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Old 10-19-2005, 06:28 AM   #1
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Tewfiddy HB User
11 year old with UTI again

My daughter has just turned 11 years old. For at least two months now, we have been battling a UTI. Only a couple of times has she tested negative in between her antibiotic therapy. She was first on Bactrim, then Amox. then cephalexin and now Amox. again. She needs to have an ultrasound done of her renal system and a VCUG (test where they catheter her and use dye to see how everything flows). The problem is that they can not do the test until she tests negative and is off her antibiotics. I feel like this constant infection can not be good for her at all. I wish we could find the problem out right now and try to fix it and maybe that will get rid of the infection. I called and spoke to the nurse and she said the infection was caused by Proteus, which is less common than e. coli infections and harder to treat. Does anyone else out there have an opinion on this, or have heard anything about proteus and how she could get that type of an infection? Ive done some research for a couple of days but can not find anything real useful. Thanks.

 
Old 10-20-2005, 06:03 AM   #2
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Re: 11 year old with UTI again

Quote:
Originally Posted by Tewfiddy
My daughter has just turned 11 years old. For at least two months now, we have been battling a UTI. Only a couple of times has she tested negative in between her antibiotic therapy. She was first on Bactrim, then Amox. then cephalexin and now Amox. again. She needs to have an ultrasound done of her renal system and a VCUG (test where they catheter her and use dye to see how everything flows). The problem is that they can not do the test until she tests negative and is off her antibiotics. I feel like this constant infection can not be good for her at all. I wish we could find the problem out right now and try to fix it and maybe that will get rid of the infection. I called and spoke to the nurse and she said the infection was caused by Proteus, which is less common than e. coli infections and harder to treat. Does anyone else out there have an opinion on this, or have heard anything about proteus and how she could get that type of an infection? Ive done some research for a couple of days but can not find anything real useful. Thanks.
Tewfiddy, Sorry to hear about your daughter. Maybe i can give you some helpful information.

Proteus is more commonly found in boys rather than girls, however, when found in girls it most commonly effects the 7-11 year old age range.

Proteus is usually detected in recurrent infections, especially in association with stones, obstruction, urologic manipulation and nosocomial catheter - associated infections.
Possible causes of this type of bacteria in girls can be due to wiping back to front, instead of front to back.
Also, infrequent emptying of the bladder. Infrequent emptying of the bladder leads to bladder overdistention, with subsequent incomplete emptying; residual urine then interferes with bladder defenses by allowing bacterial colonization of bladder urine to occur more readily.

It could be a good possibility that the reason your daughter is unable to be rid of this bacteria due to the antibiotics being used to treat it, as Proteus is resistant to Vancomycin, Cloxacillin, Amoxycillin and Cephalothin.
Proteus is usually treated with Chloramphenical, Nalidixic Acid, and some Aminoglycosides such as Tobramycin, Gentamicin, Rocephin,Ampicillin and Amikacin as it is sensitive to these antibiotics.

I would talk to the Pediatrician to see if there is a possibility of changing her Antibiotic to one of those listed above that were found to be effective in treating the Proteus so as she can get this bacteria cleared up so she can have the recommended testing done as soon as possible to get to the root of the problem.

I hope this information is helpful and that she gets better soon!

ValleyGurl

 
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Old 10-20-2005, 02:30 PM   #3
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Re: 11 year old with UTI again

I was going to say pretty much the same thing that valley girl said. I personally had a kidney infection that wasnt caused by ecoli and have had recurrences for the past two years. My first break inbetween infections came after I did a weeks worth of gentamicin IV treatments. Oh and I had that same test your daughter is going to have... tell her I feel sorry for her... it sucked

Last edited by KSAS; 10-20-2005 at 02:33 PM.

 
Old 10-20-2005, 07:39 PM   #4
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Re: 11 year old with UTI again

Thankyou, Valleygurl and KSAS for your responses.
Valleygurl, yes the information you gave was very helpful. Especially the part about the correct antibiotics. I will call her dr. tomorrow. I dont think she has been wiping back to front. I am not with her all the time, but I keep stressing not to. We use baby wash for her to wash herself in.
KSAS... at what age did you have your testing? What sucked about it the most? I was worried about her getting a catheter, does the dye burn? I want to prepare her somewhat but not scare her. I have her appointment on Nov. 2, as long as the infection is cleared up by then.

She has missed 10 days of school so far this year, her fifth grade year. It has been mostly due to her stomach hurting, and her being afraid of having to go to the bathroom so often, or having an accident. At first, I thought she was having a problem with school and I got so frustrated with her. Now I feel bad, wondering if its been this infection all along. Anyhow, thanks again for all your help.

