe hearing and mild learning disabilities and some eyes sight problem. I had a lazy eye, but it was fixed.

I have a question my orthopedist wanted me to have a gait analytic to She wanted to have a Gait analysis done, but insurance will not cover it, so I had the shrines send their analysis and it said there is nothing wrong with the muscles. However, there were x-ray done by Dr. Albanians on my hips and my hips is not all the way cover which is milder hips dysplasia which hurt when I`m sitting or walking until it make a clicking or pop noise. In addition, you can even see I`m not deform anywhere, without a gait analysis so why will she not do something about my hips?

Last edited by Administrator; 08-28-2012 at 12:23 AM.

 
Reply With Quote
The following user gives a hug of support to cass24:
Jar24 (09-08-2012)
Old 09-08-2012, 07:02 AM   #2
Junior Member
(female)
 
Join Date: Nov 2009
Location: Indianapolis,IN,USA
Posts: 10
Jar24 HB User
Re: mild Spastic Diplegia

I am 27 years old , i have mild spastic diplegic cerebral palsy.
I will be 28 on October 21st.
I wear afo braces.

 
Reply With Quote
The following user gives a hug of support to Jar24:
cass24 (09-08-2012)
The Following User Says Thank You to Jar24 For This Useful Post:
cass24 (09-08-2012)
Sponsors Lightbulb
   
Old 09-08-2012, 11:39 AM   #3
Junior Member
(female)
 
Join Date: Aug 2012
Location: Boonville, NY United States
Posts: 17
cass24 HB User
Re: mild Spastic Diplegia

Thank you, for replying to my post. I also wear leg braces Hinged AFO for mild spastic diplegic cerebral palsy. I had heel cords lengthen when I was 3 years old. I love writing poem`s on my free time. In addition, I`m still waiting for the doctor to fill out paperwork's, so I can obtain my learner permit. I want to be enroll in adapted driving course sometime this fall.

 
Reply With Quote
Old 09-08-2012, 07:18 PM   #4
Junior Member
(female)
 
Join Date: Aug 2012
Location: Boonville, NY United States
Posts: 17
cass24 HB User
Re: mild Spastic Diplegia

I was wondering if you have been experiences hips pain with mild Spastic Diplegia Cerebral Palsy? Have you ever experience hips popping and clicking?

I have milder bilateral hips dyplasia,according to the orthopedist doctor she said my x-ray shows that the hips bones or socket is not all the way cover or forms. In addition, she have not fix the hips and now I`m experiences hips pain and my hips make a clicking or popping noise.

My orthopedist doctor wanted me to have a Gait analysis done, but the insurances will not cover it, because it medical unnecessary and out of the area. However, I had a Gait analysis done at the Shrines when I was 20 years old, there is nothing wrong with the muscles. It appears muscles seem to be loose accept heel cords and hamstring.

In addition,when I walk I overcompensation with and without crutches. For example, I has to move my top and bottom body side to side when I walk. It hard to describe.

Last edited by cass24; 09-08-2012 at 09:11 PM.

 
Reply With Quote
Old 09-13-2012, 05:59 PM   #5
Junior Member
(female)
 
Join Date: Nov 2009
Location: Indianapolis,IN,USA
Posts: 10
Jar24 HB User
Re: mild Spastic Diplegia

no hip pain but i walk on sides my feet when not wearing braces. i don't wear hidged afo

 
Reply With Quote
Old 09-13-2012, 09:20 PM   #6
Junior Member
(female)
 
Join Date: Aug 2012
Location: Boonville, NY United States
Posts: 17
cass24 HB User
Re: mild Spastic Diplegia

Quote:
Originally Posted by Jar24 View Post
no hip pain but i walk on sides my feet when not wearing braces. i don't wear hidged afo
I know someone whose moderate spastic Diplegia cerebral palsy and she walk on her side of her feet when she not wearing AFO. I have mild spastic Diplegia cerebral palsy I walk on my toes when not wearing braces. In addition, I go through shoes, like they do not cost anything. I had heel cords lengthen and wear a leg cast on both legs for 6 weeks when I was 3, in 1987.

 
Reply With Quote
Old 09-14-2012, 07:15 AM   #7
Junior Member
(female)
 
Join Date: Nov 2009
Location: Indianapolis,IN,USA
Posts: 10
Jar24 HB User
Re: mild Spastic Diplegia

okay
mine is mild and have other special also with autism , deafness,cerebral palsy,adhd,moderate mental retardation,and other special needs.
i wear afo braces ,glasses,hearing aids.

I was born october 21,1984
and was you born 1984 or what year?

 
Reply With Quote
The following user gives a hug of support to Jar24:
cass24 (09-14-2012)
The Following User Says Thank You to Jar24 For This Useful Post:
cass24 (09-14-2012)
Old 09-14-2012, 09:23 PM   #8
Junior Member
(female)
 
Join Date: Aug 2012
Location: Boonville, NY United States
Posts: 17
cass24 HB User
Re: mild Spastic Diplegia

Quote:
Originally Posted by Jar24 View Post
okay
mine is mild and have other special also with autism , deafness,cerebral palsy,adhd,moderate mental retardation,and other special needs.
i wear afo braces ,glasses,hearing aids.

I was born october 21,1984
and was you born 1984 or what year?
I was born June 24, 1984. I had placental abruption and Meconium aspiration, gone into my lung, which caused oxygen loos and brain damage. In addition, to having grand mal seizures until 8 years old, where I had to relearn everything over.

