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Old 11-20-2010, 02:04 PM   #16
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

Hi kaylas'mom, I am so saddened to hear that you and your daughter are going through a hard time right now. I know a discovery such as this can be extremley difficult, as I had the same problems when I turned 16. I had protein in my urine and my BP was high. I hate to say it but now that I'm 24 I have complete kidney failure and am on Dialysis. HOWEVER, that usually is not the case in most patients. Two of my cousins had the same thing, very young, they took some steroids, and they were cured! So don't worry, your chances of anything serious are quite low.

 
Old 11-21-2010, 08:04 AM   #17
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

I am sorry to hear about what you are going through.. What was your diagnosis?..So far all her blood tests come back fine and so did her US.. I feel optomistic but at the same time I feel like this could be just the begining of things for her.. Is it possible to have proteinn in her urine and everything be ok?..Or is this how kidney disease starts?.. I hope you are doing as well as can be expected.. My thoughts are with you..

 
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Old 11-28-2010, 03:50 PM   #18
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

I have a quick question.. I notice on other Posts some people write "protein level +3" or whatever..What does the +3 mean?

Hope everyone is doing well..

 
Old 11-29-2010, 09:23 AM   #19
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

hi christine, sorry i have not been popping in as much, been kinda tied up with too much stuff.

don't quote me on this one, but i seem to recall, its that 24 hour test thats the only way to get an actual 'number' on that protien level(when esp the 'trace" is so low). that 'type' of a UA is just where 'your" actual numbers are defined in a much more individualized way? the way they use to "standardly" find out in any given UA, as to anyone who may have possible protien in their urine is usually by a very basic 'urine dip' test? and that will only show whether or not anyone just does or does not actually have any 'traces' of protien, vs that 24 hour one and how THAT works? or if someone is in renal failure, that protien just IS much higher than mere trace, so they DO have to check on that protien level with a UA from time to time too.

also, and this really IS why its good to obtain the actual lab SHEETS from any labs done and not only hear "numbers' from any given doc on testing results? there just ARE many different ways of 'doing/determining" labs that are very much individualized to THAT particular lab that DID the testing on either a UA or blood labs? that is also another real reason why they always have the 'set' standard ratios listed on that sheet too? while the numbers are usually(the labs standards) kind of 'close' to how other labs are done, there just realistically 'can' be some variances in the "standard ratios" for the way that particular labs numbers were determined. so always go by that individual lab sheet.

most docs offices will tend to use the very same lab over and over to get all the sent out labs done, so you usually wont see too much of difference in THAT type of circumstance? but if you are like in the actual hospital, and esp the ER for anything, that CAN be done a bit differently since they usually need all labs done on a more 'stat' type basis? or when you see the neph? if they do any labs on her, it will depend upon just where 'they' actually send their own labs to be done or even do them right there "on site" too as to what the numbers can simply be too?

sorry for the 'too much info overload" here, but honestly, having had to take my son into many an ER and different types of specialists when he was going thru liver failure, i really DID see differences depending upon ERs and specialists offices who did their own labs too? so just always obtain those lil lab sheets hon.

but i am also wondering if only "trace" protien found even 'can' be realistically 'counted? ya know what i mean? BUT, when people are going thru like the different stages of actual renal failure, they simply HAVE to have very specifically defined types of lab numbers in order to be able to just adjust certain types of meds they are on and to actually determine the more specific 'stage' by looking at like the GFR, the creatinine and checking for how much the actual protien and potassium level has gone up too? i personally have never had my own protien levels actually 'counted" yet. but i know my sister is actually in stage three renal failure(i am still at four) and her labs are done a bit more in depth now than mine are and the way they "used to do' hers before her GFR dropped down to 54 two years ago, and her creatinine also went up?

if you want more specifics on how they determine that actual protien number, i would simply try a search on how to determine actual protien levels in urine or something along those lines? but i do think it IS that 24 hour one. and like i mentioned above? i really do not know if only 'trace' even CAN actually be counted when it's only that trace? but i could be wrong. this WOULD however be a really great question to simply ask her neph too when you see him. i DO hope whenever you are thinking of ANY good questions you simply want the answers to when you see that neph that you are writing them down too as soon as you think of them? i do this before any new 'specialists" i see or if i am going to have to have another surgery and will be seeing the surgeon for a consult? it does help YOU alot, trust me.

i do hope things are going okay hon. does she have an actual appt 'set" at this point? take care christine, marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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Old 11-30-2010, 06:58 AM   #20
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

Hi Marcia.. Hope hings are going good for you..and that you had a good Thanksgiving..

Kaylas 24 urine test showed more then a trace..It actually showed a number of 157 which her Doc said was counted and not just a trace so which means it has gone up from the dipstick test..Still she said its not "outrageously high".. She goes to the Neph next Tuesday..I am anxious about this and I know she is too..When there is protein in the Urine does it mean that BOTH kidneys arent working right or can it be limited to just one??..Poor kid really is scared and I am feeling really sad for her..Hopefully this appointment on Tuesday will be a good one and it can bring us some rest..

