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Old 05-26-2008, 03:13 AM   #1
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Could I have chronic fatigue and be hypothyroid?

I was hoping to get some opinions as to whether or not this sounds like cfs. I was diagnosed as hypothyroid in October last year, but the problems I've been having started after having had a month-long bout of bronchitis in 2000. The problems have gradually gotten worse. There are days where I feel achy all over, especially in my arms, abdomen and legs. Aches that feel like a rash is developing on arms, legs and throat when touched (applying lotion etc) but no actual rash ever appears. Aches like short sharp pains in the shoulders, especially in the shoulder blade region. Stiffness and tingling in hands, stiff feeling fingers. I also get joint stiffness in the morning, especially in the knees. Aches under armpits, tender sensations that come and go in breast area. I also am experiencing malaise, fatigue. Sluggishness. Occasional heartburn. Loose bowel movement (once). Cold spells, times when I felt like shivering. No fever, but sometimes feel feverish. Cold hands, feet. Loss of appetite when I feel ill. Feel like doing basic things is an effort. Bouts of extreme sleepiness, like could fall asleep at any minute. I am honestly so tired right now I just want to curl up in a ball and go to sleep for 100 years but I can't remember the last time I had a proper night's rest (wake up several times a night or early morning). Weight gain. Bloatedness in abdomen. Honestly, I used to be so full of energy, so fit and healthy and now I feel miserable, fat, bloated and old and I'm 34 years old. So tired of being told my problems are because I'm middle aged now (at 34???)

Lol, oh yeah and at times I get a really annoying ringing in my ears that takes hours to go away, and brain fog (goes hand in hand with the sluggishness so don't know which starts first).

Last edited by glamkat74; 05-26-2008 at 03:18 AM.

 
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Old 05-26-2008, 11:26 AM   #2
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Re: Could I have chronic fatigue and be hypothyroid?

Were you given thyroxine for your hypothyroidism? Have you had a blood test since you were initially diagnosed? I'm not a doctor, but your symptoms still sound like classic hypothyroidism, not CFS - have you posted in the thyroid forum too? They might be able to help.

I would advise you to go back to see your doctor and tell him/her that you still feel unwell. Until your TSH level is back within the normal range, you will continue to experience symptoms of hypothyroidism.

 
Old 05-26-2008, 02:21 PM   #3
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Re: Could I have chronic fatigue and be hypothyroid?

Hi Glamkat, sorry you are going through all of this. What types of bacterial, viral testing have you had done? I also live in California, if you would like a name for a great doctor let me know. The doctor/speacialist I see is in Sacramento. He truly has gotten me back on my feet. Lot of stuff that had to be unraveled.

To be honest in my opinoin you have more than just thyroid issues going on.

hang in there!


 
Old 05-27-2008, 01:22 AM   #4
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Re: Could I have chronic fatigue and be hypothyroid?

Thanks Jojo and Kiya for your replies. I have had my blood tested last week, and my thyroid was below normal range, but I do not have the exact numbers. I am seeing my doctor again this week so will discuss with him all of the problems I have been experiencing. I read that autoimmune disease can run in families and there definitely seems to be a strong history of autoimmune disease in mine (father, aunt, uncle and grandma all had different autoimmune diseases) so maybe this could have something to do with how I've been feeling (I am only beginning to learn about how autoimmune disease works). I am currently taking Armour thyroid, 60mg. Never had viral tests done but am waiting for the results of autoimmune tests. It was just really distressing, especially with the added digestive problems, because even when my thyroid was low in the past I've never been in this much pain before. Hmm.

I am in Southern California, but I certainly appreciate any further information about doctors who can treat autoimmune disease because I don't feel like I am getting as much help from my doctor as I could.

 
Old 05-27-2008, 11:14 AM   #5
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Re: Could I have chronic fatigue and be hypothyroid?

If your thyroid is still not functioning within normal range, I still feel that it's hypothyroidism not CFS. There is absolutely no need to check for other conditions until your thyroid function is under control. If you still feel unwell once your TSH is within the normal range, it could be that some of your symptoms are a result of something else... but, if you take a look at the thyroid board you will see that a lot of people with hypothyroidism continue to experience symptoms of the illness despite being within normal range. Good luck with your doctor's appointment next week. Take care.

 
Old 05-27-2008, 02:33 PM   #6
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Re: Could I have chronic fatigue and be hypothyroid?

