mindyr11

This is going to be long, so please bear with me. My daughter is four years old. At the age of 2 she became really sick with a high fever that lasted 2 weeks. After numerous tests that were ALL normal they guessed it was probably some unknown virus. Several months later she again ran a high fever for 10 days this time, with again no known cause. Then in February of last year I was shocked to see that her urine looked like coke. I rushed her to the ER. She had no signs of infection in her urine only large amounts of blood. They ruled it Glomerulonephritis. They said most often this is caused by strep although she had not had strep and her blood work verified this. The dark urine persisted for 3 weeks and finally subsided. Although she continued to have microscopic blood in her urine. Eventually this prompted her pediatrician to send her to a kidney specialist. He said that this would either go away on it's own that it could be kidney disease. After 8 months she still had microscopic blood in her urine and her Nephrlogist said that she probably had IgA Nephropathy but that there was a possiblity it was Lupus. Well today almost one year later she still has blood in her urine and during periods of illness she has the dark urine. Well about 2 1/2 weeks ago she started running a fever. It's been as high as 104. This fever has now lasted 14 days. She was tested for strep, flu, Mono, UTI etc, and all were normal. I can't understand why she would have a fever so long. She has complained of stomach pain but had vomiting or diarreah. She also complains of knee pain. They have done blood work to test for lupus, that has not come back yet. Have any of you ever had any experiences like this?? I'm just hoping somebody, anybody can help me out and maybe shed some light on this situation. PLEASE HELP!!