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Old 04-24-2006, 09:14 PM   #1
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Sensory Integration(Processing)Disorder

Has anyone had a child diagnosed with SID, but not with autism. I homeschool my 7 year old and although he hasn't been tested for SID since he was a toddler, still seems to have trouble with this. He appears to have not developed any coping skills yet.
He chews on everything, clothes, toys, etc., he is very picky about what he eats, he won't go certain places because he thinks they smell bad or funny, he is always telling his sister to be quiet in the van because he can't stand the noise, he will only wear certain clothes because they "feel" better, he is always spreading himself all over the floor at the park, grocerystore, at home and even on the ice at his hockey games. He can be very aggressive, yet hurt people and seem to not really mean to. He is always moving. He doesn't like bright sunshine. I am about at my wits end because it makes it very difficult to school him as he always seems to be in a state of flux. He is on Ritalin because it helps him to focus at school. He clenches his hands a lot and his teeth when he is frustrated, which is a lot, he gets frustrated very easily and asks me questions about 100 times until I answer them, even though I feel I already answered him. His hearing has been tested and it is fine. His verbal skills are above-average. He does not want to write anything down and cries when he has to. He is a wonderful child, with these issues that really impact our day to day living.
Should I get him tested for SID again? I think maybe I should look for an OT because it is getting a little crazy, even for his 6 year old sister.

 
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Old 04-25-2006, 12:51 PM   #2
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Re: Sensory Integration(Processing)Disorder

My daughter had very mild sensory integration issues (with her it was skin/touch related in that she was always dirty (dirty face, dirty hands etc) and not aware of it at all) and I took her to an OT. She only attended 12 sessions and it did wonders!
Make sure to get a proper evaluation first and then a proper, written out treatment plan. It is also good to request a list of things you could do at home, to reinforce the OT sessions, after each session.

I can see how such a wonderfully wild boy is difficult to teach!!

Karen

 
Old 05-01-2006, 08:50 PM   #3
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Re: Sensory Integration(Processing)Disorder

3 of my 5 children have a form of SID and none of them are autistic. My oldest sounds similar to your son, but my youngest two are the opposite. :-) They seek sensory input on all levels. LOL
Wendy

 
Old 05-02-2006, 06:28 AM   #4
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Re: Sensory Integration(Processing)Disorder

Ask your doc for help, maybe there is a OT that can help him along a little bit.

 
Old 05-02-2006, 07:44 AM   #5
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Re: Sensory Integration(Processing)Disorder

My 4 1/2 year old was diagnoised with Autism. But they also said he has SID.

He doesn't seem autistic to us but all the other stuff you said does sound like him.

Every day of my life is spend trying to withstand the crying and wining of my son. He is a picky eater. He gets upset if food falls on the floor or on him. He used to hate tags on his shirts. I remember transitioning from long pants to short pants was hard. Not so much anymore. He is fussy about how his socks fit. He still does #2 in his pants because (I think) he is afraid of the potty. He too has to ask or repeat things over and over. If he says thank you and you don't reply, he will keep saying it and get upset until he hears you say you're welcome. He has to kiss me goodnight and hug me everynight and now he added that I have to say goodnight once I leave his room. He first kisses me on the right cheek then the left and then a hug. He fusses about every little thing in life. He is afraid of some people. And if I tell him that we have to go someplace, he freaks. Or he says just wait, while he finishes his task. I hate it. Is this autism? I don't know. I was even thinking he had OCD. But he doesn't care if his hands are dirty. He just doesn't like when he is aware of sticky things on his hands. And he is always chewing on his shirts, towels and blankets. Last night he put his mouth around a metal gate lock. I'm like what is this child doing now. All he wants to do is play video games, watch TV and fight. He likes to fight with his brother. When you tell him not to do something he doesn't listen. I'll tell him not to wake his brother. What does he do? Tries to wake him. He hates when I sing too. I can't sing to any song. God forbid. I am very upset today as you can tell because once again I had a terrible morning.
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Old 05-02-2006, 08:39 AM   #6
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Re: Sensory Integration(Processing)Disorder

Your son sounds exactly like my son. My guy didn't potty train until 3 1/2 because he couldn't sit on the toilet, and his stools weren't formed yet so it was messy. I think you could also be dealing with OCD in some areas. My sister in law has it and it was hand washing, she was a clean freak with her hands, but her house wasn't clean, go figure. He does seem to have some signs of it with the "rituals" he needs to do. I know my guy used to get all crazy if his blanket wasn't on him a certain way. I'd like to correspond with you more.

