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Old 05-01-2007, 09:46 AM   #1
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violaroses HB User
anybody with CFS which triggers seizures?

i am finally on disability because I couldnt work with CFS. I got spinal menigities severly 5 years ago, I was on my back for a good year, and then it took me a couple of years to remember what happened to me. but a year after I had menigities I got diagnosed with CFS.
i thought the doctor was speaking another language when he said CFS. I just wanted my seizures to go away. the poor doctor, trying to get thru to me. he explained I have to get in control of my CFS. so I learned all about energy envelopes. and being responsbile with my body, i couldnt do everything i wanted to do- pout ; ) - or i would go into seizures.

I still have CFS but with time, the ongoing fog, and horrible fatigue has eased, and i have to stay away from places that can be an overstimulate.
and I am finally working on getting my drivers liscense back!!!!

 
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Old 05-02-2007, 02:20 PM   #2
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sarah92202 HB User
Re: anybody with CFS which triggers seizures?

[QUOTE=violaroses;2956049]i am finally on disability because I couldnt work with CFS. I got spinal menigities severly 5 years ago, I was on my back for a good year, and then it took me a couple of years to remember what happened to me. but a year after I had menigities I got diagnosed with CFS.

Did you have bacterial menengitis or viral? Sarah

Last edited by sarah92202; 05-02-2007 at 02:20 PM.

 
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Old 05-05-2007, 09:35 AM   #3
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violaroses HB User
Re: anybody with CFS which triggers seizures?

I had viral, I was unconcious by the time they got me to the hospital, thats why I couldnt recover, no meds could take it away, but time. i have much gratitude it is behind me.

 
Old 05-14-2007, 07:31 PM   #4
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Trish17 HB User
Re: anybody with CFS which triggers seizures?

Viola,

If you are still checking this message board, I have a lot in common with you. I had spinal meningitis as an infant. I started having seizures about 25 years ago. They were always just before my monthly periods(PMS), and I stopped having seizures after having an early menopause. I have had chronic fatigue for about 20 years. Since my seizures stopped, I have the "auras" when I get extremely tired. I finally got my driver's license back this year. Now I am trying to save for a car.

Good luck on getting your license back. What medication do you take for seizures?

Trish

 
Old 05-15-2007, 10:46 PM   #5
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violaroses HB User
Re: anybody with CFS which triggers seizures?

wow, i dont want an early menopause, but to get the seizures to stop completly would be wonderful, yes my period can be a trigger to bring on a seizure. i take depakote. congrats for you!!!!!!- it must feel good to get your life back on track after being ill all of your life (()))

 
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