My blood pressure is low to begin with but it seems like whenever I get an exacerbation in CFS, I start to have increased orthostatic hypotension symptoms or vice versa. Right now, almost everytime I stand up my sight blacks out for a second or two and I get dizzy. This does not seem to happen to me when I am feeling a little better. Does this happen to anyone else?
My blood pressure, when tested at the doc's, is always fine. But I do get dizzy alot. If I'm active out in the sun for too long I will 'black out' like you described and have to sit down for a little while (about a minute) to get it to go away. Also, if I stand up quickly and start to walk sometimes I lose my balance and almost fall. If I take a hot shower the steam does the same as I described above.
I have the b/p problem like you. When I stand up it get's really bad. If I'm standing for about 15 minutes I have almost passed out. In fact, sometimes while checking my blood pressure after 2 minutes, because of standing still, I have almost passed out. I had to sit down and couldn't continue with it anymore.
CFS (and FMS) can also present with something called orthostatic intolerence (OI) which is a form of dysautonomia (autonomic nervous system dysfunction). CFS affects the autonomic nervous system in many cases and this can bring its own host of symptoms.
I suggest you look at the dysautonomia forums (Dysautonomia Information Network--DINET and National Dysautonomia Research Foundation-- NDRF) as they can provide a wealth of information.
I had to laugh, I have dysautonomia and it took me a month to figure out how to pronounce it and then just try to explain it to people! At least with CFS people know what you're talking about...
Dys and CFS often co-mingle and there are many papers out there about it. There are treatment options for the dysautonomia symptoms so I would suggest you get your doc to order up a tilt table test so see if you have signs of orthostatic intolerance.