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Old 11-18-2005, 07:50 PM   #1
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Join Date: Nov 2005
Location: UK, Lancashire
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Nakisa HB User
For those yet to be diagnosed, what's a good idea to be tested for?

Hey everyone,

I've noticed a lot of people that come here are yet to be diagnosed and are unsure of whether or not they have CFS.
I'm not saying that they don't have it, but you need to rule out all the other options to be sure, right?

Through looking at previous posts, I've noticed a lot of people sugguesting to get tested for this, that and the other.
For people that are new to this (like me ) things get pretty confusing, especially with all the abbreviations.

Could anyone post a list of what they'd recommend to get tested for?


Take care!

-Hannah

 
Old 11-19-2005, 04:00 AM   #2
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Join Date: Jan 2005
Posts: 80
woozyguy HB User
Re: For those yet to be diagnosed, what's a good idea to be tested for?

Hi Hannah,

well when I first got ill my GP referred me to an infectious diseases specialist. I paid privately coz the waiting list on the NHS was going to be a few months. He did tests but I don't know what they were. And then he gave me the diagnosis of PVFS (post-viral fatigue syndrome), which is the same as CFS/ME. So I just hope that he did the correct tests. I think that doctors rule out things like the following first before coming to an PVFS/CFS conclusion: Anemia (Red blood cell count will tell them if you have this I think), Thyroid (TSH,T3,T4), Glandular Fever (EBV,CMV, HHV-6) or any other continuous infection which should be shown up on the antibody tests, any bacterial infection I think too like Lyme (although when I wrote to this specialist last year to ask him if he would have performed a Lyme test he wrote back to say that he probably wouldn't have done at the time!! which is 13 years ago) They used to think that Lyme was rare to catch and could only be caught by ticks on deer or in forest areas where they are abundant, but it seems that any animal could be harvesting the ticks or any biting insect could have Lyme (thats what I have heard anyway). I went to see Dr Wright in Bolton who sees CFS people and he put my blood under his microscope and showed me that he says according to his research, is the Lyme hiding in the white blood cells and he put me on antibiotics. So there is this theory- is CFS just a chronic Lyme infection? well is it? That's what I would like to know too. My GP said to ask him if everyone's blood would show up these Lymies hiding around the white blood cells!

Then there are some other tests to rule out I think like Lupus, MS, Hepatitis B, Aids and maybe some others that I cant remember too. If all these tests are ok and people have the symptoms of ME/CFS then they disagnose it that way I think.

Take care
Martin

 
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