 
Old 05-02-2006, 11:10 AM   #7
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Re: Sensory Integration(Processing)Disorder

Quote:
Originally Posted by worm
Your son sounds exactly like my son. My guy didn't potty train until 3 1/2 because he couldn't sit on the toilet, and his stools weren't formed yet so it was messy. I think you could also be dealing with OCD in some areas. My sister in law has it and it was hand washing, she was a clean freak with her hands, but her house wasn't clean, go figure. He does seem to have some signs of it with the "rituals" he needs to do. I know my guy used to get all crazy if his blanket wasn't on him a certain way. I'd like to correspond with you more.

Do you remember what you did to get him to do #2 on the potty? My son is now 4 1/2 and has been potty trained #1 for 2 years. He doesn't want to sit on the potty and will do everything in his power to prevent it from falling out while he is on there.

Maybe he doesn't like if it splashes on him. i don't know.


Yes, my son needs the blankets on correctly. It's hard to change what he is doing. If he is watching TV and you tell him we have to go, he starts freaking out. He cries and fusses all the time. A friend of mine saw some OCD but she doesn't see any Autism. See he used to not make eye contact.
But he can now, just still scared of some people. And for no apparent reason that we can think of. One day he is fine with someone, they next day he is running from them in fear. He doesn't have any kinds of ticks or he doesn't line up toys. He doesn't ignore people or stair at objects that spin. The only things he had that seemed autistic where the communication (speech), eye contact. Most seems to be SID. And now maybe OCD. And the OCD may be a way to help him feel safe and in control or something. He is always bumping into things. But his eye hand coordination is perfect. He isn't the best climber though. But he can hit a ball when someone pitches to him.
He is loving and loves his hugs. He likes mostly ruff housing. He has a body sock he loves and loves to sleep with and he loves to be wrapped in a blanket.

My 6 year old is not a happy boy. He says he is sick of the way his little brother is. I'm so tired of waking up to my son crying. And wanting me to carry him down the stairs with a blanket. Oh and he has to sleep with a shirt on too. Can't go to bed without one. What was your son like when he was a pre-schooler?
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Old 05-03-2006, 06:22 AM   #8
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Re: Sensory Integration(Processing)Disorder

As a preschooler Sam didn't ever have "personal space", and nobody seemed to know how to deal with this, this just said he should "get it" eventually. He still struggles with this. He had an aid when he was in preschool because he was aggressive sometimes, had problems socially, wouldn't stay within the group but rather on the outside of the group, would poke and prod other kids in circle time if he even participated and if there were too many people in the room he would sit under a chair or hide. When we had people over at our house he would hide in the closet. Yet, he always had a smile. It seems so contraindicative. He never played shy. He cried a lot and woke up at night a lot crying, mostly we couldn't console him, so we just stood near him to make him feel better. He loved to be "squished" or wrapped and just lately we had to take his favorite blanket away because I believe he was allergic to it. Together we found something that he liked to replace it. As a preschooler he would freak out about a lot of stuff and we never knew why. I couldn't take him into the sunshine, coming out of walmart one hot day I literally had to hop from one tree to another until we got to the car and even then he was freaking out. He is very advanced physically, could ride a bike at 3. He did not do well at preschool and they did some sort of questionnaire on him and I remember he did not score well and they were concerned he didn't want to write or draw. To this day he does not like to use a pencil and I think it coiuld be sensory. Regarding the toilet, I just had to wait until he did it. I have read that some ladies have put a towel across the toilet with a slit in it and that way the child can feel something on his bum. It might work and is worth a try. I know Sam always stood to go pee because he couldn't sit to do it, and so his bowel movement posed a challenge to him, but he eventually got it. I was at my psychiatrist yesterday(I have a genetic predisposition to depression) and so I talk to her a lot about Sam. Yesterday I told her about his humming, vocal sounds, having to lay on the floor, chewing etc., and she said that Sensory Integration Disorder is not really a recognized diagnosis, but that if not dealt with could lead to Pervasive Developmental Delay(PDD), as it will interfere in their social and learning ability which she believes it has or is doing with Sam now. (i.e. hard to sit and learn, too many stimulants to focus, humming and sounds impair social interaction, etc.) She says she admits Sam is not "austistic" in the true sense of the word, but could have a touch of it. Many autistic children have sensory issues and if the senses are not integrated properly you will have developmental delays. She said you cannot treat with Occupational therapist, but would rather be medication. She believes his humming, chewing, etc., are obsessional behaviors to sooth himself. Sam never lined up toys either,wash hands many times or any of that, but some of his stuff is a little unusual. He always needs to know exactly how many pages we are doing in class. He needs to know exactly what we are doing that day. If you sit your little guy down to watch tv, you might want to say "after this show we are going to do .....". I know Sam always felt better if I told him ahead of time. He was very bad at transitioning. Now I give him about a half an hours notice and If I am doing errands, it usually includes a trip to the dollar store and so he counts down the errands until we get there. The clothes issues are a little bit of a pain in the neck, but now they are not so much compared to his schooling issues. He is well loved by his peers, but they seem to accept him as he is. I do believe he has high anxiety.

