Well I haven't posted here for over a year, and my last post was rather depressing >_>' A fair few things have changed in my life since then so I'll bring you all up to date, yet again xD
As my last post said ([url]http://www.healthboards.com/boards/showthread.php?t=436311[/url] if you want to read), I'd pretty much given up on trying to get over CFS, instead I tried more of a "just get on with life as best I can" approach.
So I did just that - and went to Uni. I'd always wanted to go, but with CFS being such a problem even *without* any commitments, I didn't think it was such a great idea. I took 2 years out after college in hope I'd see an improvement with my health, but I never did. I couldn't deal with keeping my life on hold, so I went for it.
Coping with CFS and being at Uni sure is... different, to say the least. For one, I don't live with my parents anymore - so I don't have them around to look out for me when I'm really ill. I have bills and deadlines to worry about as well as not really knowing the area where I live too well. I don't mean this to sound like I'm some spoilt kid who's only just started to take on responsibility or anything, I'm just pointing out this is the first time I've really had to cope with these things on my own (not a bad thing
I've been here for around 5 months now and even though I feel as though my symptoms are worse (not sure if they're are "worse" as such, could just be me getting used to actually having to do something) it's been one of the best decisions in my life. To feel as though I'm actually working towards something rather than obsessing over my health somehow makes CFS feel a little more bareable, even at the worst of times.
The thing I have noticed the most is that the ups (if you can call them that) and the downs now seem a bit more "up and down", if that made any sense >_>
Though I doubt that the whole "get on with it" approach will actually work on it's own, but so far I've found doing so rather than worrying so much about my health feels like its a weight lifted even without having any improvements.
So far, it's been a learning experience to say the least - just trying to figure out how much I can do in a day,when I need to let my body rest and how long for e.t.c. One of the worst thing about CFS, for me anyway, is that it's so unpredictable in terms of how far you can push yourself and what not. I think when I've learnt more about what I meantioned above, it'll definately become easier. If anyone has any tips on learning these things, please do share - I'll be happy to try anything
Anyway, I've been off any form of medication for a long time now, and I feel as though I'm happy to start trying with doctors again.
Although, I don't really know where to begin. So far I've tried thyroxine, anti-depressants and a mixture of suppliments (I think that's the right word) like B12, Folic Acid, Iron e.t.c. none of which seemed to make a bit of difference for me.
I was browsing around these forums and saw a couple of things mentioned a fair bit. Provigil and Adderall. I was wondering if anyone could tell me a bit about these and/or their experiences with them? Or if anyone could recomend anything else that I haven't mentioned.
Thanks for taking the time to read this, take care everyone and I hope you're all getting at least a little bit better