It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Videos Join for Free User Blogs Board Index
Search
 
Forgot your username or password?


Chronic Fatigue Message Board
Post New Thread   Closed Thread
Share
 
 
LinkBack Thread Tools Search this Thread Display Modes
Old 06-04-2001, 09:27 PM   #1
Newbie
 
Join Date: Jun 2001
Posts: 2
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
Verla Panayotis HB User
Post post viral headache syndrome

Hello, I'm new at this. Just posted a message on the headache site. Sorry to repeat myself but I'm posting here because post viral headache syndrome is usually clumped together with cfs. My 11 year old son, Nick has been diagnosed with pvhs at Duke Hospital. He came down with a flu-like virus in Dec., 2000. It was accompanied by a severe headache (he describes it as stabbing pains behind both eyes) that has not stopped torturing him for even one minute (over 5 months now) since the onset of the virus. All neur. and other tests are normal. He's been on most migraine meds with no relief. Some even intensified his pain. Right now he's on neurontin, elavil, florinet, and zovirax. Still nothing is working. Nick has a great Ped Neur from Duke who is still working very closely with us on trying different things. I need any info or stories from anyone who is familiar with this syndrome. My once vibrant son has spent the past 5 months of his life flat on his back in a dark, quiet room in horrific pain. Please help!! THanks, Verla

 
Sponsors Lightbulb
   
Old 06-30-2001, 09:51 AM   #2
Member
 
Join Date: Feb 2001
Posts: 84
Hugs: 0
Hugged 1 Time in 1 Post
Thanks: 0
Thanked 2 Times in 2 Posts
starr HB User
Post

I'm sorry for your son, I hope he gets better soon. These viruses are unbelivable, I can't believe how long it takes for the body to recoup! I had pain in my eyeballs too, glands in my head swollen, its only been a few weeks, waiting for them to go down, hoping the DR. are right when they say it is a virus that will go away. I see your son is on alot of medicines, I tried topomax, similiar to neurontin, mostly used for epilepsy, migraines, nerve pain, now used also as a mood stabalizer. Had to go off it after 4 months, had no appetite, felt weak and not like myself, some days I would stay in my room worrying about my symptoms.

I just hope your son gets better, eating well and vitamins, I think do help, thats what i'm doing right now, a regimen of b12, echinacea and ginseng. I feel a bit better, but the glands are still up, my head feels like it had an infection. Who knows?? I really hope your son gets over this bout of "whatever", and gets strong and like his old self again!! Wendy

 
Old 01-22-2003, 09:21 AM   #3
Veteran
 
Join Date: Nov 2002
Posts: 427
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
Anonymity HB User
Post

I can totally relate to this. After a trip to Mexico in May of last year, my fiance came down with a viral infection and a constant headache. We tried everything to alieviate his headache which kept him from work and school. As we searched for an answer and went through a million tests, scans, mris, medicines, etc, his doctors approved increasing amounts of Vicodin (hydrocodone).

Finally, in November, we went to Mayo Clinic. The doctors told us that his headache was probably a result of the viral infection. Then, to our horror, they told us that the Vicodin was causing rebound headaches, and that's why he had seen no improvement in his pain. After a while, the Vicodin actually began mimicing the original headache, and this caused the pain to worse.

After an excrutiating detoxification period (which was necessary because of physical but not emotional addiction), his headaches have begun to improve. The headaches are by no means cured, but at least they're no longer caused by the same medicine taken to heal them! My fiance was on low doses of Vioxx for a while, and now he takes even lower doses of Naproxen Sodium, while we try to avoid another pain-reliver addiction.

You all might consider how long your loved ones have been on pain-relievers (even over-the-counter), and ask your doctors whether the rebound phenomenon could be intensifying the headaches. Don't be surprised if the doctors and specialists seem unaware or skeptical of rebound. After all, we had to wait seven months and go all the way to Mayo Clinic to find a doctor who would tell us the truth.

My fiance still suffers, but he is back in school and will be working soon. I'm starting to see the person he used to be again. I pray that each of your loved ones who are afflicted with these problems will be feeling better soon.

P.S. I would encourage you all to watch for signs of depression in your loved ones who are suffering with this condition. My fiance never admitted it, but the constant pain, tests, and doctor's visits along with the isolation and boredom really made him blue. He couldn't work or take any classes. He got so tired of our apartment; he couldn't focus enough to read, play his guitar, or surf the internet, and the visuals and sound of movies and television often worsened his headache. He couldn't drive and had nowhere to go during the day while I was at work. He couldn't go outside for long because the heat intensified his headache. He became bored and lonely. Please remember that your loved ones may be feeling the same way, and try your best to give them as much stimulation and company as they can handle without causing more pain. Have friends over for very short periods of time. Try to occasionally go out for a short, quiet dinner, or order in pizza to liven up your routine. Let them know how much you care, and tell them that the world will wait while they take it easy and recuperate. Good luck!