 
Old 05-03-2006, 08:28 AM   #9
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Re: Sensory Integration(Processing)Disorder

Quote:
Originally Posted by worm
As a preschooler Sam didn't ever have "personal space", and nobody seemed to know how to deal with this, this just said he should "get it" eventually. He still struggles with this. He had an aid when he was in preschool because he was aggressive sometimes, had problems socially, wouldn't stay within the group but rather on the outside of the group, would poke and prod other kids in circle time if he even participated and if there were too many people in the room he would sit under a chair or hide. When we had people over at our house he would hide in the closet. Yet, he always had a smile. It seems so contraindicative. He never played shy. He cried a lot and woke up at night a lot crying, mostly we couldn't console him, so we just stood near him to make him feel better. He loved to be "squished" or wrapped and just lately we had to take his favorite blanket away because I believe he was allergic to it. Together we found something that he liked to replace it. As a preschooler he would freak out about a lot of stuff and we never knew why. I couldn't take him into the sunshine, coming out of walmart one hot day I literally had to hop from one tree to another until we got to the car and even then he was freaking out. He is very advanced physically, could ride a bike at 3. He did not do well at preschool and they did some sort of questionnaire on him and I remember he did not score well and they were concerned he didn't want to write or draw. To this day he does not like to use a pencil and I think it coiuld be sensory. Regarding the toilet, I just had to wait until he did it. I have read that some ladies have put a towel across the toilet with a slit in it and that way the child can feel something on his bum. It might work and is worth a try. I know Sam always stood to go pee because he couldn't sit to do it, and so his bowel movement posed a challenge to him, but he eventually got it. I was at my psychiatrist yesterday(I have a genetic predisposition to depression) and so I talk to her a lot about Sam. Yesterday I told her about his humming, vocal sounds, having to lay on the floor, chewing etc., and she said that Sensory Integration Disorder is not really a recognized diagnosis, but that if not dealt with could lead to Pervasive Developmental Delay(PDD), as it will interfere in their social and learning ability which she believes it has or is doing with Sam now. (i.e. hard to sit and learn, too many stimulants to focus, humming and sounds impair social interaction, etc.) She says she admits Sam is not "austistic" in the true sense of the word, but could have a touch of it. Many autistic children have sensory issues and if the senses are not integrated properly you will have developmental delays. She said you cannot treat with Occupational therapist, but would rather be medication. She believes his humming, chewing, etc., are obsessional behaviors to sooth himself. Sam never lined up toys either,wash hands many times or any of that, but some of his stuff is a little unusual. He always needs to know exactly how many pages we are doing in class. He needs to know exactly what we are doing that day. If you sit your little guy down to watch tv, you might want to say "after this show we are going to do .....". I know Sam always felt better if I told him ahead of time. He was very bad at transitioning. Now I give him about a half an hours notice and If I am doing errands, it usually includes a trip to the dollar store and so he counts down the errands until we get there. The clothes issues are a little bit of a pain in the neck, but now they are not so much compared to his schooling issues. He is well loved by his peers, but they seem to accept him as he is. I do believe he has high anxiety.
Wow, sounds like the same kid. Last night we brushed my son before bed and let him get into his Body Sock. He was very happy and fell asleep very happy. He even woke up happy (not normal). So I let him play on the computer for a bit before breakfast and when I called him down to eat, he came down. Again, not like him. I gave him something to eat (after telling him all we had in the cabinets). Then i brushed him and he was thrilled with that. Next I told him it was time for school and he started to fuss but that didn't last that long.