K here is my opinion. I have/had lyme disease, chlamydia pnumoniae, Bartonella, Babesia, Epstein Barr Virus, Cytomeglovirus. I had been diagnoised with hypothyroid. On medication for 10 years, nothing changed until I got the bacteria's and virus's under control. I noooo longer need thyroid Medication. Thyroid is back up and running now. This is into 8 years of treatment.

Autoimmune Diseases are caused by germs, bacteria, parasites, viral, and or fungi. It is getting to the bottom of the problem and trying to treat the cause.


Have you been tested for any of the above? Also there is mycoplasma pnumoniae that you might be checked for.

Hope you find your answers soon!



 
Old 05-28-2008, 07:30 PM   #7
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Re: Could I have chronic fatigue and be hypothyroid?

Hi Jojo. No, I've never been tested for any of those viruses (would I need to see an immunologist for these tests, or can my pcp do them in his office?) I've never even been given the full autoimmune blood panel test for Hashimoto's disease, only TSH (which was high, and my lymphocytes and white blood cell count were both high, indicating an infection of some kind).

It is frustrating knowing that after that nasty bout of what my former doctor called bronchitis (which I actually think was pneumonia, given the severity of the fever, cough and aches and pains) the doctor said I would have a fever off and on for a week or so, but it honestly feels sometimes like I never got rid of the fever most of the time, especially in humid warm conditions. At the time no chest X-Rays were ever taken, no blood tests for infection were taken either before or after the illness (this was my doctor from when I lived in England, who wasn't particularly thorough). I took antibiotics for the infection, which seemed to help with the worst of the symptoms, but I had to go back to work after two weeks and I have never felt quite right again since that illness.

Last edited by glamkat74; 05-28-2008 at 07:54 PM.

 
Old 05-28-2008, 07:31 PM   #8
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Re: Could I have chronic fatigue and be hypothyroid?

Quote:
Originally Posted by kiya View Post
If your thyroid is still not functioning within normal range, I still feel that it's hypothyroidism not CFS. There is absolutely no need to check for other conditions until your thyroid function is under control. If you still feel unwell once your TSH is within the normal range, it could be that some of your symptoms are a result of something else... but, if you take a look at the thyroid board you will see that a lot of people with hypothyroidism continue to experience symptoms of the illness despite being within normal range. Good luck with your doctor's appointment next week. Take care.

Hi Kiya. I know that having an underactive thyroid can cause a lot of what I have been experiencing: fatigue, aches, sensitivity to heat and cold, depression and bloating, but to my knowledge it generally does not cause a dry cough, diarrhea, abdominal pain, headaches, jaw pain (and stiff jaw), sensitivity to bright light (but not migraines), and shortness of breath (unless you are hyperthyroid, which I am not) all of which I have been experiencing off and on in addition to the hypothyroid symptoms. Even when I was within range I still had these other problems (though the body temp issues weren't as bad, the fatigue, aches and bloating lessened a bit and weight was easier to lose). Thanks for listening, and I'll let you know how my doctor's appointment went.

Last edited by glamkat74; 05-28-2008 at 07:44 PM.

 
Old 05-28-2008, 07:38 PM   #9
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Re: Could I have chronic fatigue and be hypothyroid?

Thanks Jojo and Kiya. I'll let you know what the doctor says tomorrow!

Last edited by glamkat74; 05-28-2008 at 07:45 PM.

 
Old 05-29-2008, 03:47 AM   #10
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Smile Re: Could I have chronic fatigue and be hypothyroid?

Hi GLAMKAT, I would like to reply to youre question. Let me start off by saying I am a 31 year old male, I was diagnosed with FIBROMYALGIA in 2000-01 and later with Chronic Fatigue Syndrome.

I can honestly say I know what you are going through . All the symptoms you mentioned from fatigue, muscle and joint pain, brain fog, bloating, weakness and extreme sleepiness, cold spells, fever ect. I have experienced and still do as well. I am not informed enough about hypothyroidism but youre symptoms match those of CFS and Fibromyalgia. These two syndromes are very closely related.

I would reccomed that you purchase a book on CFS and Fibromyalgia if you would like to find out more. There are many out there now. I have very good one,"Alternative Medicine Guide to Chronic Fatigue, Fibromyalgia and Environmental Illness". It was about $25, but you can get a used one much cheaper.

