So I'm sitting here at my desk and I'm just
heh (I love that smiley)
My medical history:
2000 diagnosed with sarcoma in leg. took chemo/rads/operation
2001 finish with treatment and was doing awesome!
2003 developed fatigue..
I thought my cancer came back.. but after test after test.. ebv was the only thing I have. I used to jog 3 miles a day, lift weights.. everything.. then suddenly I was just stopped. My hair even fell out in clumps (now have to keep it short)
symptoms that I have from ebv: (other than the ebv fatigue)
heartburn.. horrible hellacious heartburn
lost hair (baldness is not in my family)
anxiety (lights, driving sets this off)
I've just finished seeing a new doc, and took another physical. Again.. nothing else is wrong with me. It's hard to tell people about this disease because I do look healthy.. and in fact some days are good and I can do physical work. Now after several years I can workout or do physical things but I will need a nap afterwards. This weekend I hauled 10 40lb bags of dirt in the backyard, last night I mowed and washed the car without a break.. etc.
Currently I am taking nexium for heartburn and lexapro 10mg. Lexapro REALLY helps me with ebv especially the anxiety. Now I am no longer shaky. I will take vitamins every so often. Today I took a co q10 50mg and got VERY tired suddenly. (anyone else notice this?) I generally eat very well.. fish for dinner at least 3 times a night and all my veggies.
It's hard to explain to people the fatigue you feel with ebv. It's not a 'i've been working out' tired. Its just, you have no energy to move a muscle. Like you have no blood.
I've been married since 2000. My poor wife has had to put up with cancer and ebv. She developed ebv at one point when I was doing badly, but she got over it and it wasn't chronic. It's very hard though because I HAVE to get more sleep than her.
My father, uncle, aunt, grandfather all are longterm ebv sufferers. Even after 20+ years they have their ups and downs. Dad got ebv almost at exactly the SAME time in his life that I did. One upside from this is that they all relate and sympathize.
Currently I am 27 and I feel 45. I want my life back!