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-   -   Where to begin??? (http://www.healthboards.com/boards/children-special-needs/756044-where-begin.html)

Betty Bee 06-29-2010 02:57 PM

Where to begin???
 
I may sound ignorant to all but there is a possiblity of my baby having DS. I'm not sure what it means when I'm told of "special needs" children. I know there are certain levels of DS--some kids are integrated into public school, graduate, get jobs etc...What if that's not the case? I'm sure there are special schools and day care programs for kids...and adult living arrangements? ...but this is all new to me. I don't even know where to begin and what to plan for!! Can anyone share their experience with me?

melliann 08-06-2010 05:12 PM

Re: Where to begin???
 
I can't believe no one has replied to you. 1st off congratulations on either the upcoming birth or if your baby has been born his/her birth. Yes there are different aspects, different problems associated with Down syndrome, one of the biggest problems is heart problems. When my son was born (he's 11 now) they heard a heart murmur once and didn't hear it again (until just a couple weeks ago) went to the cardiologist (and we have another appointment with them in a couple weeks) and everything checked out just fine.

pretty much all the kids on there are functioning just fine, hold down jobs and stuff like that - only exception is my son he is considered complex, he has gotten so complex that the down syndrome clinic here in Minnesota won't see him so I am busting my butt off to find a specialist that will take him on, the ones that I have been told about are not taking new patients).

Ryan is a loving kid (too bad his biological father doesn't know that, he abandonen us when Ryan was diagnosed with Down syndrome, I don't blame him we were both 19 at the time), my husband is a wonderful father to Ryan and then hubby and I went on to have a beautiful set of identical twin daughters that the only problems they have is both are sensitive to lactose (runs in the family) and one has bedwetting issues but she is only 5 so I am not worried about it (plus she is a heavy sleeper).

Anything else you want to know don't hesitate to contact me, I'll answer questions.

mandolnplayr55 12-26-2010 05:29 PM

Re: Where to begin???
 
[QUOTE=Betty Bee;4276026]I may sound ignorant to all but there is a possiblity of my baby having DS. I'm not sure what it means when I'm told of "special needs" children. I know there are certain levels of DS--some kids are integrated into public school, graduate, get jobs etc...What if that's not the case? I'm sure there are special schools and day care programs for kids...and adult living arrangements? ...but this is all new to me. I don't even know where to begin and what to plan for!! Can anyone share their experience with me?[/QUOTE]
I am an adoptive mother of a DS daughter that I have had since the age of 3 months and she is now 16 yrs old. I can tell you whether your child is DS, they are one of the most loving children/adults that can teach all of us the true meaning of love, no matter the severity of their mental state. Your child will be such a blessing to you and others. My daughter has taught me so much over the past 16 yrs, and I wouldn't trade it for anything in the world. I would love to help you thru this, if you need a friend in this matter.
"God made them someone special, and they are the only one of their kind; He gave them a body and a bright healthy mind, He had a special purpose that He wanted you to find. So He made them, someone special and they are the only one of their kind!!" This is what I have sanged to my daughter from day one, and she now knows she is Someone Special! Cindy


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