Diagnosis was determined by elminating all other alternative illnesses first untill
CFS and Fibromyalgia were left. I do recall feelling terrible for months, untill one day I was hit with such a strong fever, I couldnt get out of bed for 2 days. Major inflamation all over body, weakness, exhaustion, barin fog and confusion, body aches all over. I had never experienced anything like it before. When i recovered days later, the symptoms slowly returned weeks later and new symptoms appeared. And now Depression.

I was a very energetic person as well, always on the go. Since then i had to make a lot of lifestyle changes. I still excercise, but very moderate, diet is very important, eliminating bad foods like fast food and sugar, alcohol as well.
I have tried sleeping 10+ hours a night when I feel tired but it does not help much. The fatigue for me is so unbarable at times like you have mentioned you just want to sleep forever. Getting out of bed on bad days is a challenge. I am now taking tylenol 3 for the aches and fatigue, It helps but
I think I need something stronger.

Let me end by saying I hope you feel better. I would definitely recommend seeing youre doctor about CFS & Fibromyalgia because I think it might be the underlying condition. I would also seek a second opinion from another doctor because there are many doctors out there who do not believe that CFS exists.

One more thing about medications that have come out for CFS & fibro. (like tramadol) Doctors are very hesitant to prescribe them because of their side effects, dependancy, and I do think they are unsure of their safety.

I hope I have in some way helped Glamkat I will leave my e-mail in case
you want to contact me. Take care.

Last edited by Mod-S4; 06-27-2012 at 10:17 PM. Reason: posted contact info, unnecessary quote

 
Old 05-29-2008, 05:29 AM   #11
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Re: Could I have chronic fatigue and be hypothyroid?

Hi Glamkat, a G.P. can test you for these things. It is just getting them to do it, and then getting the proper treatment.

I too had all the symptoms you have except never diahrrea, mine was the opposite. I too after years and years was diagnoised with Fibro and Chronic Fatigue. I knew in my heart that NO WAY would my body be doing these things, running fevers and pain, migraines ect ect for just no reason. I got tired of doctors telling me I had to live with it. OR it was all in my head. That I was bi polar, depressed, had dementia, alsheirmers, ect ect. I also had gotten to the point where I couldn't walk or use my arms. NOW tell me was it still all in my head. Was I faking all of this just to get attention...
I lost a couple of jobs over it and lost a marriage and friends, family and had gotten pregnant and lost the baby. And still went from doctor to doctor begging and looking for help.

In 1999 I finally found ONE doctor who was a Chronic Disease Doctor and he LISTENED to me. That is all it took. He said I looked like something the cat drug in. I was on death's door. And still other doctors were saying, Fibro, Chronic Fatigue or just wouldn't have anything to do with me. This doc started me on antibiotics and treated me for 3 years. I had a picc line put in a year before he retired and had a in home health nurse plus a councelor that would come see me once a week. We had to put it in my file that my insanity problems was caused from my illlness, so no one could admit me into a mental hospital. He retired and I had to find someone else to treat me. Back to searching and doctors saying there was nothing wrong with me and how wrong it was for my last doctor to treat me with antibiotics. ugh!

Then I found Dr. Powell. He tested me even further, so besides the Lyme that we couldn't get a positive on cause the bacterias by then were imbedded in my muscle, brain, organs, bone...but I did have "bands" pull up. Besides this problem I also learned I had bartonella, babesia, EBV, CMV, and Chlamydia Pnumoniae. YES I too at one time would have bouts of bronchitis and pnumonaie. And of course the doctors put you on a 10 day course of antibiotics and say your cured. No this isn't true from what I found out.

Some bacterias have different stages to their lives. They are living little buggers. It takes different combinations of antibiotics, supplements, proper food, exercise and lots and lots of soul searching to get these things under control. From what I understand you don't get rid of every single one, but you can get them back into remission, dormancy. This holds true for other little creatures such as protozoas and microbacteriums. Then there are parasites and virus's and fungis's that need to be put into check also.

There has been reserach into things that cause Fibro/M.S, and many other conditions. There is research at Vanderbilt by Dr. Charles Stratton. He has been treating the Chlamydia Pnumonaie bacteria. There are other doctors that are looking outside of the box and their text books and following his protocols. Their are people getting cured from M.S. and Fibro, CFS by getting these buggers in their bodies eleminated.

You possibly want to do your own reading and learning and read what these different virus's and bacteria's and protozoa's do. You can do it from where you are sitting.

