Questions about Provigil!!! - Chronic Fatigue Message Board

Lingy · 07-14-2003, 08:51 PM

Hi! I have Epstein Barr virous, which is giving me a lot of fatigue! I saw the listings about Provigil! Can I get that online anywhere? Or do I have to go to a Doctor? The Dr. I was seeing thinks I am tired because I have a two year old and doesnt really help with any meds or ideas. I don't know any other Doctors to go to! I would like to just order some online if I could! Is there a good website that anyone knows? Thanks Laurie

Redford Phyl · 07-16-2003, 08:25 PM

Provigil is apparently for narcolepsy. There are no meds for Epstein-Barr, it just has to run it's course. Have you had your thyroid checked? That can also wipe you out, and most doctors don't check for it. I went undiagnosed for a long time. I had to develop a goiter before anyone would even listen. Finally found a GP who agreed that there was something else going on besides hypothyroid, and I tested positive for Epstein-Barr as well. Not fun. I have to crash for an hour or two every afternoon. If I had little ones, I'd be in real trouble.

Lingy · 07-16-2003, 08:40 PM

Thanks for your reply! I have been checked for numerous things. One Dr. said I have hyperthyroid and one said no. My General Dr. did prescribe Provigil over the phone! He didnt even know what it was., but it seems to really help fatigue!! I also have terrible hot flashes! (I am 31) And have fibromyalgia. Has anyone heard of hotflashes tied to any of this? What can I do for them? My cycle is perfectly normal! (sorry guys) Thanks! Laurie

peregrine · 07-17-2003, 03:05 AM

Quote:

Originally posted by Lingy:
I also have terrible hot flashes! (I am 31) And have fibromyalgia. Has anyone heard of hotflashes tied to any of this? What can I do for them? My cycle is perfectly normal! (sorry guys) Thanks! Laurie

One of the symptoms of CFIDS is hot flashes and/or night sweats. Black Cohosh (an herb) is often recommended. It works for me.

P

mistyjoy · 08-17-2003, 01:46 PM

hi there. i saw your post on provigil and it lured me in. i started taking it a few weeks ago. i have mercury poisoning and POTS(which includes chronic fatigue). i noticed improved brain function and energy, although i still fall asleep in the middle of the day. i began having breathing problems which isn't a known side-effect of the drug, have you noticed anything like that? for me, it could be mercury in my lungs, but i never had the problem til provigil. it's asthma-like. i just can't get enough air. sometimes accompanies a cough, burning in chest, and wheezing. just curious , but would like to know your side-effects if any. one more thing to add, for those of you that are having trouble getting a diagnosis, or have a diagnosis the doc. says you have to live with the rest of your life, make sure they do a heavy metal test on you. if i didn't find out about the mercury, i would have had a lifetime with pots. i saw the question about fibromyalgia also, and it can also be one of those diseases that gets misdiagnosed when it could be heavy metal poisoning.(copper, lead, arsenic, mercury....)

[This message has been edited by mistyjoy (edited 08-17-2003).]