I also have hearing problem,which is moderate hearing problem. I`m not deaf but I had ears damages from infection, which caused scar tissues and I needed Tympanoplasty surgery to fixed the holes in the ears drums. In addition, I wear hearing aides too. I wear glasses for reading and farsighted, when I start learning to drive. once I fax the paperworks to ACCES VESID, so she can update an services plan and send an voucher over to Faxton Hospital adapted driving course so the physical therapist and occupational evaluate me and to see what adapted equipments I need for the vehicle in order to drive.

Thank you again,
Cassie

 
Reply With Quote
Old 09-14-2012, 09:28 PM   #9
Junior Member
(female)
 
Join Date: Aug 2012
Location: Boonville, NY United States
Posts: 17
cass24 HB User
Re: mild Spastic Diplegia

Do you walk with crutches or walker?

or can you walk by your self?

I walked with crutches and sometime with one crutch with a service dog and a walker

 
Reply With Quote
Old 10-28-2012, 06:03 PM   #10
Junior Member
(female)
 
Join Date: Jun 2004
Posts: 38
Sasha615 HB User
Re: mild Spastic Diplegia

Hi,

My name is Samantha and I have Spastic Diplegia too. I'm now 25 years old and I had my tendon lengthening surgery when I was 3. When I became a teenager I wanted to have the surgery again, in short my family didn't want me to have it because of all the recuperation and therapy would be more difficult because I was older. Anyway, I now use a 4-wheel walker, I don't wear braces anymore by choice (I hate them and they cause me pain) I do have a lot of joint pain in my hips and legs, but I just roll with it as it comes. I do understand about the popping in the hips. Its annoying and hurts.

I am getting my learner's permit by December. Have you started adaptive driving lessons yet?

 
Reply With Quote
Old 10-30-2012, 07:28 PM   #11
Junior Member
(female)
 
Join Date: Aug 2012
Location: Boonville, NY United States
Posts: 17
cass24 HB User
Re: mild Spastic Diplegia

Quote:
Originally Posted by Sasha615 View Post
Hi,

My name is Samantha and I have Spastic Diplegia too. I'm now 25 years old and I had my tendon lengthening surgery when I was 3. When I became a teenager I wanted to have the surgery again, in short my family didn't want me to have it because of all the recuperation and therapy would be more difficult because I was older. Anyway, I now use a 4-wheel walker, I don't wear braces anymore by choice (I hate them and they cause me pain) I do have a lot of joint pain in my hips and legs, but I just roll with it as it comes. I do understand about the popping in the hips. Its annoying and hurts.

I am getting my learner's permit by December. Have you started adaptive driving lessons yet?
Thank you, Samantha, for replying to my post.

I totally empathized in how you felt about wearing leg braces, because when the Shrines had made leg braces for me. The AFO leg braces, were hurting me so bad to the point of bones deformed under my toes, it felt like a sharp stone in my toes, also, there were red mark around my foots.
However, I had stopped wearing the legs braces similar to you, and my mother, the orthopedists doctor and I noticed when I had stopped wearing leg braces, I had started dragging my feet’s, to the point of destroying my shoes, they had holes, in them. In addition, I had recently started wearing hinged leg braces again, for almost two years.
It sound like you may have bilateral hips dysplasia, if your hips click and pop?
Have you ever had x-ray done on the hips by your orthopedists doctor?
My orthopedists doctor had done many x-ray on my hips, through the years, I have milder form of bilateral hips dysplasia. In addition, my hips, sockets is not completely forming, the hips bones.
Past two weeks ago, my mother and I went to pain management doctor and we mentions, the hips and show the x-ray to him, and he said the reason the orthopedists doctor, did not do treatment for the hips, is because the bilateral hips dysplasia, is too milder and if the doctor would had done surgery the hips, may become bilateral hips dysplasia, or worst because of the way I walked. He suggested me to wear a form of back braces around the hips to keep the hips stables. My orthopedists doctor and the pain management doctor, want me to go to obtain a gait analytic , but insurances will not cover It because the physical doctor did not give the insurance, what they needed so when we go to him, this Thursday, we will have him called the insurances and see what the insurances wanted.
Glad to hear that you going to obtain your learner permit.
I had finally received the services plan, from Adult Career and Continuing Education Services-Vocational Rehabilitation ACCES VESID, they will pay the person coming from Rochester Rehabilitation Center INC $480.00 Adaptive Diver Eval- low tech car/van pay $ 1,850.00. Faxton hospital adapted driving course, had called yesterday, tomorrow, I will call them back to set my first appointment with them, to obtain part 1 evaluate than the part II later.

Last edited by cass24; 10-30-2012 at 07:29 PM.

 
Reply With Quote
Reply Reply




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Baclofen
Botox
Diclofenac
Neurontin Prevacid
  Potassium
Tegretol
Tylenol
Valium
Zanaflex




TOP THANKED CONTRIBUTORS



KimmieDee10 (11), yankeegirl (10), Spookysmommy (4), akiva (3), Jar24 (2), NickB (2), KarimsMUM (2), Basswife (2), whitesugar (2), Potsy (2)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (855), janewhite1 (823), Titchou (769), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (654), BlueSkies14 (610)



All times are GMT -7. The time now is 06:19 AM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!