Any of you CFS suffers been diagnosed with postural orthostatic tachycardia syndrome?
I was diagnosed with m.e at the age of 15 despite my main symptom being heart palpitations and racing heart rate, referred to numerous cardiologist who all just put it down to m.e.
Last year (i'm now 22) it got that bad and after being bed ridden for months with a fast heart rate and lots of PUSHING my own useless consultant, i got referred to a research doctor who was doing research in blood pressure in m.e patients.
After her investigations she has diagnosed me with pots and sinus tachycardia. So i'm now on better treatment for blood pressure and heart rate.
Anyway it took 6 years to get it that far, and 6 years of being so ill i've been housebound. I was wondering if anyone else has pots?
I also believe i still have m.e as before that diganosis, i had sever glandular fever, which a lot of m.e suffers find can have been a trigger.
Any takers? Hope you're all not too bad at the moment