I am going to try the towel thing. That sounds like a good idea.

Oh my son used to and probably still will hide under chairs or behind a sofa when people stop by or we go to a party. You know, I always blame that on the Autism, but maybe it's sensory overload. I've always felt that when his senses were more inline, he did better overall. And yes, I too believe they end up on the spectrum because of the issues with their senses. I am going to call a dr. today and see about addresses more of his issues and maybe meds. He does go to a preschool that provides him with OT and speech.

I can only hope there is a chance he will be able to function when he gets older. We just get so upset with him. I wish for just one day, I could be him to understand. Thank you so much for sharing your son's story with me. It is amazing to me how much alike they are.
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Old 05-04-2006, 12:02 PM   #10
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Re: Sensory Integration(Processing)Disorder

Sam is a really happy kid really and has outgrown the crying everytime he wakes up. That too, is a transition from sleep to wake. Remember it is a genetic thing for him and probably very uncomfortable to be in his skin. What is a body sock and where do you get them? how do they feel? Sam likes the cool heavy feel of things. In hockey he likes to wear the goalie gear, in baseball he likes the catcher gear, I am going to make him a weighted vest. My doc said he will probably need meds for anxiety i.e. the crying and humming etc., I am so glad I have met someone who knows what I am talking about.

 
Old 05-05-2006, 07:45 AM   #11
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Re: Sensory Integration(Processing)Disorder

Quote:
Originally Posted by worm
Sam is a really happy kid really and has outgrown the crying everytime he wakes up. That too, is a transition from sleep to wake. Remember it is a genetic thing for him and probably very uncomfortable to be in his skin. What is a body sock and where do you get them? how do they feel? Sam likes the cool heavy feel of things. In hockey he likes to wear the goalie gear, in baseball he likes the catcher gear, I am going to make him a weighted vest. My doc said he will probably need meds for anxiety i.e. the crying and humming etc., I am so glad I have met someone who knows what I am talking about.

A body sock or body sox is a spandex kind of large pillow case that the kids can climb into and stretch in. Try that oh so popular site that you can bid on stuff. That's where we got ours. He loves it. It makes him feel safe. And it's cool not scratchy or anything. Finally the Autism Specialist is stopping by my house on Monday to help us out. Though I feel most of his issues are from sensory intergration dysfunction. Who knows, maybe she can see how he acts and give him some more therapy. I told him that he can not play any video game or anything on the computer until he goes #2 in the potty. That seems to be the only thing he hates to loose. I could stand there with his favorit candy and he would say no thanks if it was to sit on the potty. But video games...well that makes him very happy to play. It's hard to tell him no but I've got to try something.

This morning he wanted me to cut the tag off his underwear. He hasn't been bothered by stuff like that for a while so it's as if it's all starting again. Have you noticed your son seems good for a while then suddenly the cranky unhappy itchy guy comes back? I just want my son to have friends and go to school with all the other kids. I can't stand the thought of kids making fun of him because he acts different. His brother already notices and he's six.
Michelle
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Old 05-05-2006, 08:49 PM   #12
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Re: Sensory Integration(Processing)Disorder

Now that Sam is 7 (8 in August) I think people are starting to notice certain things like his vocal sounds. Sometimes all I can think about when I watch him is how is he going to be when he is older. He seems to have meltdowns daily with regard to school work. And yes, I do notice that sometimes he can go for a while with something not bothering him and then it is back. But I also notice that his ticks can wax and wane as can his chewing, etc., I think it depends on whether his nervous system is integrating good at that moment or not. Where are you? I am in Canada and it is harder here in the west to get ots without having to go through all kinds of channels. Do they think your little person is in the autistic spectrum?
Michelle

ps what is your name?

