| | A Hello and My story (questions about Fatigue/Abdominal Symptoms)
I'm posting here because even though I'm not diagnosed with Chronic Fatigue *Syndrome*, I certainly have Chronic Fatigue *symptoms!* (ah, doctors...)
Essentially, I'll try to keep my tale brief, and hope that somewhere out there one of you can relate or offer some thoughts...
I have felt 'off' since August 2006 when I had tonsillitis. The doc gave me Amoxicillin which cleared up the infection but seemingly knocked me sideways for weeks. Even after the 10 day course of meds, I was feeling lightheaded, exhausted, nauseous and having blackouts. Cut to October: I moved to the UK to go to grad school, got a congested cough. Prescribed Amox again, and same symptoms. I do not know if there is any correlation, but after this, my stomach began acting up, with much pain, spasms, and bathroom irregularities. I also still had dizzy spells from time to time.
I'm explaining all this because I became very sick in Summer 2007, and assumed it was just a worsening of the ongoing, earlier symptoms.The stomach stuff got incredibly bad, and I became barely functional due to exhaustion, dizziness, and pain. In July/August I was able to just about make it through a workday but had to come home and get to bed immediately, and then by Sept I was sleeping through most of the week, about 18-20 hrs a day, unable to get out of bed; my stomach was so bad, I could barely eat. I also had severe back pain.
My UK gp diagnosed 'school stress' and a holistic doc said curing the stomach would cure the fatigue. Blood tests didn't seem to reveal anything. Finally returned to the US, saw numerous docs. The breakdown:
Oct/Nov: Gastro ran many tests, said IBS causing fatigue.
Dec: Holistic and GP said Epstein Barr indicated I must've had mono. Also revealed Vit D deficiency. No thyroid issues (sensitive tests done). Modified diet helped but did not fix completely (a gluten free vegan now!)
Jan/Feb: New Gastro said possible Crohn's AND EBV, but can't tell if it was mono.
Now I've just had an endoscopy and seem to have a hiatal hernia, which *might* explain tummy issues.
I just don't know what I've got. At this point, if I did have mono in the summer, shouldn't I be feeling better (if it's not CFS)? While I am no longer sleeping through my days, I still cannot function normally. If I work (sub teacher) a few days in a row, I have to take a day or two to rest. I'm always achey and weak, if not in real pain, and my brain/memory is very cloudy, and the dizziness is often severe, triggering more fatigue. At this point, almost 10 months after the beginning of the severe symptoms, I can't understand why there's no specific diag, or at least agreement by the doctors. It's so frustrating. I went from enjoying my London life to having none whatsoever...and having no idea if I'll be well anytime soon!
So I guess my questions are: Who can relate/help, and do any of you with CFS have abdominal symptoms or a separate ab-related illness?
Sorry for the (long) venting!