Grandson has to have open heart surgery! Please help with advice
I am so sad and upset to say the least. My daughter took her son in the other night to ER for what we thought was just gas. Turns out a day later after seeing a heart specialist that he has to have open heart surgery next month. He was born a preemie, and apparently has had this since he was born, and it was never caught. It is called Atrioventricular Canal Defect. I have been reading up on it on the internet, but would appreciate hearing from others who have had children that have gone through this. We are very scared and worried right now. He is 12 years old, and is the best kid around, very affectionate, upbeat and just overall wonderful. Please help.