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-   -   do i have any chance of being prescribed provigil in the uk? (http://www.healthboards.com/boards/chronic-fatigue/536256-do-i-have-any-chance-being-prescribed-provigil-uk.html)

hippydave 09-23-2007 11:22 AM

do i have any chance of being prescribed provigil in the uk?
 
hi,
has anyone heard anything about this drug being prescribed in the uk for m.e./cfs? i've just searched this board and all or most people who've mentioned taking it seem to be in the states. i gather the more accepted uses for provigil are for narcolepsy and sleep apnoea, but i have a friend (also in the uk) who's recently been prescribed it for fatigue related to her m.s. and it's really helping her. do i have a hope in hell of getting the doc to give me it for m.e.?

i took one provigil a few hours ago (for the sake of argument, let's assume that i just found it somewhere), and i can't remember the last time i felt this good. just alert, slightly energetic (but not in a buzzy stimulant kind of way - even caffeine wires me unpleasantly so this is much better than that) rather than the usual fatigued and lethargic. obviously i can't tell if i'd have any problems with it in the longer term like bad crashing or difficulty sleeping, but i'd really like the chance to try it out properly and see.

so, is it worth me asking my doctor? is it worth me asking a few doctors in the hope of one saying yes? is it even worth me suddely developing sleep apnoea...? :)

CFD 333 09-23-2007 05:22 PM

Re: do i have any chance of being prescribed provigil in the uk?
 
Haha, pretty funny post Dave. Honestly, I think you should have no problem getting Provigil prescribed for you IF you are seeing a doctor who is open minded enough to give it a try. Some doctors may try to fight with you on these things because it is a controlled substance here in the States.

It sounds like it could really help you, so I say go for it. Be sure to mention that you have a friend who uses it and that it works wonders for her. What do you have to lose really? The worst they can say is no basically.

gooby 09-23-2007 07:31 PM

Re: do i have any chance of being prescribed provigil in the uk?
 
[QUOTE]so, is it worth me asking my doctor? is it worth me asking a few doctors in the hope of one saying yes? is it even worth me suddely developing sleep apnoea...? [/QUOTE]I would have to defer to your knowledge of the British medical/legal system as to a drug being prescribed for off label use. In the states, I would definately suggest asking ones dr for a trial run.


So, do you still have a Sheriff of Nottingham? We have heard so many bad things about that guy.:jester:

hippydave 09-23-2007 07:38 PM

Re: do i have any chance of being prescribed provigil in the uk?
 
[quote]The current Sheriff of Nottingham is Councillor Jeannie Packer who was sworn in during May 2006.[/quote] :jester:
(from wickypedia, which i can't link directly to by the looks of it)

yeah doctors here are allowed to prescribe for "off-label" uses, but i don't know how many of them are inclined to do so. i get the impression mine isn't :(

CFD 333 09-23-2007 08:06 PM

Re: do i have any chance of being prescribed provigil in the uk?
 
Start off by explaining your friends experience and how much it has helped her. Then ask, 'Do you think this would be appropriate for me?'

I worked for me a lot when my doctor and I were going through several different treatment options. He eventually grew tired of this approach and said we had to stop doing this because he didn't want to be responsible for anything bad possibly happening.

So, it's definitely not an approach you want to abuse, but it never hurts to try.

hippydave 09-23-2007 08:14 PM

Re: do i have any chance of being prescribed provigil in the uk?
 
ok thanks for the suggestion.
so would it generally be a bad idea to say that i'd tried one of my own accord?

gooby 09-23-2007 08:21 PM

Re: do i have any chance of being prescribed provigil in the uk?
 
[QUOTE=hippydave;3223057]ok thanks for the suggestion.
so would it generally be a bad idea to say that i'd tried one of my own accord?[/QUOTE]

based on what you said about your current doc, I would suggest it is a bad idea to do so.

My doc actually referred me to another doc that presribed Provigil regularly and since my doc wasn;t too comfortable prescribing it (his lack of experience with the drug), it was no problem to give such a referral. Again, I don;t know how your medical system works but merely something to think about as a possibility.

CFD 333 09-24-2007 12:39 PM

Re: do i have any chance of being prescribed provigil in the uk?
 
[QUOTE=hippydave;3223057]ok thanks for the suggestion.
so would it generally be a bad idea to say that i'd tried one of my own accord?[/QUOTE]

Oh yes, I'd say that would be a VERY bad idea. It would appear like you are engaging in drug-seeking behavior to him for sure. Never admit to using medication not prescribed for you. ;)

hippydave 09-28-2007 10:08 PM

Re: do i have any chance of being prescribed provigil in the uk?
 
thanks for the replies :)

[removed]
(was a quote from a piece of news from 2004 about provigil's license in the uk being extended to cover not only narcolepsy and sleep apnoea, but also excessive sleepiness brought about by other chronic pathological conditions)

so, next question.... is m.e./cfs a "chronic pathological condition"?

cheers :)

gooby 09-29-2007 07:53 AM

Re: do i have any chance of being prescribed provigil in the uk?
 
for some reason, the mind is not working and need you to define. m.e.

as to the post about it being available for chronic pathological conditions, that simply means that any chronic (long term) situation caused by some underlying disease and is persistant. Some would limit it to diseases that do not respond to a curative tretment.

In truth, pretty much includes just about anything that hangs around for a while.

hippydave 09-29-2007 08:36 AM

Re: do i have any chance of being prescribed provigil in the uk?
 
oh sorry, i was talking about chronic fatigue syndrome.
m.e. (myalgic encephalomyelitis) is another name that was used in the uk before we started calling it chronic fatigue syndrome - the official label here is now "m.e./c.f.s."

so you'd say cfs does fit the above description? in which case i'd conclude that provigil is licensed (in the uk) to treat that particular symptom (the excessive sleepiness) even if it isn't licensed to treat cfs as a whole. definitely worth discussing with my doctor then :)

hippydave 10-01-2007 05:39 AM

Re: do i have any chance of being prescribed provigil in the uk?
 
ok, apologies.

hippydave 10-09-2007 01:13 PM

Re: do i have any chance of being prescribed provigil in the uk?
 
in case anyone's interested - my gp was "not against" me receiving provigil, but she wasn't willing to take responsibility for prescribing me it herself - she's referred me to a specialist (a rheumatologist...). that's a month and a half away, i don't know how optimistic to be about it...

CFD 333 10-09-2007 08:29 PM

Re: do i have any chance of being prescribed provigil in the uk?
 
[QUOTE=hippydave;3249500]in case anyone's interested - my gp was "not against" me receiving provigil, but she wasn't willing to take responsibility for prescribing me it herself - she's referred me to a specialist (a rheumatologist...). that's a month and a half away, i don't know how optimistic to be about it...[/QUOTE]

Do you have pain? I'm curious what makes a rheumatologist a CFS specialist because I believe they deal primarily with Fibromyalgia related pain.

hippydave 10-10-2007 03:05 AM

Re: do i have any chance of being prescribed provigil in the uk?
 
yep i do have pain, in fact the only treatment i've been getting from my gp is painkillers (currently tramadol, paracetamol (acetaminophen) and diclofenac).

i'm not convinced that the person i will be seeing is actually a cfs specialist, but at least it's someone higher up the food chain than a gp, so i might get lucky and find that they're willing to stick their neck out and let me try the provigil. even if not, maybe they'll have some ideas to help the pain (i'm going to have to get up painfully early in the morning and catch two buses to get to the appointment, so i'm hoping there'll be something to make it worthwhile :D )


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