 
Old 10-21-2005, 01:43 AM   #5
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KSAS HB User
Re: 11 year old with UTI again

I did that test when I was 9. The catheter hurt... the pain of distension because your bladder is so full also really stinks ... the dye burns quite a bit.. and she should expect to have burning when she pees for a couple days after. She may also notice some blood in her urine when the catheter is removed it more freaks you out than anything. Just tell her that it is normal for her to be uncomfortable.. also ask if they can use some freezing jelly when they put the catheter in

 
Old 10-21-2005, 06:45 PM   #6
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Re: 11 year old with UTI again

KSAS,
thanks for your quick reply. I dread her having this so bad. I have had two catheters as an adult and know how painful they can be. I thought maybe it depended on the skill of the person inserting it too. I will ask about the gel, thats a good idea. All I can do is give her the most information I can and hopefully she wont be too scared. thanks.

 
Old 10-23-2005, 07:35 AM   #7
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Re: 11 year old with UTI again

I had Uti's once a month, for about 7-8 years or so.. I was unable to take amox, because i am allergic to penicillin. I never had a catheter (sp?) done, altho, I had a couple surgeries done (not sure what surgeries, actually..) I remember having at least 3 done. I was asleep for all of them, except 1. and none of them hurt. Altho for one of them, afterwards, I could not walk.. for a couple hours, altho, i was able to stand, and walk a few steps.. I had to rest for part of the day.. then i was fine..

What helped, to FINALLY get rid of the UTI's was Cipro, it is a anti inflammatory, but it actually got rid of my UTI's after a while using them.
See if the docs will let her use cipro ( I used it at her age also)
I havent had any UTI's since. im so glad!
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Old 10-23-2005, 08:50 AM   #8
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Tewfiddy HB User
Re: 11 year old with UTI again

Quote:
Originally Posted by whiteluluflower
I had Uti's once a month, for about 7-8 years or so.. I was unable to take amox, because i am allergic to penicillin. I never had a catheter (sp?) done, altho, I had a couple surgeries done (not sure what surgeries, actually..) I remember having at least 3 done. I was asleep for all of them, except 1. and none of them hurt. Altho for one of them, afterwards, I could not walk.. for a couple hours, altho, i was able to stand, and walk a few steps.. I had to rest for part of the day.. then i was fine..

What helped, to FINALLY get rid of the UTI's was Cipro, it is a anti inflammatory, but it actually got rid of my UTI's after a while using them.
See if the docs will let her use cipro ( I used it at her age also)
I havent had any UTI's since. im so glad!

wow, thats great, good for you!! I have done some reading, and cipro was listed as one of the antibiotics used to treat the infection. Her dr doesnt seem to think she needs anything else besides amox. I hope she at least tests negative so we can go ahead with the testing on Nov. 2. If not, I'll be soooo mad at them...... I thought about calling a pediatric urologist, I dont need referrals with my insurance company, but it looked like offices wont see you unless a dr. referred you.. I feel like I am constantly learning how to treat myself and my kids and that the dr's dont know or care about anything...Its frustrating.

 
Old 10-23-2005, 08:33 PM   #9
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Re: 11 year old with UTI again

My daughter has been dealing with recurrent UTI's for almost 2 years. She is 5 and they started when she was 3. The pediatrician was almost useless. He kept telling us to wipe front to back and prescribing the same antibiotics that masked the symptoms. Usually, within 2 days of completing the cycle of antibiotics the infections were back. The VCUG and ultrasounds showed no reason for the recurrences. After a year and a half of frustration (and trying every suggestion I could find including antibacterial wipes, d-Mannose supplements, cranberry until she wanted to scream, etc.) we finally got help when I demanded that she see a specialist. We saw both a pediatric nephrologist and a pediatric gastrointestinal doctor. They both agreed that it had been my daughter's constipation that had been causing the problem all along (something that I had asked the peditrician about after reading about it online and he rejected it as a cause). What happened was that although she was regular, the size of her stools in her colon was preventing her bladder from emptying completely. Since being diagnosed with it in May she has been on a daily laxative and has shown an amazing improvement.
The reason I am sharing this is that if I were you I would definitely seek other help. And for you to consider whether your daughter might be constipated. It only takes one day of constipation to start the cycle of bacteria multiplying out of control. I send you both my best wishes in getting this resolved quickly. MsTwiddle

 
Old 10-24-2005, 04:21 AM   #10
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jeffreys mom HB User
Re: 11 year old with UTI again

Ms Twiddle;

I am so glad to hear your daughter is doing better. Thank you for sharing your information. My daughter has had probably 2 UTI since May. It seems to be less frequent but still enough to keep me worrying. Her most recent was E-coli bacterial infection and I was again told it was hygiene.

I know she is wiping properly so I think she is connected to constipation as well. I mentioned this to the ped. last time and got the " I'm the Dr look not you" Her last infection was September just when she went back to school. I think she's holding back during school which is causing her problem.

It just seems funny to me that all last school year it was a frequent problem and then nothing all summer. The second week of school this year BAM here we go again.

