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Old 05-29-2007, 10:10 AM   #1
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tawnyjade HB User
What kind of doctor do you see for ME/CFS?

Just wondering.
I have been referred to a Rheumatologist, (I have had one appointment), but am hearing that they tend to treat more for the Fibromyalgia, and not so much the ME/CFS.

 
Old 05-29-2007, 01:34 PM   #2
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diddy_di HB User
Re: What kind of doctor do you see for ME/CFS?

Yeah me two.My rheumatologist has given me a diagnosis of fybromyalgia 'cos for some strange reason he feels happier with that than saying I have cfs.I have NOT got fibromyalgia,I don't have any pain.basically I just show my face at his clinic every few month to prove I'm still alive and kicking.Hope you do better.

 
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Old 05-30-2007, 03:58 PM   #3
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Re: What kind of doctor do you see for ME/CFS?

I go to a specialty clinic just for CFS, it's about an hour away from my home and they only have me come in 3-4 times a year otherwise I see my PCP. I do also have FM but not a lot of Rheumatologists in my area treat it so I don't have one.
Good Luck

 
Old 06-30-2007, 07:41 AM   #4
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Re: What kind of doctor do you see for ME/CFS?

Quote:
Originally Posted by lightnerbride View Post
I go to a specialty clinic just for CFS, it's about an hour away from my home and they only have me come in 3-4 times a year otherwise I see my PCP. I do also have FM but not a lot of Rheumatologists in my area treat it so I don't have one.
Good Luck

Hi lightnerbride

I see you live in WA state.

We will be moving there in a few months - Seattle. Can you tell me what specialty clinic you go to for CFS?

Thanks much!

Last edited by NotSureWhat; 06-30-2007 at 07:45 AM.

 
Old 07-04-2007, 09:19 AM   #5
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Re: What kind of doctor do you see for ME/CFS?

I see the Rheumy for the second time tomorrow morning.
Anything I should be sure to enquire about?
Does anything help anyone?

 
Old 07-05-2007, 11:04 AM   #6
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sleepyme HB User
Re: What kind of doctor do you see for ME/CFS?

So if you do not have a specialty doctor in the area...then what type of a doctor should you start with??

 
Old 08-30-2007, 06:22 PM   #7
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Re: What kind of doctor do you see for ME/CFS?

I've personally been to two Rheumatologists (both diagnosed Fibromyalgia) and two Neurologists (both diagnosed CFS). I do have pain as a symptom, so I could have either, or both, or neither. I think that's one of the lamest things about both of these illnesses - since it's a diagnosis of exclusion, I never really feel like I've been diagnosed. My neurologist is keeping an eye on some of my odd symptoms that make him think early MS. So if it turned out I have MS... did I not have CFS? Or Fibro? Which ones? I feel very much in limbo.

But anyway...

Maybe you should try a neurologist, my new one's just great.

 
Old 09-02-2007, 03:19 PM   #8
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tawnyjade HB User
Re: What kind of doctor do you see for ME/CFS?

Yes, I think that's a good idea! My GP had mentioned a long time ago about seeing a neurologist. I think I'll persue that avenue.
Thank you!

 
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