Dealing with CF-question for Kim - Chronic Fatigue Message Board

optimist · 04-10-2002, 07:55 AM

Kim (LHowells) I have been all over these boards. I first thought I had an inner ear problem--all tests were negative. Went to neurologists--again, thank goodness all tests were negative. Then I thought perhaps it was my thyroid. I am on meds for thyroid. I am still not feeling well. I think I have CFIDS. My symptoms, personality profile point to the syndrome.
I am still trying to work full time and go on with my life. I am having great difficulty. Constant dizziness, confusion, of course fatigue. Do you feel better after awhile. By the way, I feel I have had CF for many years that went undiagnosed. Now the symptoms are unrelenting. What have you done to improve your health? I have read the books From Fit to Fantastic and the book
A Doctor's Guide to CF. I am presently on many supplements, anti-depressent, good nutrition. I don't smoke or drink. I exercise daily--with great difficulty. I am very concerned about my job--it has become harder and harder for me to keep up. I have requested information from my state
CFS society. What other steps have you taken? I would appreciate any suggestions.

korken · 04-20-2002, 08:00 PM

Hello,

I am the other Kim. Hope you don't mind my putting in my 2 cents.

Have you been to a CFS board certified specialist? We didn't get the complete Dx by other docs. We both have CFS and FMS. Our doc is a board certified FMS, CFS, Infectious disease specialist. Hope this helps.

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Take care ~Kim & Gary~

jung · 04-25-2002, 08:32 PM

Find a D.O. or MD who will call Immunosciences Lab of Beverly Hills, CA or Institute for Molecular Medicine in Huntington Beach, CA and order a blood kit to be tested for mycoplasma. Get it typed. In the meantime, try a natural antiviral - Olive leaf extract 2 3xday, mgn3 (boosts killer cell activity), and grape seed extract. Good to take wobenzyme on an empty stomach for inflamation. You can also get multi-antigen specific transfer factor from a lab in N. Carolina. Very effective. Hang in there. You can kick this. I have.

optimist · 04-26-2002, 07:47 AM

Thank you for your responses Jung and Kim.
A question for Jung--what is multi-antigen specific transfer factor--a supplement? I will also be interested in your response to Kim about the mycoplasma. Thank you both for your info.

jung · 04-30-2002, 04:52 PM

If you have chronic fatigue, your immune system has crashed and everything that has been lying dormant "reactivates" and your body cannot fight it off. With CFS the common other "loads" are cytomeglovirus, herpes HHV6, epstein barr, sometimes chalmydia pneumonia, and mycoplasma (found in 70% of CFS patients. Chisolm Labs has deisgned a "transfer factor" for CFS that "wakes up" your immune system to fight the load. If you have had a chronic infection for over 90 days, your immune system loses memory on what to fight because of die off. This wakes it up. You need to stay on it for one month after your symptoms go away. However, if you are positive for mycoplasma, you need antibiotics. Where are you? You need to see a doctor who knows about such things. Believe it or not, most do not. Do some research. That is how I have recovered. It is critical that you totally change your diet. Go to [url="http://mercola.com/diet"]http://mercola.com/diet[/url] and do it. If you want to recover, you must make changes. It is difficult, but you can do it. And you WILL recover!