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Old 09-07-2009, 06:27 PM   #1
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van78 HB User
laringomalacia

My son was 7 weeks old when he was diagnosed with Laringomalacia. He was actually 2 weeks old when he started making the noise but 3 doctors told me this was a normal noise for him to making. Having had 3 other children who never made that noise i knew something wasnt right and took him to a 4th doctor who admitted him to hospital where they diagnosed the problem only by the noise he made no scope was done to confirm this. We have since been back to hospital as he got pneumonia. They are now not sure if it is linked to his Laringo just wondering if anyone else has had resipratory problems linked to Laringomalacia.

 
Old 10-28-2009, 05:21 PM   #2
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sueinge HB User
Re: laringomalacia

Hi Van,
I know it has been awhile since you posted this question. My son who is 3 1/2 was diagnosed with laringomalacia when he was 4 months old. I noticed him having a real raspy breathing sound almost from the beginning. When he started getting respiratory illnesses like a cold he would sound sooo much worse that I swore he wasn't breathing enough. I would always rush him to the doctor and they said he was breathing enough but eventually sent me to an ENT when they did the scope. That is when he was diagnosed. The ENT told me that he would eventually outgrow it. That didn't stop me from totally freaking out every time he got sick, because he would sound so awful! He got croup three or four times and that was the worst. The docs gave me a neubulizer and told me to do that when he was sounding really bad, but I could never get him to do the whole treatment without fighting me. It would scare me to no end. Even tho I knew he had the condition he would sound horrible and I was always worried. I will say he has gotten a lot better the older he gets. The docs weren't sure if he he would develope respiratories issues, but I think it is rare that they do. We had to change pediatricians when we moved and his new doctor even told me that when the cartilidge in his ears stiffened up I would know the flap in his throat would firm up too and not flap as much making the noise. I don't know if I believe that or not but I have been told so many things in regards to this condition that I am not sure what is true or not. I don't know if this helps you or not, but good luck with your little boy. If you are concerned I would insist on the scope, it isn't too bad and you will feel a lot better knowing for sure what the extent of the curve is.

 
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