Most people DO make a complete recovery from CFS?? - Chronic Fatigue Message Board

TikkiRo · 10-15-2003, 12:39 PM

During my 2 years with CFS I have heard about several people who had it badly but went on to make a complete recovery, within just a few years.

For most people it also goes up and down so for anyone recently diagnosed or going through hell with it, I want to spread some hope around. The stats really are good for complete recoveries, and most people enjoy life more after, although it can seem a hell of a long haul. I heard 2 and a half yrs is the average? Anyone else with good stories about people who;ve recovered ? or anyone know good book with recovery stories.

I try to live for the life I;m going to have after this wretched illness passes. Hope this post might encourage some people.

srobins · 10-20-2003, 10:22 PM

I am not sure if I agree with those stats. I have had CFIDS for 13 yrs. since I was 21, & I was also told that after 8 yrs. the illness runs its course. Well, needless to say, I have had several setbacks, this one being the worst. I hope there are some success stories out there, but I'm afraid I'm not one of them yet!

peregrine · 10-22-2003, 06:26 AM

I have had CFIDS for 10 years.

I believe the correct stats are as follows:

a few people do recover and a few people do get worse but most people, with the correct diagnosis of CFIDS, get neither better nor worse but, after the initial onset, which can last anywhere from a year to years, go through periods of remission and relapse. These relapses are referred to as "flares" - an exacerbation of symptoms, which then abate for awhile, but in my case (and most people I know who have it) never completely, i.e. 100 %, and then start up again after a few weeks or months.

It is good to be positive, but even more important not to be in denial about what is actually occurring.

Peregrine

[This message has been edited by peregrine (edited 10-22-2003).]

alyssalyn · 04-29-2004, 02:49 AM

If most people with CFIDS/CFS do recover, why aren't there more success stories floating around?
Do the people that get well want to get as far away about talking about it as possible?
I do not believe there is a magic pill or a ten year rule.
And that if the root causes are removed, then you could be well a lot sooner.
I have recovered as well as I have only because of aggressive research and natural treatment.
This is my first post to this forum, and I am hoping to share with people my wellness strategies as time goes on.

Love,

Alyssalyn

sammikins · 04-29-2004, 11:16 AM

in Uk its 40% of people recover to 98% or above, i dont know the % for those who get worse or those who stay the same. But it depends on what caused it and your personal cirumstances as well - eg how much help is available, and support and how much you are doing etc.