My son is 8 years old and he has had stomach problems since he was 5. It started with a diagnosis of HB Pylori. He hasnt been the same since then. Also around the same time he developed these stomach pains, he had a few heat exhaustion/dehydrated episodes, so we were told thats what happened.
He would get really hot and feel like he could faint, get blurry vision and have pain in shoulder or chest. Felt like he couldnt breathe. They ran all kinds of tests and all were negative. This happend two times one summer, when he was 5 years old both times this happened he was outside. Since then it has happened about 3 times in the last 2 years but he wasnt outside in the heat. But no stomach pain with these episodes of near syncope.
A few months ago he started with stomach pain very often now it is almost every day. He had a few episodes of getting hot just when sitting still doing nothing, he would just lye down and wait it out. The doctors put him on prilosec 2x day for the pain and that isnt helping. We are waiting on bloodtests again and an xray to see if he may be constipated.
Has anyone out there had this same experience with their child? Oh and he also spit up every day, several times a day until he was 11 months old when he stopped his bottle, we are not sure if this is related or not.
I have been researching stomach migraines, celiac disease, and constipation, I am thinking it may be one, anyone have any idea???
I would get a celiac panel done. The problem is that it can come out as a false negative. There are 3 million undiagnosed celiacs so I think everyone should be screened just like we all get screened for high cholesterol. I found out I have celiacs last July after being misdiagnosed for three years. I had the stomach pain, mental confusion, muscle and joint pain, daily stomach aches and nausea. There are alot of other symptoms. Too many to list. If you do get a test and it's negative, I would see a nutritionist about going on an elimination diet. I actually found out I had celiacs because I went on an elimination diet at the request of my physical therapist to help with pain and inflammation and not only did the joint pain go away but the persistant stomach pain and nausea went away as well. It's a tough diet and for the first two weeks I thought I was going to go mad because of the cravings. From what I've read the body craves what it's sensitive to. If you do the diet be prepared for alot of resistant from your child. I think seeing a nutritionist would be a really good idea. Sometimes it's hard to find one that is open to an elimination diet. Even if he doesn't have celiacs the diet might point you to something else that is bothering him in his diet. Also, did you do allergy testing where they poke the back a bunch of times to see what allergies there are. Good luck to you. Must be hard dealing with this. I have a son who is 15 years old and has had diabetes since he was 4 and now he has a rare heart condition so I know what it's like to see your child suffering. Since he has diabetes and I have celiacs along with another autoimmune disease called hashimotos thyroiditis and one section of a celiac test he had done came out positive eventhough it's not a definite diagnosis of celiacs, he has decided to go on a gluten free diet himself because his chances are so high for developing it. Hope you find the answers soon.
I would also check about GERD (gasrtesophogeal reflux disorder) my son was diagnosed as a baby.He had a really hard time keeping any formula down, he cried alot too. As he got older he was able to keep food down but would suffer from severe stomache pains.They got him on meds and now hes fine.Eventually I was able to take him off meds & we control his stomache problems with tylenol and maalox.good luck & God Bless.Hope this helps.
do you know just exactly what tests were run on him and also have ALL of your very own copies of all results in your posession too? if not, start gettig all the older records and also continue to obtain any copies of testing results from here on out and keep them in an expanding folder type of thing? this helps tons when you are going thru the 'diagnostic phase' for any type of medical issue, espescially when they are running LOTS of tests on your child.
this is what i just had to start doing when my son went into liver failure then needed a transplant too. there were sooo many labs being done(weekly) and so many new docs and the ER visits too that i just HAD to start collecting any testing info just so the 'new' docs (you cannot always rely on people who say they are going to send records to actually just 'do' that part either) would have everything they should and any ER visits where they just cannot access someones test results really came in the most handy for us. just having your very own copies of all records and test results, espescially when/if some type of emergent situation pops up, just allows you to grab that folder and go, and you just know already that you have everything that the ER docs are going to be needing or asking you about too. this also sets up a very very important and crucial set of 'baseline' test results that the docs will simply have to work from too. that really IS the most important thing in having that baseline to work from. they can see the progression of certain labs/problems and just know what is not right or gotten worse or better, just by all of the info YOU have and provide for them. it also stops them from asking YOU about what was this lab or that lab at like three weeks ago type of crap?
do you know if they have run full hepatic/liver panels and kidney panels and the results of them? honestly, just what you have mentioned here about the very persistant stomach aches and the very early vomiting up of formula when a baby sounds almost exactly like what my son had way before he presented with his medical nightmare that was his liver the whole time. you just really DO need to try and stay on top of all this by simply getting ALL of his testing results (and any doc who has laid hands on him, their clinic visit notes at least every six months. this is a goldmine of info). this helps sooo much i cannot even begin to tell you. this just helps both your child and you too in many many ways. this also allows you to actually go thru all of the tests yourself that also allows you to just be better informed, and also when asking any doc questions about certain test results and things you were NOT actually told about too. docs just do NOT always tell patients or the parents about everything that has showed up on any given test they do either, trust me on that one.
what types of docs have you seen so far, the specialty? what DO they actually know and what has been ruled out so far? marcia
11-20-01,placement of hardware for failed fusion
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