muscle tremors, twitches, limbs going numb....could it be CFS?? - Chronic Fatigue Message Board

kickstar1 · 11-25-2007, 09:48 AM

This is a long story...Since about 2 years ago I started having congestion in my chest, it developed into a chronic rhinitis/sinitis, then I started having muscle cramping (mostly upper body), that later changed into numbing of my limbs. I became pregnant at that time and the muscle troubles (numbing) went away. About 3 months postpartum I started having the muscle cramping again, which - again - changed into a muscle numbness; Now hold your horses: that changed into muscle twitching (!!) first all over my body and then also in my toes. The twitching/weakness moved up to my hands/fingers!! I also have muscle tremmors and a terrible pressure in my head and feel like I wobble all the time, especially my head now...Terrible isn't it? SO many weird symptoms and no answers...
I went to a neurologist (among other specialists) and he said that there is nothing seriously wrong with me and that it could by my hormones, my EBV,...but didn't really know. Could it be Chronic Fatigue Syndrome???

PS: had MRI done - clear; blood tests are clear except elevated EBV

Hoopa7p · 11-25-2007, 01:39 PM

Quote:

Originally Posted by kickstar1

This is a long story...Since about 2 years ago I started having congestion in my chest, it developed into a chronic rhinitis/sinitis, then I started having muscle cramping (mostly upper body), that later changed into numbing of my limbs. I became pregnant at that time and the muscle troubles (numbing) went away. About 3 months postpartum I started having the muscle cramping again, which - again - changed into a muscle numbness; Now hold your horses: that changed into muscle twitching (!!) first all over my body and then also in my toes. The twitching/weakness moved up to my hands/fingers!! I also have muscle tremmors and a terrible pressure in my head and feel like I wobble all the time, especially my head now...Terrible isn't it? SO many weird symptoms and no answers...
I went to a neurologist (among other specialists) and he said that there is nothing seriously wrong with me and that it could by my hormones, my EBV,...but didn't really know. Could it be Chronic Fatigue Syndrome???

PS: had MRI done - clear; blood tests are clear except elevated EBV

How about your thyroid? Has that been checked? Thyroid and EBV seem to be so interrelated.

kickstar1 · 11-28-2007, 10:43 AM

No, they haven't checked my thyroid..I guess that's what I got to do next...Can I ask you why do you think that EBV and thyroid are related? I would like to know.

Hoopa7p · 11-28-2007, 08:09 PM

Quote:

Originally Posted by kickstar1

No, they haven't checked my thyroid..I guess that's what I got to do next...Can I ask you why do you think that EBV and thyroid are related? I would like to know.

If you are hypothyroid you have many of the same symptoms of EBV. Chronic fatigue, malaise etc. The symptoms are very similar. Check out any of the websites on both disorders and you will see that too. I don't know if anyone has made a connection between these two disorders but to me it is like which came first: The chicken or the egg? My thyroid was tested in February due to my inability to lose weight, fatigue etc. Recently, I have had numerous bouts with hives. An allergist did some blood work on me and found the EB antibodies. He also believes they are connected.

kickstar1 · 11-28-2007, 09:23 PM

Thanks for the quick response; I guess the biggest issue I am dealing with is that none of the doctors that I went with ( an allergist was also one of them) believe in EBV complications. They either say "we all have it" or they just smile at me...
Too bad you are in NY; I am in California so I guess you can't give me recommendation for a good "EBV doc".