I just want to encourage all of you with CFS to get tested properly for Lymes Disease. I balked and poo pooed the idea for years (from posters on the Lyme board, for one). Finally, I relented and my tests came back positive for Lyme. As I understand it, Lyme is often the precursor to CFS. CFS, then, is the symptom of Lyme (in many cases).
If your doc doesn't really know about Lyme I would find one who does. The testing cannot be done at any old lab because invariably they will turn up negative. Most labs lack the means to test properly (Quest, for instance.) I had my testing done at IgeneX, which was highly recommended to me by many. I am now being treated for Lyme and CFS. There is no cure, as I understand it, but better understanding one's illness cannot help but steer in the direction of better protocols in dealing with it.
All the best