I am a 41 year old woman who has lead a very active busy life. The last year, I have struggled with the fact that my quality of life is horrible!!
Fatique is the worste!! I work ALOT!! 7 days a week, 365 days a year and I manage to get through my days only because I have no other choice.
I have 3 teenagers and when I return home from work, I litterally just collapse and need to sleep. My brain gets overloaded and my body seems to have no energy at all. After working all day, there is just nothing left to offer the rest of my life or my family. I have always been very hyperactive and never stopped until all that needed to be done, was done. Now I seem to accomplish so little.
I have been to a neurologist, lots of labs done, including lyme. 1st test was positive, western blot was negative. My body has many virus, though I never knew they existed (CMV, herpies, EBV, hep B). Neurologist made no bones about this, decided to call my symptoms fibro, without running any tests.
Needless to say, I have many more symptoms and want to make certain theres nothing neurological going on. So I went to a neuro of my PC's choice. I have had tingling, pins and needle sensations, numbness in legs, back, arms and hands, face and head. Electricity feeling throughout my body, as well as twitching that is endless.
The mystery too, is my heart is racing, I've had every test they could do on my heart with no findings. My blood pressure is also elevated. My PCP believes theres something going on and doesn't want to treat my racing pulse with medication to mask the problem, without finding out why its happening. and here I am on the roller coaster ride!! LOL.
This 2nd neoro did MRI's of the brain and spine which came back normal. I am sceduled for an LP on Thursday. If that is normal, I'm not sure which direction to head in.
I'm not willing to eccept that I have become this way for no reason. There has to be an explanation. I'm also having cognitive issues, trouble finding words, concentrating and simply making out bills makes my mind spin and I become comepletly exhausted and need to lie down and sleep.
I have learned to pace myself and not overdue to save my energy for the importand things. But because of my work, this takes presidence and my family has definately been bumped to the bottom of the list. I definately don't want this because my family is what I wake up for every day. I feel so badly for them, not for myself.
I've been reading post here about these virus and the roles they can play on our bodies. Can anyone offer some insight on whats happening and if I should pursue this more? What kind of DR treats this, etc...
I had the exact same symptoms...they also told me i had fibro, they did bloodwork , my lymes is neg(not re-activated) and my ebv was non-reactive also...soooo, I left my rheumatologist, because he was not helping me with my new symptoms, and I found a new neurologist who got more bloodwork for EBV, he asked the lab for the numbers of the antigens(I think its Nucleur numbers) and lo and behold, guess what?? My EBV has been reactivated the whole time(about 3 years) it was not fibro..that explained my hearing loss(glands were swollen all the time, pressing on my eardrums, hence I couldn't hear all the time)and a bunch of other things. So, my husband just went for bloodwork, I asked them to please check his EBV...guess what>> they said he had mono sometime in his life...he never had mono before...so I am taking his results to my neuro for his interpretation.. a lot of doctors do not know they have to get the blood test with the numbers...so, I would definatley look into that aspect. I have been sick for so long withouot being treated, that now I am chronic, and may never be able to return to work...I think I see a lawsuit on the horizon
I am a 41 year old woman who has lead a very active busy life. The last year, I have struggled with the fact that my quality of life is horrible!!
Fatique is the worste!! I work ALOT!! 7 days a week, 365 days a year and I manage to get through my days only because I have no other choice.
I have 3 teenagers and when I return home from work, I litterally just collapse and need to sleep. My brain gets overloaded and my body seems to have no energy at all. After working all day, there is just nothing left to offer the rest of my life or my family. I have always been very hyperactive and never stopped until all that needed to be done, was done. Now I seem to accomplish so little.
I have been to a neurologist, lots of labs done, including lyme. 1st test was positive, western blot was negative. My body has many virus, though I never knew they existed (CMV, herpies, EBV, hep B). Neurologist made no bones about this, decided to call my symptoms fibro, without running any tests.
Needless to say, I have many more symptoms and want to make certain theres nothing neurological going on. So I went to a neuro of my PC's choice. I have had tingling, pins and needle sensations, numbness in legs, back, arms and hands, face and head. Electricity feeling throughout my body, as well as twitching that is endless.
The mystery too, is my heart is racing, I've had every test they could do on my heart with no findings. My blood pressure is also elevated. My PCP believes theres something going on and doesn't want to treat my racing pulse with medication to mask the problem, without finding out why its happening. and here I am on the roller coaster ride!! LOL.
This 2nd neoro did MRI's of the brain and spine which came back normal. I am sceduled for an LP on Thursday. If that is normal, I'm not sure which direction to head in.
I'm not willing to eccept that I have become this way for no reason. There has to be an explanation. I'm also having cognitive issues, trouble finding words, concentrating and simply making out bills makes my mind spin and I become comepletly exhausted and need to lie down and sleep.
I have learned to pace myself and not overdue to save my energy for the importand things. But because of my work, this takes presidence and my family has definately been bumped to the bottom of the list. I definately don't want this because my family is what I wake up for every day. I feel so badly for them, not for myself.
I've been reading post here about these virus and the roles they can play on our bodies. Can anyone offer some insight on whats happening and if I should pursue this more? What kind of DR treats this, etc...
Any help will be appreciated!!
Cindy
It would be a good idea to have your thyroid tested. Also, find out the levels of your T3 and T4. It sounds like you might be hypothyroid.
how do you end up cronic? I was under the impression that the EBV goes away on its own...
Do you see a neuro to treat your syptoms? What kind of meds do they prescribe, if you don't mind me asking. ~ cindy
When I was younger I had a very serious case of mono. Mono is like the chickenpox in that you will always have the EBV in your blood once you are exposed to it. I am not sure of the exact number but i think it is something like 90% of the adult population has been exposed to EBV and it will be found in the blood. mono symptoms are very much like those of the flu. someone may have had mono and never known it because they thought it was the flu. but when all is said and done that person will always show the EBV in the blood stream at some level. additionally EBV is a virus and would not be treated by a neuro but by an infectious disease specialist. when i had my case of mono they brought in the infectious disease specialist, however since being diagnosed with CFS (and my diagnosing doctor wanted me to go back to the Infectious disease doc) I called to get an appointment and he said that there was nothing he could do for me because i do not have an active EBV in my blood.
Re: Unanswered Questions~ I'm Not Me Anymore 