 
Old 01-24-2003, 11:50 PM   #4
Newbie
 
Join Date: Sep 2002
Posts: 9
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
sweet_jane HB User
Post

Wow and i thought my headaches were bad!! I have chronic fatigue syndrome and sometimes i get headaches for weeks...i feel really bad for you guys with the headaches because i can totally relate! i have been to loads of doctoras asking why my headaches just won't go, they all attribute them to the virus. The headaches are usually accompanied by a slight nauseas feeling and a spacy head...I find that the only way to get any relief is to sleep or lie down in a dark room. I really hope you guys feel better soon! i was in bed for about five months and i thought it would never get any better..but it did and although i still experience symptoms i am almost back to my old self, at the time it feels so hopeless and you honestly think it will never go..but it does, you just have to wait.

 
Old 01-30-2003, 09:17 AM   #5
Veteran
 
Join Date: Nov 2002
Posts: 427
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
Anonymity HB User
Question

How is everyone's headaches? My fiance has good days and bad, but he is slowly but surely improving. Please keep me posted as to how you and your children are doing! Good luck!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Post-viral syndrome? asc01 Chronic Fatigue 0 01-31-2008 12:28 PM
post viral syndrome comeandrelax Inner Ear Disorders 2 12-07-2007 04:15 PM
Is this Lyme's Disease, MS or? gg913 Bell's Palsy 7 08-09-2006 06:56 PM
severe non stop post viral headache worried12345 Headaches & Migraines 3 11-13-2005 10:53 PM
Don't know where to post, I hope someone can help me. joe28paws General Health 23 12-11-2004 06:53 PM
dizziness - meniere's / viral ear infection / vestibular neuritis - please help!!!! jonp Brain & Nervous System Disorders 19 05-14-2004 03:26 PM
Anybody ever heard of Post Viral Syndrome? Missy603 Fibromyalgia 5 01-15-2004 12:31 PM
Has anyone ever heard of Post Viral Syndrome? Missy603 Open to All Other Health Topics 4 12-16-2003 12:31 PM
Advice for Post Viral Syndrome, TMJ SueA Vitamins & Supplements 0 03-28-2003 02:52 AM




