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Old 09-30-2010, 01:39 PM   #1
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What could be wrong with my 6 year old?

Hi all. I've been trying to figure out what's going on with my 6 year old for a while now. He's currently seeing a GI specialist and pulmonary specialist. Any one have any ideas or can relate?

Chronic cough, comes and goes for years now, usually he coughs for a month or so, then stops or barely coughs for a couple of weeks, then it starts again. He usually doesn't cough when sleeping, coughs during the day but more in the morning and before bed. Wet, not dry cough. He doesn't always cough anything up, but you can hear it. Turns into a barking cough a lot of the time.

Stuffy nose a lot of the time, sometimes runny.

Frequent colds and upper respiratory infections, goes on antibiotics, gets better for a little, then seems to get another. He had pneumonia twice last year, URI once and sinusitis once, and I believe bronchitis once.

Diagnosed with severe asthma, and uses a flovent inhaler twice a day, takes daily singulair and uses albuterol as needed for the cough. Hasn't stopped it yet. He has low PFT's.

I believe he has acid reflux, we are going to talk to the doc about this next, he says he keeps throwing up a little in his mouth.

Dark circles under his eyes and pale skin.

He complains about his legs hurting a lot, but this could be "growing pains".

Anemic.

Bruises easily (maybe due to anemia).

Night sweats. Also seems to sweat easier than other kids. Odd smell to his sweat, sort of like chlorine.

Complains about his tummy hurting, usually after eating, but sometimes at random times.

Loose, frequent stools, but not all of the time. His diapers were absolutely horrible. Sometimes, however, he seems to have normal looking stools. I've tried keeping a food journal, but can't find a relation between the loose stools and any particular food.

Always thirsty. Not a huge appetite, but eats.

Hernia on both sides, discovered and repaired about a year apart.

Underweight, Failure-to-Thrive, but wasn't always. He is 1 pound heavier now then he was 2 years ago. His BMI was at the 69% at 4, dropped to 7% by 5 and is now off the charts (13.3). His height seems to be doing well though, at 4 it was 37%, at 5 it was 42%, and at 6 it is 44%.

Tests he's had done:

Allergy - negative
Tuberculosis - negative
Sweat test - negative/inconclusive
Celiac - negative
Colonoscopy/Upper and Lower Endoscopy with biopsy - negative

Anyone?

 
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Old 09-30-2010, 02:12 PM   #2
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Re: What could be wrong with my 6 year old?

Wow. Your child is having a hard time. I immediately thought celiac disease because that is what I have and some of the symptoms were similar to mine. Even though the celiac endoscopy came out negative he could still be gluten sensitive. I highly recommend a blood test called ELISA. It covers up to 180 foods. I have a son who had been out of school for a year due to stomach pain, dark eye circles, lack of energy and his test came out showing he has a high and permanent allergy to milk, eggs, wheat, and citrus. After a month of being off all these foods and a few other minor ones that we would later reintroduce, he felt a lot better. He is back in school and has more energy than anyone in the family. My sons celiac panel test was negative but this test showed a high sensitivity to gluten. Regular doctors don't usually offer the ELISA test. You may need to find a naturopathic doctor. If you get the test your child needs to be actively eating the foods you suspect could be causing a problem.

Beth

 
Old 10-01-2010, 12:01 PM   #3
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Re: What could be wrong with my 6 year old?

Thanks for writing and the info on the gluten sensitivity. I'd wondered about that in the past. He is going to be in a research study through his pulmonologist that includes all the skin scrape allergy testing. Maybe something will show up.
The cough has me the most worried. It started up again last night and it is the horrible, wet, barking cough. I forgot to mention that his pulmo also found what he thought was either an old lingering infection or lung damage. He's only 6! Another thing are his fingertips, I can't find anything on this. The tips, from about a 1/4 of an inch above his cuticle to the tips, are pink/red. The only thing I found is finger clubbing, but the ends of his fingers don't appear swollen or bulbous. He also has what our pediatrician years ago called hypersensitive skin. We can gently run our finger nails across him and it will leave a red line for about 10 minutes or so. When we pick him up, it will leave red finger marks, also for about 10 mins. It doesn't hurt him at all. I don't even know if his symptoms are related to each other. He has an appt. with his pediatrician on 10/8 and they are doing a diabetes test. His pulmo's office is supposed to call back will an appt. time as well. I can't stop worrying about him. Funny thing is, he's still quite active most of the time and in very good spirits. If anyone has any ideas, I'd love to hear from you.