 
Old 05-09-2006, 12:08 PM   #13
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Re: Sensory Integration(Processing)Disorder

Quote:
Originally Posted by worm
Now that Sam is 7 (8 in August) I think people are starting to notice certain things like his vocal sounds. Sometimes all I can think about when I watch him is how is he going to be when he is older. He seems to have meltdowns daily with regard to school work. And yes, I do notice that sometimes he can go for a while with something not bothering him and then it is back. But I also notice that his ticks can wax and wane as can his chewing, etc., I think it depends on whether his nervous system is integrating good at that moment or not. Where are you? I am in Canada and it is harder here in the west to get ots without having to go through all kinds of channels. Do they think your little person is in the autistic spectrum?
Michelle

ps what is your name?

Ha ha, my name is Michelle also.

My son is Kolby and we live in Pennsylvania. He has been diagnoised with Mild Autism. But he has more Sensory issues than anything. He can speek and does not have any ticks or make any sounds. He Doesn't spin thins or stare at things. He is very aware of who is in the room and he does talk. His does need lot's of help with his communcation.

The main things are his not going number 2 on the potty
fussing and crying over anything
hiding from people in a social situation
Not communicating with us properly. He gets so frustrated when we don't understand him.

I have some ideas for you if you woudl like them. Not that they always work for me.

I just thought of how hard it is to go shopping with Kolby. I am going to let him listen to music with a headset on and a portable CD player. This way he won't have to listen to all the people talking. Have your son lay on a blanket, wrap him up like a hot dog. He'd probably love it. You and someone drag him on the blanket accross the floor. Put marbles in a bucket of sand and make a game out of it. Pull two out and you get candy. Pull three out you get two candies. Unless your son likes sand then that defeats the purpose. My son does have OT and they play a lot with the kids. Swinging, dancing, and something called brushing. It's a surgical brush that you use every two hours on your child with a follow up of joint compressions. It's hard to do every two ours but it's supposed to help them feel things better. Like to some kids I guess sand could feel like a knife. This prepairs their nurveous system so that it can kind of feel the proper feeling.

What kinds of ticks does your son have? Mine loves to chew on his shirt or find metal to put in his mouth. Tell me more about him. He sounds great to me. And I think every adult has stange things about them. No one is perfect.
Michelle
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Old 05-12-2006, 10:49 PM   #14
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Re: Sensory Integration(Processing)Disorder

Sam can have some facial ticks , but they come and go. He mostly has vocal noises now which range from humming to throat noises to repeating nonsense words, mostly when he is in a noisy environment or a very quiet environment. He does them when we play card games or when he is sitting and playing although he does stop to talk. Sometimes lately he is sitting doing his school work and he shakes his head back and forth really fast. He has a really hard time sitting at his desk and wants to sit upside down. He is advanced in sports. Today he did his first sports day and got the most ribbons. He understands he needs to go fast, but when he is playing on a team, he doesn't and it frustrates the other kids. He twirls his hair a lot, chews on his shirt, toy car wheels, plastic stuff, the shoes of his sisters polly pockets, etc. Lately he has taken to spinning a rubber worm toy he was given, but doesn't really sit and watch wheels spin or anything. He used to cry a lot at everything and everything seemed to be a big emotional deal, but he does a little better than he used to although he does get frustrated a lot. We used to do the brushing technique and I have been thinking of doing that again as he loved it. In British Columbia we only get an OT up until kindergarten age and then we have to connect somehow with the school system, but because Sam is homeschooled I am having a hard time finding how to integrate into that system. What do you mean when you say you have to help Kolby communicate? Do you mean you have to give him words?(that is what I used to do with Sam even though his vocabulary now is above average). What exactly made them think he was mild autism? They don't like to make a diagnosis here until later if they can help it.

MIchelle

 
Old 05-17-2006, 09:32 PM   #15
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Re: Sensory Integration(Processing)Disorder

[b]hello Everyone, My Name Is Elisa. My Son Kelvin Was Currently Diagnosed With Having Sensory Intergration Disorder. He's 22 Months Old. We've Seen A Developmental Specialist Who Says That My Son Is Borderline Pdd. But More So Sid. My Son Is Very Aggressive And Loves Pain, He Likes To Fall Off Of Objects And Also Scream In Stores For The Echo Of Sound. He Too Is Also A Picky Eater, He Likes Being Dirty And Hates To Take A Bath Or A Shower But Loves The Swimming Pool. My Question For Follow Mothers Is Once The Ot Therapy Starts. Will He Grow Out Of The Sid?thanks

 
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