I assume that you are following Dr Myhill's treatment plan. I have just started this a month ago. Can I ask a few questions. |
What differences have you noticed since being on her treatment
I presume you got her free book which covered the whole subject of CFS and not just the problem of lowered cardiac output.
Her treatment is based on a lot of things I was doing already.
All her recommendations on subjects such as Pacing,Diet,Detoxing and the necessity of adequate good quality sleep as well as a complete spectrum of minerals, are equally important, but the need for 9 hrs sleep is fundamental IMO.
Pacing is also very important. CFS sufferers tend to be type A people, hard working, concientious and perfectionists, always on the go, and this makes it hard for us to realise we are like a car with only a gallon in the car tank and we need to drive our car(our bodies) at reduced speed and distance otherwise we run out of gas.
Its also important to check with a doctor that your adrenal glands and thyroid are working OK.
Are there any supplements that you think are more effective than others.
As far as which particular supplement for helping with cardiac insufficiency was best its hard to tell, but taking CoQ10,Acetyl-l-carnitine,Ribose and magnesium were certainly helpful. Selenium is also good as its needed to form glutathione the master cell protector.
An immune supplement is also essential, I use Beta1.3 glucan.
Did you react to any (I reacted to Mg and B12 injections and can't tolerate Acetyl L Carnitine)
Do you also have other allergies?
CFS means a high cell DNA die off and if you tend towards allergies this will be highlighted.
I once worked with a man who was bedridden for 3 years with CFS and forced to take early retirement. After nearly giving up in despair he consulted a specialist in allergies and she took him off all wheat and dairy and he was eventually back to normal and is now working again.
If you cant take injections of Mg can you take it orally?
If not taking baths regularly with a good dose of Epsom salts(Mg sulphate) will help.
You can also get sublingual B12 in the form of Hydroxycobalamin.
As far as carnitine is concerned,the only food with carnitine is meat and a serving will only give you 50 mg when you really need at least 1,000mg.
It may well be worthwhile cutting out wheat and dairy to see if your allergies improve.
Have you been tested for any of the common CFS viruses.
I dont have any EBV or CMV antibodies. CFS can be caused by stresses other than viral, such as phsychological and chemical.
Is there anything else that has helped you
Yes, prayer. When you dont know where your next ounce of strength is coming from it tends to focus the mind and meditation and prayer becomes easier especially if your bedridden. Of course all the old questions like 'Why me?'and 'What have I done to deserve this?' have to be gotten over first.
Once you realise that to a large extent the medical profession has at best very incomplete answers to CFS, prayer becomes much easier.
There seems to be at last a lot more research going on. I intend to start using a protocol soon, formulated by professor Martin Pall of Washington University. His protocol is based on restricting an excess of Nitric Oxide which is created by oxidative stress, affecting and damaging the mitochondria, which is the main cause of CFS, whether the cause is viral, phsychological or chemical.
I am also hearing good things about glisodin on some viral blogs. Its an SOD supplement which at high doses appears to counteract fatigue and in one person has changed their hair back from grey to black.