My four year old son is sick and getting worse. The soonest we can get in to the ped neuro is mid July, but I am getting proactive! We feel that the docs aren't listening,or don't believe us!
My son has had the following symptoms daily for over a week:
Headache (intermittent, ranging from mild to severe)
Extreme fatigue...not interested in going to beach, racetrack, park, etc
arm and leg pain...joints, muscles and bone
Over the last several mos,he's had 'flare ups' of the same symptoms every few wks. In addition:
Nausea/vomiting ("flu" about 10-15 x)
Occasional eye drainage..like very mild conjunctivitis
red rash on arms n legs
A few episodes of extremely low temp... 94.7...normal.for him is app 97
*seems like all this started after a very bad flu bug landed him n hospital overnight for dehydration.
Tests run in the last yr (all normal):
Ct of brain
Bloodwrk for jra, leukaemia
r knee xray (where his joint pain began)
Docs seem frustrated w us, but we are getting very scared. Whatever it is is getting worse! Please help.
Thanks for your reply. I'm not sure of the specifics of the blood tests, however, I do know he had a CBC and/or WBC w differential. Whatever tests they did were to rule out leukemia and juvenile rheumatoid arthritis.
I have mentioned Lyme twice. Both times I was basically told that we don't live in CT and not to worry, despite remembering a tick bite w accompanying red, raised rash the size of a saucer which hung around for about 3 wks. The bite occured about 2 years ago, so docs don't think its related. (Symptoms can be traced back at least 1 yr ago). They said for me to bring it up at my pediatric neuro appt in FOUR weeks. Passing the buck, if u ask me.
He's ok SO FAR today, other than some mild ankle/leg pain.
I'm looking for any suggestions. Thanks!
Last edited by Pajamajane; 06-14-2011 at 12:19 PM.
There are multiple infections that can be carried by ticks, although lyme is the longest-lasting one. And it's spreading beyond CT and the Hudson Valley. Pretty much anyplace you have deer and mice living together, you can have lyme disease. You need to get him tested!