Bookmarks

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off











Message Boards
  • Open to All Other Health Topics
  • It's Life - Off Topic Discussions
  • Natural Disaster Sympathies and Support
  • Health News
  • HealthBoards Testimonials
  • Suggestions for New Boards
  • Registration/Membership/Site Problems
  • Health Issues
  • General Health
  • Abuse Support
  • Acid Reflux / GERD
  • Acne
  • Share Your Acne Story
  • Acne Tips
  • Acute Respiratory Distress Syndrome (ARDS)
  • ADD / ADHD
  • Addiction & Recovery
  • Addison's Disease
  • Aging Issues
  • Allergies
  • Alternative Medicine
  • Alzheimer's Disease & Dementia
  • Amputation / Prosthetic
  • Amyotrophic Lateral Sclerosis (ALS)
  • Anemia
  • Aneurysm
  • Anger Management
  • Angina
  • Anxiety
  • Share Your Anxiety Story
  • Anxiety Tips
  • Arthritis
  • Asperger's Syndrome
  • Asthma
  • Autism Spectrum
  • Autoimmune Disorders
  • Back Problems
  • Beauty & Cosmetics
  • Bell's Palsy
  • Bipolar Disorder
  • Birth Control
  • Blood and Blood Vessel
  • Bone Disorders
  • Bowel Disorders
  • Brain & Head Injury
  • Brain & Nervous System Disorders
  • Brain Tumors
  • Breastfeeding
  • Burns & Injuries
  • Cancer
  • Cancer: Bladder
  • Cancer: Bone
  • Cancer: Brain
  • Cancer: Breast
  • Cancer: Cervical & Ovarian
  • Cancer: Colon
  • Cancer: Esophageal
  • Cancer: Kidney
  • Cancer: Lung
  • Cancer: Oral
  • Cancer: Pancreatic & Liver
  • Cancer: Prostate
  • Cancer: Rectal & Anal
  • Cancer: Skin
  • Cancer: Stomach
  • Cancer: Testicular
  • Cancer: Throat
  • Cancer: Thyroid
  • Cancer: Uterine
  • Candida
  • Caregivers
  • Carpal Tunnel Syndrome
  • Celiac Disease
  • Cerebral Palsy
  • Chemotherapy
  • Children - Special Needs
  • Children's Health
  • Chronic Fatigue
  • Codependency
  • Colds & Flu
  • Swine Flu (H1N1)
  • Cosmetic / Plastic Surgery
  • Costochondritis
  • Crohn's Disease / Ulcerative Colitis
  • Cystic Fibrosis
  • Death & Dying
  • Degenerative Diseases
  • Dental Health
  • Depression
  • Share Your Depression Story
  • Depression Tips
  • Diabetes
  • Hypoglycemia
  • Diet & Nutrition
  • Digestive Disorders
  • Disabilities
  • Divorce & Separation
  • Dizziness / Vertigo
  • Down Syndrome
  • Drug Interactions
  • Dyslexia
  • Dysphagia
  • Ear, Nose & Throat
  • Eating Disorder Recovery
  • Endocrine Disorders
  • Endometriosis
  • Environmental Disorders
  • Epilepsy
  • Epstein Barr Virus (EBV)
  • Exercise & Fitness
  • Eye & Vision
  • Family & Friends of Cancer Patients
  • Family & Friends of the Mentally Ill
  • Family Planning / Adoption
  • Fibromyalgia
  • Foot Problems
  • Gallbladder
  • Genetic Disorders
  • Grief & Loss
  • Hair Loss / Alopecia
  • Hair Problems
  • Headaches & Migraines
  • Health Insurance Issues
  • Healthcare Professionals
  • Healthy Lifestyle
  • Hearing Disorders
  • Heart Disorders
  • Hepatitis
  • Hernia
  • Herpes
  • High & Low Blood Pressure
  • High Cholesterol
  • HIV Prevention
  • HIV/AIDS Living With
  • Hormone Problems
  • Hospice
  • Human Papillomavirus (HPV)
  • Hypochondria
  • Hysterectomy
  • Immune Disorders
  • Incontinence
  • Infant Care (up to 18 months old)
  • Infectious Diseases
  • Infertility
  • Share Your Infertility Story
  • Inner Ear Disorders
  • Interstitial Cystitis (IC)
  • Irritable Bowel Syndrome (IBS)
  • Kidney Disorders
  • Knee & Hip Problems
  • Lasik Eye Surgery
  • Learning Disorders
  • Leukemia
  • Liver & Pancreas Disorders
  • Lung & Respiratory Disorders / COPD
  • Lupus
  • Lyme Disease
  • Share Your Lyme Disease Story
  • Lymphedema
  • Lymphomas
  • Men's Health
  • Menopause
  • Mental Health
  • Mesothelioma
  • Military Health Issues
  • Miscarriage & Still Birth
  • Mononucleosis
  • Multiple Sclerosis
  • Muscular Dystrophy
  • Myositis
  • Nail Problems
  • Neurofibromatosis
  • Neurology
  • Neuromuscular Diseases
  • Neuropathy
  • Nutritional Disorders
  • Obesity
  • Obsessive Compulsive Disorder (OCD)
  • Occupational Health & Safety
  • Orthopedic
  • Osteoporosis
  • Pain Management
  • Chronic Pain
  • Share Your Pain Management Story
  • Panic Disorders
  • Paralysis
  • Parenting Issues
  • Parkinson's Disease
  • Personality Disorder
  • Phobias
  • Pituitary Disease
  • Polio
  • Polycystic Ovary Syndrome (PCOS)
  • Post-Traumatic Stress Disorder (PTSD)
  • Postpartum Depression (PPD)
  • Pregnancy
  • Share Your Pregnancy Story
  • Pregnancy Tips
  • 2010 Mommies
  • 2011 Mommies
  • Pregnancy-Teen
  • Prostatitis
  • Psoriasis
  • Rape / Sexual Abuse
  • Rare Disorders
  • Raynaud's Syndrome
  • Reflex Sympathetic Dystrophy
  • Relationship Health
  • Restless Leg Syndrome
  • Rosacea
  • Sarcoidosis
  • Schizophrenia
  • Scoliosis
  • Self-injury Recovery
  • Senior Health
  • Sexual Dysfunction Treatment
  • Sexual Health - General
  • Sexual Health - Men
  • Sexual Health - Teens
  • Sexual Health - Women
  • Sexually Transmitted Diseases
  • Shingles
  • Shoulder / Rotator Cuff Problems
  • Shyness
  • Sickle Cell Anemia
  • Sinus Problems
  • Sjögren's Syndrome
  • Skin Problems
  • Sleep Disorders
  • Smoking Cessation
  • Speech & Language Disorders
  • Spinal Cord Disorders
  • Stress
  • Stroke
  • Sudden Infant Death Syndrome (SIDS)
  • Teen Health
  • Thyroid Disorders
  • TMJ Disorder -TemporoMandibular Joint
  • Tourette Syndrome
  • Transplants
  • Trigeminal Neuralgia
  • Trying to Conceive (TTC)
  • Urology
  • Vaccination & Immunization
  • Vitamins & Supplements
  • Weight Loss
  • Weight Loss / Surgical
  • West Nile Virus
  • Women's Health



  • TOP THANKED CONTRIBUTORS

    Chronic Fatigue

    sleepykitty44 (3), wigs123 (3), CFIDS (3), jenj770 (3), mads12 (2), microwave (2), Brodie179 (2), amesltl (2), ukiahvalleymom (1), suek1000 (1)

    Site Wide Totals

    thanbey (581), janewhite1 (526), BlueSkies14 (511), SpineAZ (483), DGabriel10 (462), mscat40 (419), tetonteri66 (418), jennybyc (399), sammy64 (388), jgrangran (355)

    All times are GMT -7. The time now is 12:51 AM.



    Site owned and operated by HealthBoards.com™
    Copyright and Terms of Use © 1998-2012 HealthBoards.com™ All rights reserved.
    Do not copy or redistribute in any form!


    SEO by vBSEO ©2011, Crawlability, Inc.