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Old 03-27-2012, 09:33 AM   #1
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Join Date: Mar 2012
Location: Louisville, KY
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JinxKnits HB User
Exclamation anterior displacement of the anus with posterior shelf

My daughter (almost 9 months old now) was diagnosed with "slight anterior displacement of the anus with posterior shelf" when she was 3.5 months old. The GI who charted this NEVER TOLD US ABOUT IT AT ALL. We only found out because something awful happened that required us to obtain all of her medical records, and in doing so we obtained the GI's records and found this diagnosis on the very first page, from the very first visit she had with him.

It has been a nightmare trying to find information about this problem. It has been an even bigger nightmare trying to find someone who can/will actually HELP us with this and get my child better!

If ANYONE has ANY experience with this diagnosis, please share your experience/insight/advice with me! I have read surgery is the only real "cure" for this...can anyone confirm? If not, what are other options? Is there a particular doctor or hospital in the US that has more knowledge/experience/expertise in dealing with this? If so, who/where is it? My daughter has suffered WAY too long if this is fixable (which, from what I have read so far, it is). We are hitting entirely too many roadblocks in trying to get her the help she needs. I am getting frustrated, she is constantly in pain and unable to poop on her own, doctors are ignoring us, and even CPS was involved because our last pediatrician just sent us to the ER every time she got constipated, and the ER got tired of seeing her for the same thing over and over again! Yet no one would actually HELP her!

What can/do I do here????

 
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Old 04-24-2012, 12:07 PM   #2
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Join Date: Apr 2012
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Re: anterior displacement of the anus with posterior shelf

I know all to well what you are going through and will be going through. My child was also diagnosed with anterior anal displacement at about 18 months old. It to me seemed like a " I really don't know why your child stays constipated" type of diagnose. Nobody ever gave us any options to try and fix this problem other than laxitives. My daughter is now 10 years old....We are still fighting this battle of contipation along with severe reflux daily. This all started at about a 1month old. We just yesterday saw a new Peds GI, so hopefully they can give us some insight as to why she can't go to the bathroom without large amounts of laxitives and sometimes she still gets backed up with all the medication. I hope you have better luck than we have had so far. Our babies shouldn't have to hurt everyday!

 
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