It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Chronic Fatigue Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 04-18-2008, 12:34 PM   #1
Senior Member
(female)
 
Join Date: Apr 2008
Location: NC, USA
Posts: 146
CDS75 HB User
Chronic Fatigue exacerbation- Orthostatic hypotension

My blood pressure is low to begin with but it seems like whenever I get an exacerbation in CFS, I start to have increased orthostatic hypotension symptoms or vice versa. Right now, almost everytime I stand up my sight blacks out for a second or two and I get dizzy. This does not seem to happen to me when I am feeling a little better. Does this happen to anyone else?

 
Old 04-19-2008, 12:14 PM   #2
Junior Member
(female)
 
Join Date: Apr 2008
Location: KY, USA
Posts: 19
azmom4 HB User
Re: Chronic Fatigue exacerbation- Orthostatic hypotension

My blood pressure, when tested at the doc's, is always fine. But I do get dizzy alot. If I'm active out in the sun for too long I will 'black out' like you described and have to sit down for a little while (about a minute) to get it to go away. Also, if I stand up quickly and start to walk sometimes I lose my balance and almost fall. If I take a hot shower the steam does the same as I described above.

 
Sponsors Lightbulb
   
Old 06-03-2008, 10:25 AM   #3
Senior Member
(female)
 
Join Date: Sep 2004
Posts: 213
Postie HB User
Re: Chronic Fatigue exacerbation- Orthostatic hypotension

I have the b/p problem like you. When I stand up it get's really bad. If I'm standing for about 15 minutes I have almost passed out. In fact, sometimes while checking my blood pressure after 2 minutes, because of standing still, I have almost passed out. I had to sit down and couldn't continue with it anymore.

CindyLou

 
Old 06-07-2008, 09:21 AM   #4
Senior Veteran
(female)
 
Join Date: May 2008
Location: AZ
Posts: 2,255
javelina HB Userjavelina HB Userjavelina HB User
Re: Chronic Fatigue exacerbation- Orthostatic hypotension

CFS (and FMS) can also present with something called orthostatic intolerence (OI) which is a form of dysautonomia (autonomic nervous system dysfunction). CFS affects the autonomic nervous system in many cases and this can bring its own host of symptoms.
I suggest you look at the dysautonomia forums (Dysautonomia Information Network--DINET and National Dysautonomia Research Foundation-- NDRF) as they can provide a wealth of information.

 
Old 06-07-2008, 10:39 AM   #5
Senior Member
(female)
 
Join Date: Sep 2004
Posts: 213
Postie HB User
Re: Chronic Fatigue exacerbation- Orthostatic hypotension

I looked up dysautonomia. I have the orthostatic and low blood volume.

Do you happen to know why we have the diagnosis of CFS then if it sounds like dysatonomia? It would sound better if we told people we have dysautonomia rather than CFS.

CindyLou

 
Old 06-08-2008, 08:31 AM   #6
Senior Veteran
(female)
 
Join Date: May 2008
Location: AZ
Posts: 2,255
javelina HB Userjavelina HB Userjavelina HB User
Re: Chronic Fatigue exacerbation- Orthostatic hypotension

I had to laugh, I have dysautonomia and it took me a month to figure out how to pronounce it and then just try to explain it to people! At least with CFS people know what you're talking about...

Dys and CFS often co-mingle and there are many papers out there about it. There are treatment options for the dysautonomia symptoms so I would suggest you get your doc to order up a tilt table test so see if you have signs of orthostatic intolerance.

Good luck!

 
Old 06-08-2008, 08:56 AM   #7
Senior Member
(female)
 
Join Date: Sep 2004
Posts: 213
Postie HB User
Re: Chronic Fatigue exacerbation- Orthostatic hypotension

I already have orthostatic intolerance. Dr. Bell did the test and he also had me test for low blood volume and that was a 2-1/2 hour test at a university hospital.

CindyLou

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Are these typical symptoms of chronic fatigue? Bobbyboo Chronic Fatigue 8 07-28-2010 12:30 PM
New to Board,Recently Diagnosed with Fibromyalgia, Chronic Fatigue, new to Pain Mgt New To CP Fibromyalgia 7 06-14-2009 02:39 AM
The stress got to me..1st exacerbation since dx anxiousme Multiple Sclerosis 5 05-26-2009 07:29 PM
need help finding the cause! (chronic fatigue & chronic dry irritated eyes) Guy2307 General Health 3 08-13-2008 08:12 AM
Diag 3 weeks ago - crippling fatigue is scaring me traci0211 Multiple Sclerosis 9 03-19-2008 01:16 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



paulapage1980 (3), wigs123 (3), Brodie179 (3), ladybud (3), mare50 (3), RickinOH (3), CFIDS (3), sleepykitty44 (3), microwave (2), proudARMYmom (2)

Site Wide Totals

teteri66 (1180), MSJayhawk (1006), Apollo123 (906), Titchou (852), janewhite1 (823), Gabriel (759), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 05:49 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!