Hello Trish, I am sorry to hear the problems you have been experiencing. I did see that you mentioned you wanted to hear from people who are actually diagnoised with CFS, unfortunatly I am in a similar situation as that of yourself, I am in the process of being diagnosed. I'm sure you can relate to the annoying feeling of not knowing!
You mentioned about CFS and bloodwork. There is no specific test that can tell for sure that you have CFS. Basically the doctors take a look at your health situation and have to look into many areas which they think could also be the cause for the way you are feeling. For example tests are carried out for thyroid problems, kidney function, liver function etc.
In my particular situation the Epstein-Barr virus (Glandular Fever) was found in my blood, it is thought that in some cases a viral infection such as that is what can lead to CFS.
Once the routine blood tests are carried out Doctors may then want to look into other areas of the body and carry out scans, x-rays etc.
CFS is an illness that is diagnosed after a elimination process. Only when all other possibilitys are ruled out can a diagnosis be made.
I am from England so I am not familiar with the American health service. I attend regular consultations with my GP at the moment as I am going through the final steps of the elimination process. Once everything else is all clear I shall then be transferred over to a specialist consultant who deals with people who suffer from CFS.
I can sympathies with your situation. I hope this reply has been of some help! Keep in touch, Good luck with your findings!