Re: 8 year old child with chronic stomach pain
do you know just exactly what tests were run on him and also have ALL of your very own copies of all results in your posession too? if not, start gettig all the older records and also continue to obtain any copies of testing results from here on out and keep them in an expanding folder type of thing? this helps tons when you are going thru the 'diagnostic phase' for any type of medical issue, espescially when they are running LOTS of tests on your child.
this is what i just had to start doing when my son went into liver failure then needed a transplant too. there were sooo many labs being done(weekly) and so many new docs and the ER visits too that i just HAD to start collecting any testing info just so the 'new' docs (you cannot always rely on people who say they are going to send records to actually just 'do' that part either) would have everything they should and any ER visits where they just cannot access someones test results really came in the most handy for us. just having your very own copies of all records and test results, espescially when/if some type of emergent situation pops up, just allows you to grab that folder and go, and you just know already that you have everything that the ER docs are going to be needing or asking you about too. this also sets up a very very important and crucial set of 'baseline' test results that the docs will simply have to work from too. that really IS the most important thing in having that baseline to work from. they can see the progression of certain labs/problems and just know what is not right or gotten worse or better, just by all of the info YOU have and provide for them. it also stops them from asking YOU about what was this lab or that lab at like three weeks ago type of crap?
do you know if they have run full hepatic/liver panels and kidney panels and the results of them? honestly, just what you have mentioned here about the very persistant stomach aches and the very early vomiting up of formula when a baby sounds almost exactly like what my son had way before he presented with his medical nightmare that was his liver the whole time. you just really DO need to try and stay on top of all this by simply getting ALL of his testing results (and any doc who has laid hands on him, their clinic visit notes at least every six months. this is a goldmine of info). this helps sooo much i cannot even begin to tell you. this just helps both your child and you too in many many ways. this also allows you to actually go thru all of the tests yourself that also allows you to just be better informed, and also when asking any doc questions about certain test results and things you were NOT actually told about too. docs just do NOT always tell patients or the parents about everything that has showed up on any given test they do either, trust me on that one.
what types of docs have you seen so far, the specialty? what DO they actually know and what has been ruled out so far? marcia
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