 
Old 10-01-2010, 01:41 PM   #4
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Re: What could be wrong with my 6 year old?

Has your doctor tested him for PI - Primary Immunodeficiency? You can research it and see if the symptoms are relevant. There is nothing more worrisome than a sick child. I wish you well

 
Old 10-04-2010, 07:12 AM   #5
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Re: What could be wrong with my 6 year old?

Has he ever been tested -- GENETIC BLOOD TESTING --- for Cystic Fibrosis. Not the sweat test, but actual blood tests. My son's sweat test was NORMAL -- NOT inconclusive; however, genetic blood testing showed he DOES have CF.

Sounds like a lot of similar symptoms.

DS has CF which includes pancreatic insufficiency, which causes an inability to digest fats and therefore frequent, bulky stools without pancreatic enzymes. Also difficulty maintaining weight. Vitamin deficiencies... He also has sinus issues and has had respiratory issues in the ast for which we do chest physiotherapy to keep his lungs clear.

Sweats out a lot of salt and in the summer we can see salt crystals at his hairline.

Last edited by Ratatosk; 10-04-2010 at 07:13 AM. Reason: addition

 
Old 10-12-2010, 02:10 PM   #6
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Re: What could be wrong with my 6 year old?

The one thing i would encourage you to do is see an ent doctor right away. Insist that your child have a croup series xray and that he gets scoped. You may be surprised.
If your child is coughing like that there is a possibility of his upper airway being narrowed due to gerd. If this is the case he will most likely be put on losec for a couple of months and he will not need any of those pumps again. I hope you get some answers.

 
Old 11-15-2010, 07:42 PM   #7
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Re: What could be wrong with my 6 year old?

My son who is now four sounds so much like what you are discribing. We have been battling with this since he was 3 weeks old. We, like you, have mananged to get no answer from any doctor. We have seen pulm, ent, genetics, gi. All have found nothing.
He is currently taking flovent, albuteral, and claritin. These seem to help alittle with the nose but thats about it. As an infant he was put on meds for acid reflux but not anymore. He was dignosed with failure to thrive at one year old. This is no longer a concern. Like your child, my child always has a horrible cough, loose stools. He sweats alot, mostly at night. He vomits often. His have mult. bowel movements a day, approx 6. The are very fool smelling, almost like someone with cdef. The hernia, i believe, it has something to do with choughing. My son has a hernia of the belly button.

 
Old 11-16-2010, 08:27 AM   #8
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Re: What could be wrong with my 6 year old?

I still contend that the majority of those symptoms are those of cystic fibrosis. IMO, get tested to rule it out. The gi issues, the sinus issues, junky cough, reflux, malapsorption, failure to thrive, sweating....

 
Old 04-01-2011, 10:15 AM   #9
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Re: What could be wrong with my 6 year old?

My 8yr old son had ALL of the same symptoms! The worse was the cough. Turned out to be reaction to the Flovent. The dosage kept getting raised because we thought it was his asthma reacting when in fact it was side effects from the Flovent. Now he's down to just one puff of the 110 nightly, and he's great all day until that one puff, and then he starts with the cough and other issues again. I'm asking now to lower it to the 44 and see how that goes.

 
Old 04-01-2011, 10:38 AM   #10
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Re: What could be wrong with my 6 year old?

Oh, my son also had the chronic
Stuffy nose a lot of the time, sometimes runny.

Frequent colds and upper respiratory infections, goes on antibiotics, gets better for a little, then seems to get another. Diagnosed with severe asthma, and uses a flovent inhaler twice a day, was takeing daily singulair and used albuterol as needed for the cough.
Dark circles under his eyes and pale skin.
He was treated many times for acid reflux and would still complain about burping up stuff, but not now that he's off the Flovent high dosage.

He also complained about his legs hurting a lot, but noone could figure out why!

He had night sweats, and episodes of chills, also.

Complained about his tummy hurting, usually after eating, but sometimes at random times.

He never had great appetite.
He's been tested for Celiac.
Had 3 total endoscopies.
Seen allergist, ENT, Ped. GI.
They just kept adding more medicines to treat the symptoms, and he got more and more miserable.
Now, he's not on the singulair either.
It seems the inhaler was causing the reflux, causing the side effects and congestion(from reflux). He actually has pink cheeks now.

 
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