I hope this helps a little. If ANY doctor tells you that this can not be true I would find another until you get tested for all of these things. I see Dr. Michael Powell in Sacramento. He is a rhumetologist, internal medicine, D.O. Excellent doctor. I have been under his care now for 5 years and I am on top of the world now. I have talked to other's that see him that are back to work and living normal lives. You can find him by searching also. He has the Fibromyalgia/CFS treatment and learning Center. There is treatment and cures for what majority of us have. It is just getting a doctor to look outside of his own ego and text book. It truly blows me away on how many people get in their head cause their doctors tell them there is no cure that they feel they have to live this way. WE are like any warm blood or even cold blooded creature, bacteria's, virus's, microbacteriums, parasites ect need a home too....ugh!

I wish you luck at your appt today. Let us know how it goes.


 
Old 05-30-2008, 01:04 PM   #12
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Angry Re: Could I have chronic fatigue and be hypothyroid?

Thank you everyone for your replies, and kind wishes. Sorry if this is long.
I just got the results back from the doctor (what little of them there are). I just got back some of the results from my latest blood tests today. First off, the only things that were tested were the thyroid tsh, which determines how hard my thyroid is working to make more hormone, and it was high- 6.64 (highest 'normal range is 4.0 by lab's standards). I also had an Anti-nuclear AB test done for rheumatoid arthritis because I was concerned about family history (grandmother had rhematism) and wanted to rule out this possbility since I was having lots of pains in my legs and hands/wrists, all over achiness, as I previously mentioned, but this test came back negative = 0.59, well within range. So that's one good thing at least, I don't have Lupus, rheumatoid arthritis, etc. And the only reason why this test was performed was because the physician's assistant was willing to listen to me, and called for it. This wasn't my doctor's idea.

To date, my doctor still hasn't perform a thyroid antibody test, nor a T3 or T4test (which is pretty basic stuff for someone who has a thyroid condition), so I'm none the wiser as to what is causing my thyroid to malfunction. Not even a complete count of my vitamin, mineral levels, forget about viral/bacterial tests. I tried to explain just how much I have been having aches and pains, and the extreme fatigue, achiness, but my doctor just wouldn't listen, he kept saying' yes, that will happen when you have hypothyroidism'. Really? Wanna listen for a second, and hear ALL of the symptoms I've been having? I already know I have hypothyroidism, because I have all the 'classic' symptoms, and then some, but still don't know exactly what's wreaking havoc on my body. I have a family history of thyroid disease (grandma and uncle), and almost everyone else in my family has had some other form of autoimmune disease, or a combo of autoimmune diseases.

So anyway the upshot of the doctor's visit was that he increased my dose of Armour thyroid from 60mg a day to 90mg, put me on some fish oil pills, and then tried to sell me more of his his vitamin supplements ($150 a pop no less), and suggest I think about going on some diet pills. Oh yeah, and he told me to 'walk two hours a day'. Yeah right, I can barely get through 30 minutes of cardio exercise and have to spend the rest of the day recovering afterwards. And this is on a 'good' day. Sometimes it even takes several days to recover from one day's exercise.

I am just getting so frustrated with my doctor and his lack of communication, lack of thoroughness. I don't know how many other ways I can ask him to give me more comprehensive testing and information so I can find out what's making me sick and treat it more effectively. I am sad to admit it, but I think I need a new doctor.

 
Old 05-31-2008, 06:34 AM   #13
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Re: Could I have chronic fatigue and be hypothyroid?

Hi glamkat, ugh another frustrating doctors appt. I would honestly recommend you gettting to someone that will run all of these test. The doc I see runs test for t-3 and t-4. Plus all the others, except he doesn't run lyme test. Do you know that "some" rhumetologist treat patients with antibiotics. Hmmm now what does that tell you ....that some are trying to fight off bacteria's??

Anyway there is a lyme doc in Malibu. One of the best and I do believe he test for the things I have mentioned. I have read on the lyme board that people have been very pleased with him. He should test for the t-3 and t-4, beings this is all part of these chronic disesases.

If you can't do this I know my doctor takes insurance. I pay out of pocket to see him. Possibly a trip to Sacramento? I know there are people coming even from N.Y. to see him and Arizona , ect. After the first visit I think you can do the rest via phone. I do my appts over the phone beings I am 3 hours away from him.

You definatley need a new plan of action.

Hope you find your aswers soon

Jodie

 
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