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Old 06-12-2007, 09:01 AM   #1
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4yr old's symptoms. Please advise if possible.

Hello, apologies from the start if this is a bit of a long post. I am at my wits end and would be very very grateful for any pointers or advice anyone can offer.

My son, was 4 in May, has had two "episodes" of the following symptoms-both times they have started with frequent, excessive urination: chronic fatigue, swollen lymph node in neck, unexplained high fevers, blood tests show everything normal other than an "elevanted LDH".
This seems to have started after he had chickenpox last April (though I can't really be too sure of that) and it then lasted until the September, where we saw an improvement for a few weeks. He then caught a cold, or similar, and only started to improve a few weeks ago. It now looks like it's starting up all over again.

I cannot begin to tell you how awful the GP and consultant have been in their response. We had 7wks of weekly urine tests; all showing nothing. He has had 5 blood tests in the last few months-nothing other than the elevanted LDH shows.

Does anyone recognise these symptoms, or have any suggestions where we can go to try and get some help.

Thank you

 
Old 06-12-2007, 11:53 AM   #2
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Re: 4yr old's symptoms. Please advise if possible.

Hello,

I goo gled some of the symptoms in the search engine to see what would come up. First was hidden food or chemical allegries and then Lyme Disease.
I know they have ran plenty of bloodwork but testing for Lyme at some labs are hit or miss. Just because it is negative doesn't mean your son doesn't have Lyme. There is a special place to send the blood work off that know how to test it. I know your son is only 4 but it is possible to be bitten by a deer tick and not know it. You could go to the Lyme board to find out about the lab. I know there is some type of infection or inflammation going on.

I know what it is like to be treating badly by doctors. Since 1991, I had to hound my doctors to give me a ME/CFS dx 1994. Now, as of 12/06 I have MS also. I am so sorry that you have to endure anything like that and watch your child go through this without any answers. I reared two sons and I hated it when they got sick.

I encourage you not to give up. Keep taking him to doctors or specialists until you get a firm diagnosis. I would also keep a journal with dates and durations of symptoms and any new symptoms of your son that could be helpful to the doctors in his diagnosis process.

I wish I could have been of more help. Maybe the others here might
recognize something else. I did look up ME/CFS it did state that under the
age of 10 it was most unlikely for the child to have it.

I will keep you and your son in my prayers.

God bless you,

Bunni

 
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Old 06-12-2007, 07:58 PM   #3
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Re: 4yr old's symptoms. Please advise if possible.

I'm really sorry you and your child are going through this awful time! I can completely sympathise as I went through a similar thing with my son - although different symptoms. Our consultant was awful and thought it was all in his head, even though he was as white as a ghost etc.

Is there any way you can change your GP and consultant? I know how hard it is to fight when you're so run down from trying to look after your baby, but they're obviously not listening and you and your child have a right to be taken seriously!! I'm sorry I have no answers- but try to get some support and fight your corner, You have the right to a second, third, fourth...opinion until you get some answers!!!

Good Luck, May God Bless you and give you the strength you need! xxx

 
Old 06-13-2007, 07:49 AM   #4
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Re: 4yr old's symptoms. Please advise if possible.

I've read Lyme is on the rise in the U.K. and so is Babesia (maleria) If you post go to the Lyme board thing there are a couple of people in the U.K gong to a Dr. Owens...in Wales...I think he is...ON the top of the board are doctors he is posted in there....

Has your son been tested for Epstein Barr Virus or Cytomeglovirus?? If not if would be a good idea to be. These are what causes mono...and people that have it reacure over and over usually are told they have CFS.

Many things can cause him to feel this way...If your doctor is of no help...find someone else that is more open minded...

Keep us posted on how the little guy is doing...

Good LUCK!


 
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