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Old 02-24-2006, 08:56 AM   #1
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ukiahvalleymom HB User
To Natalie00

Natalie,

A big hello!

When is you next appointment with the Fibro & Fatigue Center? I'm looking forward to hearing about your lab results and the treatment plan you'll be on.

just to let you know, thinking about you,
uvm

 
Old 02-24-2006, 04:01 PM   #2
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Natalie00 HB User
Re: To Natalie00

Hello!
Thanks for the post. I get my results back THIS TUESDAY!!! Needless to say, I am very excited. Finally, I will get real diagnosis'. I will let you know the results and the treatment plan.

How are you doing? How often do you still go to the F+F Center?? (You don't go to the one in Ohio, right?)

Take care
Natalie

 
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Old 02-28-2006, 07:15 PM   #3
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Natalie00 HB User
Re: To Natalie00

UVM-

Well...I can't even remember all the things my doc told me were "wrong" with me!! I wish I had written it all down. Here are the things I can remember:

Hypothyroidism: My levels are on the low end of the "normal" range but I am told that someone can be very ill with a thyroid disorder and still be within the "normal" range and this is why they go untreated. Do you have a thyroid condition? Were your ranges normal?

High Cholesterol (LDL): This is verrrryyyy odd. I am a 22 year old normal weight female who does NOT eat fast food and watches her diet. So, I was told that this must be hereditary. My dad does have high cholesterol but he is a slightly overweight 58 year old man, so that is to be expected. My mom is very thin and healthy and I do not know if she has high cholesterol or not. Luckily,I do have a lot of good ( HDL)cholesterol also to get rid of the bad stuff.

I am deficient in magnesium.

I am high in iron. This is a HUGE mystery because not long ago I was anemic and I have stopped taking iron, eat no red meat, ect. I am thinking it might be mistake!

I am lacking in a certain growth hormone.

I am lacking testosterone.

So... I am being given:

Thyroid medication
Testosterone gel
Gamma Grow
Inositol Hexaniacinate
Magnesium Potassium Aspartate
Pregnenolone

I was told to stop taking my birth control pills because they were causing some hormone problem. I don't know what. Do they mess up your hormones??

And all the other stuff I was taking before.
This is A LOT of pills to remember to take!!

Overwhelmed!

Last edited by Natalie00; 02-28-2006 at 07:47 PM.

 
Old 03-01-2006, 03:41 AM   #4
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peregrine HB User
Re: To Natalie00

Natalie,

Most of the deficiencies you mention here are common among those of us with CFS.

 
Old 03-01-2006, 10:00 AM   #5
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Natalie00 HB User
Re: To Natalie00

Peregrine-

Do you know if it is recommeneded for people with CFS get a meningitis shot before they go back into the public (I haven't been working or going to school, so I haven't really beeen 'in the public')? Hopefully I will be able to go back to school within a year and was wondering abut the meningitis vaccine which is mandatory to some students living on campus, although I will not be living on campus.

Random question...I know.


Are you get any help for you CFS??

Last edited by Natalie00; 03-01-2006 at 10:01 AM.

 
Old 03-01-2006, 11:10 AM   #6
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peregrine HB User
Re: To Natalie00

Natalie,

Sorry, I cannot speak to your question about Menningitis.

Yes, I am seeing a doc who specializes in CFIDS. I get weekly injections and also take immune booster pills and other things.

All the best!

 
Old 03-18-2006, 11:00 AM   #7
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ukiahvalleymom HB User
Re: To Natalie00

Quote:
Originally Posted by Natalie00
Hello!
Thanks for the post. I get my results back THIS TUESDAY!!! Needless to say, I am very excited. Finally, I will get real diagnosis'. I will let you know the results and the treatment plan.

How are you doing? How often do you still go to the F+F Center?? (You don't go to the one in Ohio, right?)

Take care
Natalie
It's me, i didn't drop off the face of the earth...just seems like it

I have been under a crunch, preparing the opening of our store...with working on our Business Plan and Marketing Plan, a week spent at the Corporate Office for training, that I have had no time to spend here. hope this means sad!!

I have been going the the F+F Center in Torrance, California, my appointments have been every 4-6 weeks usually. Sometimes a little longer in between.

I'm feeling so much better, back to living life more fully.

How are you feeling?

I did read your message on your test results and treatment...a thought, I ask for copies of the test results and keep them in a file at home, I also give my primary doctor a copy of them for my file with them.

take care,
uvm

 
Old 03-19-2006, 01:58 PM   #8
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Natalie00 HB User
Re: To Natalie00

Hey UVM-


Honestly, I am feeling worse then ever. I was told to stop taking my BC pills because my hormones were all out of wack, and I have felt so tired and sick ever since (2 weeks). I am on thyroid meds, testosterone, and all sorts of other supplements. I don't know what is causing what side effects. I am very discouraged! I am going back for another appt. this wednesday. Will be getting more blood results back (to see what sort of infection I have). Hopefully once they pinpoint the infection and treat it I will be feeling better. To top it all off my sinus' are worse then ever and I can't take decongestants anymore because of the thyroid meds. Can't have surgery now because I am so tired and ill I'd probably react terribly to anesthesia and the stress of surgery. Of course, I can't sleep at night because of the sinus' which is making things worse. I know I need to be patient but I am feeling guility telling my parents that I am feeling worse now because we have already spent over $2,500 in less than 2 months on the treatment.

Woe is me

Deep down, the optomist in me thinks it will all work out in the end.

 
Old 03-21-2006, 04:33 PM   #9
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Natalie00 HB User
Re: To Natalie00

UVM

Are you taking thyroid meds???


Or anyone else with CFS for that matter????

 
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