Re: It seems way to wrong to be CFS. I think it could be Lyme DIsease and really need
Hi Sockit2ya...I also was told I had "only" CFS and Fibro at the beginning of my adventure. I knew better. Beings back when they told me this I had been bitten by ticks. But of course was told it wasn't in my area. Long story short...It took about 15 years before I FINALLY found one doctor to listen to me and started me on treatment for lyme. I think you are headed in the right direction by looking into this. Testing is not accurate for lyme.
I see you have posted over on the lyme board. You'll get some answers there.
Once your body gets as sick as youi sound you most likely have many things going on. When the immune system breaks down virus's and other bacteria's like finding a sick body to live in.
I wound up over the years finding out I had Bartonella, Bebesia, Chlamydia Pnumonaiae, Epstein Barr, Cytomeglovirus, plus the lyme. ugh! Been a long road to where I am now.
Keep fighting in finding your answers.
Wishing you lots of Luck.