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Old 05-06-2007, 08:32 AM   #1
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Unhappy No diagnosis! Help

I have had what seem like CFS symptoms for the last four years. Once a fortnight(Approx) suffering with swollen glands low grade temperature and flu symtoms. Most doctors have told me I keep catching different virus' because I am a teacher??? Recently, I have been referred to a specialist who has tested me for practically everything and all blood tests have been normal except for Epstein Barr. I don't know when I had this though.

If I have a late night or do too much I am guranteed to have these symptoms for approx two days and then they go. I do have days of feeling well but I rarely have much energy and tire very easily. I often get these symptoms after going to the gym. However, I don't have the type of tiredness which means I can't leave my bed. It is more the flu symtoms which are debilitating. I want to know what is wrong with me but have not been diagnosed. I am an outgoing sociable young woman but this is ruining my life.

 
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Old 05-06-2007, 03:41 PM   #2
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Re: No diagnosis! Help

I'm in the same shoes. It can be firbomyalgia, or chronic fatigue, or a really low thyroid. It's is so hard to get a diagnosis for CF and FM. The fatigue is the worst, and is extreme with a fever, which usually lasts maybe 24 hours. Did you look things up on the internet? there are so many symptoms, and I'm told that it's best to see a dr. when you are really in the middle of deep fatigue. Also, a rheumatologist can test and maybe diagnose. But again, it needs to be when you are really low. It takes months to get to a rheumatologist here. It is hard to accept, but the gym isn't good for you, especially when you are feeling the fatigue. I was told to be consistent with mild exercise, but totally rest when you feel fatigued. It has been a problem with me for about 20 years. The classroom is hard to handle when the weakness, or fatigue, sets in. I used to teach 3rd grade. Good luck to you. I hope you can find a good dr.

Trish

 
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Old 05-07-2007, 05:13 AM   #3
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Re: No diagnosis! Help

There are some things to consider which help with the symptoms:

Many with CFS are low in glutathione. You might consider a supplement. I take Renewpro

Ditto with Magnesium. I take high doses Magnesium glycinate chelated

Exercise intolerance is high on the list of symptoms so be very careful to not overdo as that can put you into a flare within 24 hours. Alcohol is also not advised.

Just a few suggestions.

All the best

 
Old 05-07-2007, 07:46 PM   #4
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Re: No diagnosis! Help

I seem to straddle the line of fibromyalgia and CFS, I have chronic pain and the typical symptoms of Fibro but lately I seem to be catching everything especially strept throat, over 2 weeks later still have swollen glands and low grade fever. What sort of temps do you run? I actually take magnesium supplements. For me I can push but I always end up exhausted or sick and its ruining my marriage.

 
Old 05-08-2007, 04:28 AM   #5
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Re: No diagnosis! Help

Quote:
Originally Posted by dazedandconfused10 View Post
I seem to straddle the line of fibromyalgia and CFS, I have chronic pain and the typical symptoms of Fibro but lately I seem to be catching everything especially strept throat, over 2 weeks later still have swollen glands and low grade fever. What sort of temps do you run? I actually take magnesium supplements. For me I can push but I always end up exhausted or sick and its ruining my marriage.
Fibro and CFS are often one in the same ... illness. It is the "pushing" that is the problem and will leave you, as you said "exhausted and sick".

 
Old 05-08-2007, 07:28 AM   #6
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Re: No diagnosis! Help

Once again it is worth checking out just in case. Check with an ABSM certified sleep MD. There may ba a sleep disorder (80 known more suspected) That is causing poor sleep. If you are sleep deprived as a result it leaves you more susceptable to illness, pains, aches, chronically fatigue, anxious, depressed.. the list goes on. There are five stages of sleep. The first two anyone can get and are light sleep stages, the third offers dreams, the fourth immune system repair and metabolism enforcement, the fifth joint/muscle/bone repair and maintainance. IF you never reach the 3rd stage and beyond you will wear down quickly... My sleep apnea was amplified by my pregnancy and manifested to severe proportions, and you don't have to snore to have sleep apnea. Do a little research into sleep disorders 60% of adults have at least mild one, 30% have severe sleep disorders.

Sincerely,
MG
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Old 05-09-2007, 01:56 PM   #7
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Re: No diagnosis! Help

My fever always hits 100.4. I started running fevers occassionally 2 years ago, and it has hit about 4 times this year. I really hope you can talk to someone who can help. The fatigue can be aggravated by stress. If your husband isn't too tolerant or understanding about the condition it will certainly add stress. Teaching is a super-stressful job, as you probably know. Summer is almost here, and I hope you can get some rest.

Trish

 
Old 05-09-2007, 10:12 PM   #8
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Re: No diagnosis! Help

A fever of 100.4 is text book sinus infection symptom.. if you have headaches and sinus pressure as well you are most likely looking at a sinus infection.

Sincerely,
MG
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Old 05-30-2007, 05:37 PM   #9
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Re: No diagnosis! Help

Quote:
Originally Posted by ballady3 View Post
There are some things to consider which help with the symptoms:

Many with CFS are low in glutathione. You might consider a supplement. I take Renewpro

Ditto with Magnesium. I take high doses Magnesium glycinate chelated

Exercise intolerance is high on the list of symptoms so be very careful to not overdo as that can put you into a flare within 24 hours. Alcohol is also not advised.

Just a few suggestions.

All the best
How do you find out if you are low in glutathione?

 
Old 05-31-2007, 04:40 AM   #10
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Re: No diagnosis! Help

Quote:
Originally Posted by lightnerbride View Post
How do you find out if you are low in glutathione?
There may be tests, I don't know. I take it because it helps to make me feel better (it is also in my weekly injection) and also because it is one of the main things recommended for CFS - by other CFSers as well as CFS docs.

 
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