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Old 05-24-2007, 09:05 AM   #1
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alan 1234 HB User
Unhappy do i have cfs

hi everyone i normally post a little bit in the anxiety message board until i started reading some of the posts under cfs, i can identify with alot of the symptoms im constantly tired all day every day and feel very light headed muscle pain/weakness sometimes headaches, just a general ill feeling. i have spent 4 days in hospital getting all tests done, mri and ct of head all blood tests done ecg holter monitir lung function test and doctors have said there is nothing wrong with me, i just want to feel normal again im like this about 1 year and its such a struggle everyday. is there any one who feels the same or could point me in the right direction to get some help. thanks.

 
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Old 05-24-2007, 01:14 PM   #2
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diddy_di HB User
Re: do i have cfs

Quote:
Originally Posted by alan 1234 View Post
hi everyone i normally post a little bit in the anxiety message board until i started reading some of the posts under cfs, i can identify with alot of the symptoms im constantly tired all day every day and feel very light headed muscle pain/weakness sometimes headaches, just a general ill feeling. i have spent 4 days in hospital getting all tests done, mri and ct of head all blood tests done ecg holter monitir lung function test and doctors have said there is nothing wrong with me, i just want to feel normal again im like this about 1 year and its such a struggle everyday. is there any one who feels the same or could point me in the right direction to get some help. thanks.
Hi,Alan sorry to hear of your illness.There is obviously something wrong and I myself have,and continue to suffer,from episodes of anxiety.I now have this chronic fatigue illness and it feels completely different.After I had experienced a panic attack I would feel washed out and sometimes have to go to bed and sleep,then I would be refreshed.With cfs the overwhelming fatigue kicks in 24/48 hours later when you have been fairly active.Having an early night or resting does not refresh you at all.you may feel relatively well until you start to "do" something and then your stamina evaporates.does this sound like you?

 
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Old 05-24-2007, 01:15 PM   #3
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FEELBAD62 HB User
Re: do i have cfs

Was having the same symptoms as you. Have you gotten your testosterone checked? Could be very low. Mine was. Have started weekly injections and feeling better with the fatigue and dizziness. How old are you?

 
Old 05-25-2007, 05:00 AM   #4
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music12 HB User
Re: do i have cfs

Alan,

The way to determine if you have CFS is to rule out every other possibility. You would need a doc who is savvy about CFS to do the tests; otherwise you could likely be wasting your time. Also, there are docs who specialize in CFS/Fibro. You would have to do some research to see there are any in your area.

All the best!

 
Old 05-25-2007, 09:20 AM   #5
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alan 1234 HB User
Re: do i have cfs

hey thanks for the replys, what other tests are there to get done to rule out physical illness the specialist i was with says its anxiety related but the symptoms i have are so physical and the tiredness is debilitating which makes me think its possibly cfs, im only 22 im at a loss as to why i feel so crap.

 
Old 05-26-2007, 08:34 AM   #6
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music12 HB User
Unhappy Re: do i have cfs

Quote:
Originally Posted by alan 1234 View Post
hey thanks for the replys, what other tests are there to get done to rule out physical illness the specialist i was with says its anxiety related but the symptoms i have are so physical and the tiredness is debilitating which makes me think its possibly cfs, im only 22 im at a loss as to why i feel so crap.
Alan, it depends on your symptoms. Before getting an accurate diagnosis of Lyme Disease, which many now think underlies most cases of CFS, I saw 4 Rheumatologists, 2 Endocrinologists, an Infectious Disease doc, and numerous internists. I now see a doc who specializes in CFIDS/Fibro/Lyme. This person, finally, performed the proper blood tests, which should include tests for Herpes, HIV, Epstein Barr, Mycoplasma, Chlamydia P., Candida, and many more, including the usual WBC/ RBC panel, etc. Find a good doc. That is paramount and, I might add, not so easy to do .

Best!

 
Old 05-28-2007, 09:47 PM   #7
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lightnerbride HB User
Re: do i have cfs

Alan- What state do you live in? Someone might be able to direct you in the right direction for a proper diagnosis. I live in WA state and their is a CFS Clinic at Harborview in WA state and a doctor in Oak Harbor, who specialize in autoimmune diseases such as CFS aka ME, Fribromyalgia, lupus, etc. I'm sure other states have the same sort of clinics, you just have to know who to ask to find out where they are!
My CFS and Fibromyalgia all started with a flu, my blood work comes back normal, it's not uncommon for CFS to be idopathic. Have you read any books about CFS? The right one might help you see if you have the signs/symptoms of CFS and help you as you go forward.
Best of Luck to you!

Last edited by lightnerbride; 05-28-2007 at 09:49 PM. Reason: spelling

 
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