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Old 06-03-2008, 09:14 AM   #1
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Janey07 HB User
Not sure if it's CFS

Hi, I'm new here. I'm trying to figure out if it could be CFS that I'm experiencing. I've read up on it somewhat, but the one question I have has never been mentioned. What I would like to know from some of you that have CFS is: do you experience fatigue every single day, or does it come and go on certain days? I've had it for maybe 3-5 days a month for a few years. Now, it seems to be more often, maybe 6-8 times a month. I have a dull headache with it, and I'm not in a very good mood on those days. I hate it! Is this how yours started? I would really like to know the answer to that. Thank you for any input.

 
Old 06-03-2008, 10:00 AM   #2
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Postie HB User
Re: Not sure if it's CFS

Hi: My name is Cindy and I became sick with CFS in 1998 and was diagnosed in 2003 by Dr. Bell. I have fatigue--every single day. Sometimes more severe than others. I can't do any housework. I had to go on disability.

But some people have a more mild CFS. It hit me all of a sudden. When I first became sick, I couldn't even barely walk to the bathroom and then I didn't even know if I could make it back to the couch. But I still worked. I became sick in the summer and since I was a crosing guard, I had time to rest. There was some days that I was ok. Not being able to do much but I would vacuum and then I would have severe fatigue after that. But I continued getting worse and now it may be turning into Lupus.

CindyLou

 
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Old 06-03-2008, 10:43 AM   #3
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forthurst HB User
Re: Not sure if it's CFS

There are many causes for fatigue. CFS normally has a sudden onset, usually after a viral illness like glandular fever (mononucleosis). It would be unwise to self-diagnose CFS without confirmation from a qualified physician.

 
Old 06-03-2008, 11:04 AM   #4
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Re: Not sure if it's CFS

My CFS was a sudden onset. Mine was caused from hormonal problems of the birth control pill. I was negative for mono and strep. I had to doctors and specialists. Thankfully I found a CFS specialist and researcher of CFS who was able to diagnose me within five minutes after all those many years.

CindyLou

 
Old 06-03-2008, 01:30 PM   #5
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Re: Not sure if it's CFS

Janey -

I was diagnosed just over 3 years ago. I had been working 80 hour weeks at my job in the summer times, and I was a full time college student in the Fall and Spring. It all started with me being tired. Abnormally tired. It didn't seem consistent except when it got really bad. Then it seemed hard to pull myself out of it. I like to describe it as this: I feel like on my bad days, my body is full of sand, and I am walking and breathign in water. Some days, it seems almost impossible to walk up the stairs. Now, it builds to that point, but I have felt it none the less.

My doc said I need to eat better, exercise, no diary - yada yada. Easier said than done.

I have tried countless things. One, is I have done a TON of research about it. I have never been one to sit around and "let things happen" to me. So, the books and countless articles say there is no cure, and once you have it, you are stuck with it forever. I don't believe it. I refuse to. I am 25 and I want to have kids - but I DO NOT want to pass this on to them. So I am trying my hardest to get through this.

So, here's what I have found...You will have good days and bad as you have noticed. The reason to eat healthy, and sleep when you need to and as long as you need to, drink less, quit smoking - yada yada - is because your immune system will stay stronger that way, and your body can handle stress better. Our bodies were not designed to handle enormous amounts of stress and anxiety (feeling alone adds to that). So, when we stress out, our bodies pump adreneline into our blood stream to get us through it. Well, when we pump enough adreneline (and our bodies are not equipped to generate a lot of adreneline), then our adrenal glands (which produce adreneline) get depleted. Once they get depleted or overworked, then our immune system starts to fail. Once that happens, we get sick more often and exhausted. This exhaustion is like having mono - it can last for a couple of weeks, or a couple of months. You want to account for "lag" time. Meaning, once you feel super tired, you may stop drinking and start eating better. BUT, it takes time for your body to get used to this new change in your habits. Once the good-eating and exercise becomes a habit, your body is happy again, and you aren't tired.

Crazy, huh? So, I love enjoying life as much as the next person. I like going out, and I like eating chocolate sometimes. Just try to have it in moderation so you don't hit a wall. I know it sucks. I KNOW!

For now, hang in there. It is important to talk it out, and write it out anyway - even if people don't fully understand. DON'T shut down!

You can get through this. Everyone on these message boards can. And I am not trying to be a cheerleader here, but I have needed to hear that countless times myself. It's ok to believe it.


 
Old 06-03-2008, 01:36 PM   #6
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Janey07 HB User
Re: Not sure if it's CFS

Thank you for the replies, I would welcome even more. To Forthurst, yes, I know there are other causes. I have told my dr. about this and he has checked my glucose & thyroid, which tested fine. I am post-menopausal about 8 years, and still have hot flashes, so I've had a suspicion that it could be hormonal. I have avoided estrogen replacement therapy, but a month ago started using the progesterone cream, and high doses of B-12. So far nothing has worked. I really hope it is not CFS, but have wondered about it a lot.

 
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