I need someone to explain some things to me please.
I've just joined today after being told by my doctor that I am possibly suffering with something called chronic fatigue syndrome and reading some of the posts as I think my doc might be right.
I have been going to my doctors on and off for the past few months complaining that I have been feeling generally unwell. I seem to be suffering with flu like symptoms constantly. I have aching muscles all the time and feel constantly exhausted to the point where getting out of bed in the morning is almost impossible. I get pins and needles a lot in my legs and strange tingling sensations up and down my arms. I suffer with headaches a lot which are like the sort of headaches you get when you have had a really stressful day. I get black dots in front of my eyes and dizzy when I stand up and I get bouts of light headedness quite often.
I have just finshed my second year at uni and that was almost an impossible task as I just felt constantly like giving it up because I was so tired all the time.
The tiredness I feel is not a normal tiredness it is really severe and almost constant. I am really worried that I won't be able to go back to uni next year if this carries on just due to the fatigue.
I also have a daughter which this really affects as I find it really difficult getting up and getting her to school. I have to catch taxi's constantly just to get her there and wherever I go as walking makes me really tired. I can barely take her to the park and play with her and just do general things that a mother is supposed to do with her child. This is starting to make me feel really disgusted with myself I just feel like a terrible mother and that she is missing out on so much because of me.
I have had numerous bloodtests and examinations which all come back with negative results so I can't understand why I feel so tired all the time.
The worst thing is that for the past month I have been taking speed just to be able to get up in the morning and take my daughter to school and to be able to pick her up and make her dinner etc. I know that this is really disgraceful but I just didn't know what else to do as I just feel so tired all the time. I know I can't carry on like this for much longer and I just wanted to know as much as possible about chronic fatigue syndrome, especially if anyone has any of the same symptoms and if there is a cure.
I have spent two years almost feeling like this and have only just started over the six months to really seek help from the doctor as it is getting worse at an alarming rate. I almost feel as though the whole thing is in my head and that I just need to snap out of it somehow. My family are constantly accusing me of being lazy as EVERYTHING is such a chore to me and it feels as though I spend most of my life in bed.
Please give me any suggestions on things that I can do to sort this mess out and if there are any specific questions things I need to know before I go for my doctors appointment next week. Is there anything I need to let him know etc and if there is a test that can be done to find out if I have this as he doesn't seem to know much about it either.
Thank you for reading this incredibly long post and please reply! All suggestions wellcome I am truly at my wits end!!!!
Re: I need someone to explain some things to me please.
So sorry to hear you are not well. You do sound like like you may be suffering from ME/CFS. Keep on researching and make sure your doctor tests for everything. AIDS, Lyme, MS and anything else you and he can rule out. As aweful as it sounds, having something else serious may be a blessing. At least then it can be treated. With ME/CFS, they really don't have a cure and they just try to treat the symptoms. At bedtime, I take Nortriptilyn for help sleeping and pain, Singulair for chemical sensitvities, Gabapentin for nerve pain. For me, these drugs help a lot, but I still cannot function anywhere near how I did a couple of years ago. I know if I try to do a normal amount of work or cleaning, I will pay for it for several days.
Take your vitamins!!!!! If I miss taking my vitamins, I can really feel it. That's how I know they really are helping me. I take a good multi, B-12, B-complex, calcium with D and magnesium (a couple of hours before bed), and fish oil.
Hang in there, and lose the speed. It will only make things worse. Does it even help temorarily?
Take care my dear, and be vigilant with your health and your diagnosis.
Re: I need someone to explain some things to me please.
Thank you for your reply. If i'm honest with myself it isn't helping my health at all. I feel markedly worse for it quite often but it does give me a sort of push to take my daughter to school etc if you know what I mean. I do however kind of pay for it as I spend the whole day in bed and can barely make it back to pick her back up from school and carry on with looking after her, it can be even worse on some days and this can last for a few days.
I am to be frank extremely frightened. I don't know what to expect as everyone is so different and my main concern as I am a single parent I need to be physically able to take care of my child.
To be honest I am hoping for anything but this to be diagnosed as I really want to be able to have someone tell me that there is going to be a definate improvement in the future and some sort of light at the end of the tunnel. Yet I probably don't know the half of it yet, i'm sure there must be people who are more affected than myself.
With chronic fatigue it seems to be kind of bleak as it's so varied right from the causes down to the effects, treatment and most research I have looked at seems to dispute whether there is even any sort of long term recovery at all.
Thanks again for your post, I'm sure the Doc will be able to give me a bit more info soon enough and possibly answer some of my many questions.