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Old 08-06-2007, 09:49 AM   #1
Join Date: Jan 2007
Location: CA
Posts: 67
violaroses HB User
NEED to go on vacation, worried about my CFS

I love the world we live in, isnt it so beautiful, I would love to see as much of it before my body wears down, I am 35, have been dealing with CFS for 5 years now I get horrible seizures if i let my b ody wear down, CFS and seizures great combo : ( I feel I am sort of a success story, I was so very sick, everything was so heavy- even a gallon of milk, but now i feel so much stronger and better. but of course I have my weak points. i am sick when I see lots of bright lights and lots of noise ( cant go to casinos and lots of resturants) the heat wears my body down to make me go into my seizures. we dont have much humidity where I live.

people life in humidity- how does your body handle it?

i would love to go to mexico, i know my body couldnt handle the trip so i would go back in my wheelchair, but i am worried about the heat. i want to have a good trip, i know whereever I go i am going to have a chance of being sick, but i am used to being sick, and being in a good mood.


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Old 08-07-2007, 05:39 AM   #2
Join Date: Jul 2004
Posts: 544
CFD 333 HB User
Re: NEED to go on vacation, worried about my CFS

Humidity does a number on me as well...usually in the form of increasing my brain fog, irritability, and anxiety. It's strange because when it gets warm I usually feel better, but the humidity kills it for me.

I would say go ahead and try to enjoy it, but just be extra cautious. Drink lots of water, stay in the shade, etc. That should help.

Question, what brought about your greatest success and improvements with CFS? I'm curious to know how you were able to improve.

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Old 08-07-2007, 09:30 AM   #3
Join Date: Jan 2007
Location: CA
Posts: 67
violaroses HB User
Re: NEED to go on vacation, worried about my CFS

I live near Sacramento , dry, thank you for the warning and the encouraging.

I have anxiety too, before I got sick with spinal menitigites 5 years ago, so I take paxil 40mg. occasionally I will take a xanax but i dont like the "cant wake up feeling"

when i was extremly sick i journaled every day about my health problems, sometimes all it was - huge big letters- "my head is going to explode"
- it helped me writing it down vs venting it outloud to somebody.

energy envelops- i strongly followed those. if i knew i had something big that night,- i took those naps, i didnt do my chores : ( . energy envelops help

i know cfs makes u feel like u have the flu after u excersize- but i did make myself do small walks, i felt like i ws going to die, but i didnt want my body to get too weak.

positive attitude, and having my husband following my positive attitude- he let me do things even though he knew it would make me sick. i just didnt want to give up, i love my girls and i have fun with them

i hated taking pain pills, so i only took them when i was forced, they made me a zombie. but yet sometimes thats the only way for the pain- i had alot of seizures which caused me pain from my body moving uncontrollably,


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