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Old 12-29-2005, 12:00 PM   #1
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Natalie00 HB User
DHEA is it safe/work?

I have asked my doc about DHEA several times and he maintains that it is unproven and doesn't think it will help, so he will not recommend it/prescribe it..however, I am desperate to try anything! I can't find any doc to help me, and I've tried. Is is safe to try DHEA on my own? I know you can buy it online. Does it interact with any meds?

 
Old 12-29-2005, 07:39 PM   #2
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ukiahvalleymom HB User
Re: DHEA is it safe/work?

Quote:
Originally Posted by Natalie00
I have asked my doc about DHEA several times and he maintains that it is unproven and doesn't think it will help, so he will not recommend it/prescribe it..however, I am desperate to try anything! I can't find any doc to help me, and I've tried. Is is safe to try DHEA on my own? I know you can buy it online. Does it interact with any meds?
Natalie00,
What type of doctor are you seeing, is he a General Practitioner, or a MD? Based on a book I bought at the beginning of my dx, it was recommended to develop of team of doctors, therapists, etc...

If he is a regular doctor, they're training is with western meds, prescription meds. Finding a doctor who is considered somewhat alternative, trained in body wellness, like hormone & longevity, holistic, Osteopathy, or an Endocrinologist.

Have you sought out specialized doctors, yet. I know it may be hard to make that step, but it's well worth it. Do you have health insurance?

Natalie, it is wise to wait until you find a doctor who will work with you. All of my medicine is being monitered by my doctors, not one supplement or herbal have I started on my own.

Depending on your lab results, CMC, hormones levels, etc..., determines the need for different supplements. I am taking DHEA and pregnenolone, along with others based on my needs, and the dosage prescribed by my doctor.

Please be patient, keep looking, be open-minded and you will find the right doctor for you, uvm

 
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Old 12-30-2005, 11:37 AM   #3
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Re: DHEA is it safe/work?

Hi!

I am only seeing my primary care physician. I have "begged" him time and time again to send me to a specialist, but he doesn't know whee to send me. I am getting angry now. I do have insurance, but only for about six-eight more months (then I will have to buy my own). I can go onto my insurance's website and you can search for all kinds of different doctors (specialists) but I don't know what kind to look for! I looked up several infectious disease specialists but none of them treat CFS. I have no where to turn,really, and I am starting to accept that I will just feel horrible for the rest of my life, or possibly just wake up a year or five years from now and start to feel better.

 
Old 12-30-2005, 07:52 PM   #4
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Re: DHEA is it safe/work?

Quote:
Originally Posted by Natalie00
Hi!

I am only seeing my primary care physician. I have "begged" him time and time again to send me to a specialist, but he doesn't know whee to send me. I am getting angry now. I do have insurance, but only for about six-eight more months (then I will have to buy my own). I can go onto my insurance's website and you can search for all kinds of different doctors (specialists) but I don't know what kind to look for! I looked up several infectious disease specialists but none of them treat CFS. I have no where to turn,really, and I am starting to accept that I will just feel horrible for the rest of my life, or possibly just wake up a year or five years from now and start to feel better.
Natalie,
Do you have to get a referral, if so, look up and see if there is an endocrinologist or osteopath doctor in your area, the first one is covered by insurance, you'll have to see if the second one qualifies, call your primary doctor up and ask to be referred out to....! Or do you have a teaching hospital close by...get referred to there ASAP. So that you will be in the right hands for treatment, don't wait, you don't have to feel horrible the rest of your life. Please trust me, uvm

 
Old 12-31-2005, 11:00 AM   #5
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Re: DHEA is it safe/work?

I don't need a referral as long as they are listed on my insurance companies website. There are plenty of endos I can see. Why exactly would a person with CFS benefit from seeing an endocrinologist?? I did see one a few years ago before I got mono and then CFS and my labs were normal. However, is it true that CFS can destroy the thyroid? What would I say to the endo when he/she asks why I came to see them? Also, what exactly is an osteopath and why would a person with CFS benefit seeing one?

Thanks for your help.

Last edited by Natalie00; 12-31-2005 at 11:01 AM.

 
Old 12-31-2005, 04:09 PM   #6
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ukiahvalleymom HB User
Re: DHEA is it safe/work?

Quote:
Originally Posted by Natalie00
I don't need a referral as long as they are listed on my insurance companies website. There are plenty of endos I can see. Why exactly would a person with CFS benefit from seeing an endocrinologist?? I did see one a few years ago before I got mono and then CFS and my labs were normal. However, is it true that CFS can destroy the thyroid? What would I say to the endo when he/she asks why I came to see them? Also, what exactly is an osteopath and why would a person with CFS benefit seeing one?

Thanks for your help.
Natalie,
An Endocrinologist is specialized in the endocrine system; the group of glands and organs that make hormones. They're trained in how to treat illnesses that are complexed or involve many systems of the body like CSF.

Hormone dificiencies are a part of the underlying issues with CFS and CFIDS, getting treatment will eliminate many of the symptoms which helps make living with this illness a bit (understatement), a lot easier!

An Osteopath, is a holistic doctor, who treats the whole body, too. With a different path...alternative methods, I believe. Results are good with them, too, however, may not be covered by insurance because of the treatment protocol.

Personally, I see an Endocrinologist, and am very glad that I am, uvm

 
Old 01-01-2006, 12:42 PM   #7
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Natalie00 HB User
Re: DHEA is it safe/work?

Thanks for the reply!

Do you mind if I ask how your endo has helped you? Did they put you on any certain medication? Run tests? What did you say when they asked whey you were seeing them? (I guess I am wondering if I would get a strange look or something if I told the endo I was here because of CFS).

Thanks again

 
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