| | Re: 2 1/2yr old with cp - pls share ur experience
We too have a cp child. He is 5 1/2. He is my step son actually. We just gained custody of him full time recently. He started staying with us full time in June. He has also previously been diagnosed with "failure to thrive". Since recieving him in June, he has gained and maintained 5 pounds. He no longer fits that criteria thank goodness... but we have to maintain his current BMI in order to shed that diagnosis. At the time we picked him up... his movement was limited to rolling over periodically and spastic movements with his hands. Since then, he has learned that he can get all around the living room by rolling, flipping, and scooting. He does not currently sit up on his own. For a long time, he was unable to hold his head up on his own. This is also something we have accomplished this past year. He is only recieving PT and OT once a week outpatient, however, he goes to school 5 days a week at our local public school and they do PT and OT there. So technically it's twice a week I guess. I am very interested in the CP program you mentioned. Especially if your little darling learned to sit while there. That would be AMAZING!!! We don't have any support groups in our area (Gainesville, FL). Even though we have a wonderful hospital.... with great specialists... we are kind of left squandering around. I finally bought him a recliner that I then fitted with a gait belt and he loves it. Right now, our biggest problem is he chews on his fingers, creating sores on his fingers from time to time, and the most horrible redness under his mouth from all the excessive salivia that he is creating. I've tried so many things to deter him from doing this. OT suggested different teethers (he still uses a pacifier), however, he doesn't hold things in his hand so I would have to stand with him and hold it in his mouth. At this point... I just give him a blanket or towel to "hold" and hope he chews that instead. LOL.
If you're interested I'd love to stay in touch.