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Old 10-14-2011, 07:36 PM   #1
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Angry 8 year old girl has lumps on left side of neck

Please help. I am very concerned about my daughter, who is almost 9 years old. A few years ago, I had found a cluster or 3 lumps underneath her skin on the left side of her neck. Her pediatrician stated that it was swollen lymph nodes and that they would disappear. On her next dr's visit almost a year later, the lumps were still there. They did not seem to change in size. Again, I was told it was swollen lymph nodes. I told her I was concerned that it was cancer or something other than swollen nodes. The doctor pushed on the lumps and showed me that they were moving and weren't attached to anything and stated cancer usually attaches itself to something. I wanted a second opinion, so she sent us to see the Chief of Pediatric Otolaryngology. On the first visit, he stated that there was no cause for concern and that they were just swollen nodes. On her follow up appointment 6 months later, the cluster still being there, we were told again, that they would disappear in time and not to be worried. Well, here we are almost 3 years later and yup, she still has them. Lately she has been complaining of them "hurting", she explained it as sharp pains, like a needle. They dont hurt all of the time, just once in a while. They do not seem to change size when she has a cold or flu or sore throat. Her only condition is that her thyroid is underactive, which she has been on levothyroxine for almost 2 years now and has it under control. I am not sure if I should take this further? I felt in seeing the chief dr that i could trust his judgement, but now I am once again confused and not sure where to go from here. Please help and let me know if any of your children have ever had something like this and what you had to do to make it better. Thank you very much.

 
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Old 02-08-2012, 04:48 AM   #2
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Re: 8 year old girl has lumps on left side of neck

Quote:
Originally Posted by ksmom41581 View Post
Please help. I am very concerned about my daughter, who is almost 9 years old. A few years ago, I had found a cluster or 3 lumps underneath her skin on the left side of her neck. Her pediatrician stated that it was swollen lymph nodes and that they would disappear. On her next dr's visit almost a year later, the lumps were still there. They did not seem to change in size. Again, I was told it was swollen lymph nodes. I told her I was concerned that it was cancer or something other than swollen nodes. The doctor pushed on the lumps and showed me that they were moving and weren't attached to anything and stated cancer usually attaches itself to something. I wanted a second opinion, so she sent us to see the Chief of Pediatric Otolaryngology. On the first visit, he stated that there was no cause for concern and that they were just swollen nodes. On her follow up appointment 6 months later, the cluster still being there, we were told again, that they would disappear in time and not to be worried. Well, here we are almost 3 years later and yup, she still has them. Lately she has been complaining of them "hurting", she explained it as sharp pains, like a needle. They dont hurt all of the time, just once in a while. They do not seem to change size when she has a cold or flu or sore throat. Her only condition is that her thyroid is underactive, which she has been on levothyroxine for almost 2 years now and has it under control. I am not sure if I should take this further? I felt in seeing the chief dr that i could trust his judgement, but now I am once again confused and not sure where to go from here. Please help and let me know if any of your children have ever had something like this and what you had to do to make it better. Thank you very much.
Hi well it seems you and I have the same situation and it is really sickening. Hoping for the best and wondering the worst. Its late here and I cannot get to bed and I feel really sick. My 8 year old turning 9 in March has about 4 lumps on the right side of her neck. No flu, no infection they have been there for over a year. I go to the Dr puts her through blood tests and xrays. They come back clear. But says I will refer you to the Childrens Hospital to see a specialist. This was in October 11, 2011 finally got to see him 7 Feb 2012 checks them out, expresses concern and says "why didnt you see me earlier" I said well there is a waiting list. Says he wants to remove one to do tests on it and she will need an operation. I feel even more sick and my mind always thinking the worse having read pages and pages on line about what it could be. He says, "be on call and we will call you for the operation". Well he calls today she is going in on Tuesday for her operation. I hate this waiting game, I hate that my mind is racing and I hate the fact that she is my one and only little girl having to go through this. I hope results come back normal, if not I do not know what I am going to do. It sucks we are both going throught this mental torture.

 
Old 02-09-2012, 12:07 AM   #3
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Re: 8 year old girl has lumps on left side of neck

Hi:
I'm sorry about your frustration, I know its scary for you. Its hard to know without looking at the exact spot to know what it could be...but certainly they should do an ultrasound of the neck if possible. Its also always a good idea to get bloodwork too as that possibly could rule out certain things.
If you went to see a specialist, he probably has seen a lot of this- certainly he could make a mistake, but he's probably taking into account her general health. If it was cancer, for example, over time she should be getting other symptoms and getting sicker.
My husband's family run to thick necks and huge lymph nodes. 3 people in their family, including my niece, had their tonsils and some nodes removed due to their being so large, and when they got sick would swell up huge. They also snored a lot at night. My niece was only 12 or 13 at the time when they did her surgery.
If it were a cyst, it shouldn't hurt.(Unless she is squeezing it- not a good idea) I have a benign cyst on the side of my neck that is pea-sized and it doesn't hurt.
I'm not sure if they already tried this, but I imagine an ENT specialist could peer down her throat with a scope of some sort. (Involves sedation)
Hope you find a solution and wish you the best.

 
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