I'm new to this board & am hoping that I can get some help from others on here if possible.
I have gone through hell the past 2 or so years - 3 years ago, I had this virus like I have never had before. I was extremely dizzy, very weak & fatigued, had low blood pressure, my throat was swollen, had a hoarse voice and some sinus congestion. I barely had any energy to speak or stand up for a couple of weeks. After this, I never felt the same again.
Ever since then, I have been experiencing a type of fatigue that I can not describe. It is so debilitating it is unbearable. I get 'bouts' of extreme symptoms where I experience the worst fatigue, dizziness, a swollen throat, low grade fever, followed by nasal symptoms and a headache. I can't even sit at the dinner table because I need to be lying down the whole time. In amongst these bouts, I have been experiencing other new symptoms which I never had before this virus. They include sinus & allergy problems, feeling cloudy headed, heat intolerance, swollen hands and feet, unexplained weight gain, low blood sugar, recurrent throat infections, debilitating PMS, sore tongue, indigestion/nausea & anxiety. The fatigue occurs at different levels throughout the whole time. I can't tolerate things that I used to and I can't get into an exercise routine because exercising doesn't make me feel well.
One doctor didn't even do any tests & said my fatigue was because I used to be shy as a child so I've got depression now & I needed a strong bout of antidepressants (figure that one out!).
Another doctor said it was because of my anxiety & also wanted to put me on an antidepressant. I only went as far as going on St Johns wort for 12 months, but that made me depressed & when i stopped it I felt much better. My blood tests have shown only that I have had glandular fever & my blood sugar is low, but TSH, B12, folate, blood count etc are fine. But this problem has gone on over 2 years & my life is at a standstill. A lot of people have commented that I may have CFS, but no doctor seems to be able or willing to look into it.
For anyone that has CFS - does this sound remotely like it? I'm so frustrated that I can't get any answers from anyone & figured that the only people who may be able to help me are those who have actually gone through it, so any opinions would be GREATLY appreciated.