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Old 11-30-2010, 07:46 AM   #21
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

it very easily 'could be" just the one kidney or both unfortunetly. it really would be impossible to say right now considering her US looked good(did you ever get that rad report on the US?), ya know? but once she just does get to that neph, he or she will be ordering much more individualized types of testing there too which WILL eventully give the overall 'functions' of each individual kidney. so it WILL eventually BE found out, along with just exactly "what" the underlying generator is of that higher protien along with the 'whys' of the higher BPs too. its simply the flippin waiting that makes you crazy at this point. i would just try and keep your daughters mind OFF that visit and onto something maybe just 'fun' for her to do or something SHE really likes/loves to do til you finally can get seen and simply find out that very much needed info(maybe some sort of ongoing type 'project'?). while i KNOW that YOU are going to be worried until you simply can even get more solid info(thats just part of the bein a mom thing that comes with the territory unfortuently), at least you can help your daughter to deal much more easliy right now and keep HER anxiety and stressors down too which can impact BPs if she just gets way too overly worried?

let her decorate your house for christmas or make 'christams stuff'? just some thoughts there hon. she just needs her mind to be occupied right now and be thinking about 'happy stuff' like the upcoming christmas 'fun' can do? or ANYTHING else you can think of since you just DO know your daughters likes there better than anyone, ya know?

i am thinking just considering 'how' that dip gets done? that no matter if this even WAS simply 'trace' or even a bit more than that, it more than likely(just with THAT test) would still have actually shown only that it was 'there' at all, which would or could be listed as AT LEAST 'trace"? ya know what i mean? its just a quick check to even 'detect it' at all and no where near as accurate as the 24 hour where the individualized part comes in? her number IS a bit high, but the one HUGE thing you just have to keep remebering here hon is that you STILL have NO real clue as to the 'whys' of all this? and she DID have a great renal US from what you stated,so that WOULD definitely rule out things more potentially 'solid' being IN either kidney like a tumor or cystic crap or anything else that has that more 'scarey' solid substance make up that indicates much more severe or potentially severe stuff too? so THAT HAS been ruled out and that IS a good positive,so hang onto the stuff that you know just IS more positive here when you can christine,seriously.

i am just wondering about her adrenals and considering her age, overall hormone levels simply 'kicking in' around her surrent age? the pituitary gland, the adrenals and a few other 'areas' are also involved with BPs and how certain 'releases' of reactive types of hormones too can be impacing the BPs and the protien levels too? sooo, unfortunetly hon, like i said, it will take that more in depth type testing by her neph to simply start testing the more common/logical types of 'possibles' for her current sympyoms in order to track back to the overall 'source' of the generators here.

sorry i cannot offer you more really solid info than this. but the tests WILL rule in rule out and show a better "go to" direction to the neph based upon those tests that may be able to even tell pretty quickly just what IS the underlying 'trigger' here that simply right now 'appears' to be solely kidney related but could include many other 'possible that simply would 'show itself' the way your daughter is presenting within the kidney and the labwork. and right now, and at age 13, really IS a rather chaotic time in her body as far as hormonal crap that is just really starting to 'kick in' alot of different 'NEW" things/hormones/chemical releases too, and that too can play a bigger part in even why she just has presented NOW vs earlier or even later depending upon just what all IS involved here christine.

sooo, while i KNOW you simply xcannot have tues come soon enough here to just hopefully find out much more even at that initial consult, it IS a waiting game too. but keeping busy seriously IS/WAS how i got thru all my sons medical crap and mine too along the past ten years? just keep creating and immediately writing down all good questions like in a notebook you leave out in a more common area so you just WILL do this asap before you 'forget' that one really great question like i used to before i kept the notebook OUT all the time, lol? that really just IS so very important. and make certain to also be writing down any and all ANSWERS to saID QUESTIONS AS WELL. sorry hit the *^&%^*** caps lock, AGAIN!!

take care both of you, and do let me know what you find out and ANY actual 'names' of types of testing they want her to have as well, and do write THAT stuff down too(everything should just BE writen down in that notebook). take care hon and i do hope you were able to have a really great family T day too. marcia
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Old 02-05-2011, 02:14 PM   #22
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

Have they checked her liver?

 
Old 02-06-2011, 09:09 AM   #23
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

christine? just wondering how you and of course your daughter are doing? what did you find out? hope things were not too much over the top for you/her. please post when you can, K? i have popped in here a few times just to see if maybe you popped in but started a newer thread but didn't see anything. just let me know hon.

worm, i know they never did that full abdom ultrasound only renal, which i was at least hoping they would since THAT full abdominal vs renal would also have at least 'looked at' that liver. i would 'think tho at some point the liver labs would have? or should have at least been looked at (just basic covering all bases?). just wondering why you are asking about the liver tho? i DO unfortuently know that some liver and kidney diseases CAN go hand in hand since i have one and so did my son before his liver needed tx. marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 02-14-2011, 07:01 PM   #24
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

I had Hellp syndrome when I was pregnant. Severe high blood pressure and protein in my urine and my liver and kidneys were shutting down, but they checked my liver electrolytes right away and they were out of kilter. It had a lot of pain there though.

ps definitely not implying that she is pregnant, but that they should probably check her liver.

 
Old 02-15-2011, 07:07 AM   #25
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

i never heard of that syndrome before. sounds like a very very scarey thing to have happen,esp when your carrying a baby tho. was everything okay after the birth then? did your body "renormalize' post partum of did you have any lasting effects?

i am seriously worried about this child here and christine with no answer back yet. i KNOW she already had/has a daughter with major medical issues, and from my own experience with THAT, anything else that simply even gets added to the already overwhelming crappy parts of that, just impacts you much much more than with 'only' one major issue to deal with, handle and worry about? i just really want to find out what was actually 'found out' with her daughter(hopefully an actual Dx), esp after finally seeing that neph, ya know? hopefully she will respond at least a few lines soon. i DO hope things are okay with them, and you too worm. marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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