Take care..You are in my thoughts..talk to you soon Chrisitne

 
Old 11-30-2010, 07:46 AM   #21
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

it very easily 'could be" just the one kidney or both unfortunetly. it really would be impossible to say right now considering her US looked good(did you ever get that rad report on the US?), ya know? but once she just does get to that neph, he or she will be ordering much more individualized types of testing there too which WILL eventully give the overall 'functions' of each individual kidney. so it WILL eventually BE found out, along with just exactly "what" the underlying generator is of that higher protien along with the 'whys' of the higher BPs too. its simply the flippin waiting that makes you crazy at this point. i would just try and keep your daughters mind OFF that visit and onto something maybe just 'fun' for her to do or something SHE really likes/loves to do til you finally can get seen and simply find out that very much needed info(maybe some sort of ongoing type 'project'?). while i KNOW that YOU are going to be worried until you simply can even get more solid info(thats just part of the bein a mom thing that comes with the territory unfortuently), at least you can help your daughter to deal much more easliy right now and keep HER anxiety and stressors down too which can impact BPs if she just gets way too overly worried?

let her decorate your house for christmas or make 'christams stuff'? just some thoughts there hon. she just needs her mind to be occupied right now and be thinking about 'happy stuff' like the upcoming christmas 'fun' can do? or ANYTHING else you can think of since you just DO know your daughters likes there better than anyone, ya know?

i am thinking just considering 'how' that dip gets done? that no matter if this even WAS simply 'trace' or even a bit more than that, it more than likely(just with THAT test) would still have actually shown only that it was 'there' at all, which would or could be listed as AT LEAST 'trace"? ya know what i mean? its just a quick check to even 'detect it' at all and no where near as accurate as the 24 hour where the individualized part comes in? her number IS a bit high, but the one HUGE thing you just have to keep remebering here hon is that you STILL have NO real clue as to the 'whys' of all this? and she DID have a great renal US from what you stated,so that WOULD definitely rule out things more potentially 'solid' being IN either kidney like a tumor or cystic crap or anything else that has that more 'scarey' solid substance make up that indicates much more severe or potentially severe stuff too? so THAT HAS been ruled out and that IS a good positive,so hang onto the stuff that you know just IS more positive here when you can christine,seriously.

i am just wondering about her adrenals and considering her age, overall hormone levels simply 'kicking in' around her surrent age? the pituitary gland, the adrenals and a few other 'areas' are also involved with BPs and how certain 'releases' of reactive types of hormones too can be impacing the BPs and the protien levels too? sooo, unfortunetly hon, like i said, it will take that more in depth type testing by her neph to simply start testing the more common/logical types of 'possibles' for her current sympyoms in order to track back to the overall 'source' of the generators here.

sorry i cannot offer you more really solid info than this. but the tests WILL rule in rule out and show a better "go to" direction to the neph based upon those tests that may be able to even tell pretty quickly just what IS the underlying 'trigger' here that simply right now 'appears' to be solely kidney related but could include many other 'possible that simply would 'show itself' the way your daughter is presenting within the kidney and the labwork. and right now, and at age 13, really IS a rather chaotic time in her body as far as hormonal crap that is just really starting to 'kick in' alot of different 'NEW" things/hormones/chemical releases too, and that too can play a bigger part in even why she just has presented NOW vs earlier or even later depending upon just what all IS involved here christine.

sooo, while i KNOW you simply xcannot have tues come soon enough here to just hopefully find out much more even at that initial consult, it IS a waiting game too. but keeping busy seriously IS/WAS how i got thru all my sons medical crap and mine too along the past ten years? just keep creating and immediately writing down all good questions like in a notebook you leave out in a more common area so you just WILL do this asap before you 'forget' that one really great question like i used to before i kept the notebook OUT all the time, lol? that really just IS so very important. and make certain to also be writing down any and all ANSWERS to saID QUESTIONS AS WELL. sorry hit the *^&%^*** caps lock, AGAIN!!

take care both of you, and do let me know what you find out and ANY actual 'names' of types of testing they want her to have as well, and do write THAT stuff down too(everything should just BE writen down in that notebook). take care hon and i do hope you were able to have a really great family T day too. marcia
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9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 02-05-2011, 02:14 PM   #22
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

Have they checked her liver?

 
Old 02-06-2011, 09:09 AM   #23
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

christine? just wondering how you and of course your daughter are doing? what did you find out? hope things were not too much over the top for you/her. please post when you can, K? i have popped in here a few times just to see if maybe you popped in but started a newer thread but didn't see anything. just let me know hon.

worm, i know they never did that full abdom ultrasound only renal, which i was at least hoping they would since THAT full abdominal vs renal would also have at least 'looked at' that liver. i would 'think tho at some point the liver labs would have? or should have at least been looked at (just basic covering all bases?). just wondering why you are asking about the liver tho? i DO unfortuently know that some liver and kidney diseases CAN go hand in hand since i have one and so did my son before his liver needed tx. marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 02-14-2011, 07:01 PM   #24
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

I had Hellp syndrome when I was pregnant. Severe high blood pressure and protein in my urine and my liver and kidneys were shutting down, but they checked my liver electrolytes right away and they were out of kilter. It had a lot of pain there though.

ps definitely not implying that she is pregnant, but that they should probably check her liver.

 
Old 02-15-2011, 07:07 AM   #25
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Re: 12 year old daughter with High Blood Pressure and protein in her urine

i never heard of that syndrome before. sounds like a very very scarey thing to have happen,esp when your carrying a baby tho. was everything okay after the birth then? did your body "renormalize' post partum of did you have any lasting effects?

i am seriously worried about this child here and christine with no answer back yet. i KNOW she already had/has a daughter with major medical issues, and from my own experience with THAT, anything else that simply even gets added to the already overwhelming crappy parts of that, just impacts you much much more than with 'only' one major issue to deal with, handle and worry about? i just really want to find out what was actually 'found out' with her daughter(hopefully an actual Dx), esp after finally seeing that neph, ya know? hopefully she will respond at least a few lines soon. i DO hope things are okay with them, and you too worm. marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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