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Old 05-08-2008, 04:24 PM   #1
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Unhappy 7 month old with RSV - any advice would be great!

Hi. I have a 7 month old baby who was diagnosed with RSV at 3 months old (she actually had the swab test done, so it was confirmed). When she was 4 months, she was hospitalized for a week because of the bronchiolitis that occured from the RSV and her oxygen level was down to 84 (we were told 100 is normal). She is now having severe coughing episodes again and her Ped has switched her medication from Albuterol to some sort of steroid cocktail to use with her nebulizer twice a day. We also have her elevated in her crib at night since her coughing is worse at night and we have a cool mist humidifier running all night long for her.

My husband and I are exhausted with the driving back & forth to the ER, Ped, and just with the worrying about her health. She's just a baby; no child or parent should have to suffer through this or any horrible illness.

I hope any one out there can relate to some of what we are going through. If anyone has advice on what else we can do for her, please let me know. We know there's not much we can do medicine wise other than the nebulizer treatments, but anything to help ease her during her episodes or just make her more comfortable throughout the day would be great! Oh, our Ped mentioned the possibility of seeing a Ped Pulmonologist. Has anyone taken their child to one and if so, how was that experience?

Thank you so much to anyone who can share some advice!

 
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Old 05-08-2008, 08:02 PM   #2
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Re: 7 month old with RSV - any advice would be great!

Are you breast feeding? I'm all about natural, nontoxic remedies. The less chemicals in anything, all the better. If you were juicing your diet, consuming 10 to 15 fruits and veggies or more (if you could handle it) a day put thru a juicer, and the baby was getting all those wonderful nutrients thru the breast milk, maybe that would be helpful. Although, I would try to use organic food, if at all possible. Pesticides wouldn't help the issue. Blessings to you and the little one.
sherie55

 
Old 05-08-2008, 08:07 PM   #3
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Re: 7 month old with RSV - any advice would be great!

Seeing a pediatric pulmonologist sounds like your best bet at this point.

 
Old 05-08-2008, 08:28 PM   #4
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Re: 7 month old with RSV - any advice would be great!

I know your heartache with RSV. My daughter at 2 weeks was diagnosed and ended up being ventilated for 2 weeks. Took her turning blue for the doctor to take us seriously and he had us rushed to the hospital from his office by ambulance. If your gut is telling you that she is not being treated properly, then go to another doctor or go to an ER that belongs to a hospital with a great children's hospital attached. We were turned away from the local ER the day before our daughter quit breathing. I kept telling the ER that she was pale and pasty looking and they didn't even check her oxygen level. Called the pediatrician at 1am as she was so congested....he heard her noise and said there was no point in going back to the ER and just come in at 9am to his office (by this time she was blue). I'm sorry to tell my sob story, but if I had just listened to my instincts and not that darn doctor or ER doctor I would have driven her an hour to a better hospital (which ended up being the one she was treated at anyway).

I pray she gets better soon. Sounds like she may need a different treatment as this seems to be going on for a long time. Not trying to scare you, but you may want to sleep in her room as I wouldn't even trust a baby monitor to alert me. Her oxygen levels are too low and that is pretty scary. This can change within a blink of an eye with RSV so hope for the best and be prepared for the worst. FYI, RSV is the number one reason for hospitalization for children under the age of 1.

Good news for us....our baby came home just as healthy as could be and she's now 5 1/2 years old. She has not had any more respiratory distress other than toddler croup. She's now outgrown the scary croup episodes. There is light at the end of the tunnel, but it is a nightmare while you're going through it.

I hope I didn't scare you too badly, but this is nothing to take lightly. Please feel free to ask any questions.

 
Old 05-08-2008, 09:28 PM   #5
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Re: 7 month old with RSV - any advice would be great!

I just wanted to make myself clear...You want to find the best doctor and hospital for your child that is clear. The fact that you are here trying to find answers shows your concern for your baby. I feel that bolstering your health thru juicing so that you can give your baby more nutrition is just smart. It can't hurt and will only do good. It is called being proactive. When the government's food pyramid suggests you eat a miminum of 11 fruits & veggies a day....something is not right. Bless!

 
Old 05-09-2008, 08:34 PM   #6
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Re: 7 month old with RSV - any advice would be great!

My 3 month old had bronchiolitis last week with wheezing. The albuterol treatment didn't help, so the ped gave her an epiniphrine treatment. She was better two days later. I have a toddler with asthma and have learned that cool mist humidifiers can actually do more harm than good because of the mold factor. Using saline nose drops is just as effective and doesn't harm the air in your child's room. Good luck!

 
Old 05-24-2008, 07:30 PM   #7
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Re: 7 month old with RSV - any advice would be great!

My son had RSV when he was about 1 month old. We went to the ER after we called the his pediatrician and I told him he sounded "rattley in his chest" and his skin/stomach was collapsing around his ribcage. It sounds like you need to get a new doctor and find another ER. An infant with breathing difficulty should never be taken lightly and it sounds like that is exactly what your medical professionals are doing.
We were told to use a humidifier, we have to clean it daily to prevent scale and mold, and to place the baby in his swing-so he'd be sitting up and have an easier time breathing. He was admitted in the hospital for 3-4 days and has a nebulizer and abuterol if he needs it. A ped pulmonologist sounds like an excellent idea. Hopefully the specialist can cure whatever is causing the reoccurrences. So far we have had no RSV re-occurrences; although as I type this my little guy (now 6months old) has croup
I hope your daughter gets better soon!

 
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