Again, I am reallly glad to hear your Daughter is doing well. Mrs. B

 
Old 10-24-2005, 09:04 AM   #11
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whiteluluflower HB User
Re: 11 year old with UTI again

If she gets another UTI, ask, for other medication then amox, it might help, Some of the meds, that i took, it wouldnt help anymore, so, i got diff medications.

Get the doc, to change meds! (if it comes back!!) it might help
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Old 10-24-2005, 06:51 PM   #12
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Tewfiddy HB User
Re: 11 year old with UTI again

elddiwtsm whiteluluflower jeffreys mom,
thanks so much for all your thoughts, ideas, and experiences. I thought about the constipation thing too, even though she goes daily, I think its "hard" for her to go. I did bring it up to the dr. and he wasnt worried since we would have a movement every day. I guess I will see what these tests show. Could laundry detergent or softener sheets cause this? I dont know what else to do. She says her frequency is coming back, and she has 2 more days of anitibiotics.
She has been taking detrol for the frequency, but she says it makes her go more....
I will keep everyone posted, her test is next wed... and if anyone else wants to add anything, vent or share, I'd love to read. Thanks again!

 
Old 10-24-2005, 09:52 PM   #13
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Re: 11 year old with UTI again

Jeffry's Mom-
So good to see you on here again. I have thought about you and yours and wondered how you were doing. My daughter, also, had a recurrence in Sept and this one I actually believe could have been hygiene cuz she was finally alone and had to do the cleaning herself at school. We now make sure that she gets cleaned very well almost as soon as she hits the front door. That and we have a routine established with the laxative that doesn't interfere with school. That was an issue at first because I didn't want her to have to deal with pooping at school. But it know the look you mean about the hygiene. I think you remember my earlier posts when I was so frustrated about the lectures from the Pediatrician when I knew that hygiene was not the issue. Anyway, good to see you and I hope you son is improving, as well.
MsTwiddle

Tewfiddy-
Just 2 thoughts upon reading the other entries. 1-Whiteluluflower is right. Demand an antibiotic that will be effective for her particular bacteria. They can run tests to determine what antibiotic is effective for your daughter's infection. Just because Keflex (as an example) is what the book says is most effective, that does not mean that it is effective for your daughter. The doctors have been able to tell me if my daughter's bacteria is still sensitive to certain antibiotics by simply running a test on her urine. 2-The Pediatric GI doctor that I mentioned earlier told us that almost every case of recurrent UTI's in young girls that he has treated was directly related to their bowels or in most cases the size of their bowels. It didn't matter that my daughter went everyday-what mattered was the circumfrence and the hardness. My suggestion is that you make the Doctor take this thought seriously. I know that telling a doctor that you think he/she is wrong is very difficult but a good doctor will accept that we know our kids. Good luck...I will be standing right behind you in support. MsTwiddle

 
Old 10-25-2005, 05:51 AM   #14
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HopingChris HB User
Re: 11 year old with UTI again

Both my daughters ages 7 & 9 have both had UTI's. They always put my girls on Septra. It works wonderful for them. Also my 7 year old just had the VCUG test & ultrasound last month. It was not as scary as I thought it was but very helpful for the doc. Try the drug Septra.

Chris

 
Old 12-11-2005, 06:07 PM   #15
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ddtigrbaby HB User
Re: 11 year old with UTI again

Thank you so much for all this great info. I have a 7 year old daughter who has had a few bladder infections over the years and now she has some new symptoms I was hoping you could help me with. First of all she had the usual pain with urination, blood in the urine. She was tested and put on antibiotics. Then it wouldnt go away so we had her put on another antibiotic. Her pain upon urination seemed to get better but then she woke up one night bawling her eyes out with extreme pain in her upper left side (which I assumed might be Kidney?) Anyway, she's a very tough girl and pain usually doesnt bother her so I KNOW she's not being wimpy or anything lol So I gave her childrens Motrin that first night (almost took her to the emergency room) then took her to the doctor first thing that next morning. They put her on a new antibiotic that would possibly help a kidney infection She had two nights actually with this extreme pain. Anyway, she seemed cleared up for about a month and now she's having the same upper left side pain again. She said that she was bleeding and had pain when she peed again. I looked and there was a little bit of blood dripping but after a couple of days of this she says that it doesnt hurt anymore. So I took her in to see the doctor AGAIN lol He said he saw nothing in her urine sample that day but set her up for that test involving the dye. The hard part is that I now have to wait for the paperwork to be sent to me for the referal while my daughter deals with this horrible pain about two times a day. It used to be about once a day but seems to be getting more frequent. I just dont know how long I should wait for this paperwork? She also doesnt take baths anymore and knows all the rules on wiping and such. I also just wanted to hear everyones advice on what this could possible be? I cant stand seeing her in so much pain and now she's starting to miss way too much school. Thanks!

 
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