It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Chronic Fatigue Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 05-02-2009, 08:22 AM   #1
Senior Veteran
(female)
 
Join Date: Aug 2008
Location: GA
Posts: 1,463
neveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB User
CFS FMS Clinics

I found this clinic where this doctor specializes in just CFS & FMS. They even have an inpatient program. They do evaluation testing, behavioral therapy, and an exercise program. Manage sleep, pain, fatigue, congnitive dysfunction, allergies, & hormonal imbalance. Anyone ever tried a place like this and had any success? I would have to leave the state & go stay with my brother in order to go.

 
Old 05-02-2009, 05:16 PM   #2
Senior Veteran
(female)
 
jojo's Avatar
 
Join Date: Mar 2006
Location: California
Posts: 2,831
jojo HB Userjojo HB Userjojo HB Userjojo HB Userjojo HB Userjojo HB Userjojo HB Userjojo HB Userjojo HB Userjojo HB Userjojo HB User
Re: CFS FMS Clinics

Hi Neveragain...

No I have never been to one of those places. I just was wondering, what kinds of test have been ran on you?

Anything for bacteria's such as Chlamydia Pnumoniae, Mycoplasma Pnumoaniae, Lyme Disease or any other types of bacteria.

Have you had your thyroid tested for t-3 and t-4?

Have you been tested for any of the herpes family such as Cytomeglovirus, or Epstein Barr or any other viruses?

I was diagnoised with Fibro/CFS. Was told it was all in my head and due to stress......I thought what a bunch of crap that is. And kept searching for answers.
One can not tell me that the pain and fevers I was running had to do with stress or I was making it up....ugh....

What does this clinic do? What types of treatments.
Doctors can pump us full of pain pills and antidepressants (been there) and they don't cure the problems.

I have been diagnoised with everything I said above except the mycoplasma. Bacterias and viruses can cause pain, m.s. fibro, dementia, brain fog all of that and tons more.

I hope you can find your answers and find a treatment plan.

Jodie

 
Sponsors Lightbulb
   
Old 05-03-2009, 08:14 AM   #3
Senior Veteran
(female)
 
Join Date: Aug 2008
Location: GA
Posts: 1,463
neveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB User
Re: CFS FMS Clinics

Well I've been through my share of doctors that tried making me think it was all in my head too, dump their rear-ends in the nearest garbage disposal! Don't waist your time dealing with stupid retarded doctors like that. The only thing they are going to do for you is make you feel bad because you don't know what's wrong, which is at no fault of your own, and make you think your going crazy, when your not.

I have heard repeadedly that stress/depression can make you tired and hurt all over. I can't argue that it can't bring on fatigue, especially high stress, but it's temporary while the problems are occuring, and if you wasn't already drained, maybe it wouldn't be so easy for you to become so stressed out and depressed, and you probably would be able to handle it better.

I got sick when I was 26 with the CFS. The depression & fibromyalgia didn't occur until 4-5 years later. So I really can't blame this exhausting fatigue on depression. I got over the depression years ago and it occurred when my marriage went down hill & I was being mentally & sexually abused by my ex after I decided to divorce him. I stayed with him for sometime after we divorved because my kids did not want to leave. I went to overdosing and trying to kill myself. Then I had to deal with his family doing everything in their power to make my kids hate me. Darn, my son even got to the point that he held a gun to my head and said if you make me leave, I will shoot you. The family threatened to kill me. My ex took advantage of days I'd get in bed in my room (NOT HIS) and when I had taken a little too much medication over migranes I used to get, things happened I had no control over & that he knew I wouldn't want happening. I can't say he held me down but the horrific threats he made, was either do it or else this is what's going to happen was really messed up. I had post traumatic stress for a very long time afterwards. Divorces are an ugly thing to go through, especially when one acts like a freeking 2 year old baby. I eventually had to let my kids stay with him and they became aware of the fact of how DAD really was and how he blamed you for everything when you done nothing wrong. It took that to make them understand it wasn't all my fault like he claimed it was. And then they ended up coming back home to me. Actually my son was thrown out prior to coming back to stay with me, my ex tried to get him to fight him, and then tried running over top of him with my car. And doctors think I am the one with the mental health issues, okay. Well whatever.

My life is pretty much stress free now, except with my health issues. That is the only thing that makes me break down and cry. I am not living in a 24-7 depressed state of mind anymore and I tell you the truth, I do not at all feel at all better because of that. I have actually worsened with my health.

If a doctor isn't telling you why you feel this bad. Maybe your problems haven't manifested far enough for them to detect the problem. Or maybe they aren't keeping a close enough eye on you to see if it does manifest. Or maybe they just haven't done the appropriate testing to show what the problem is. Whatever makes a person feel this bad, I know without doubt, that you'd never get that down sick, without a very good reason. Something inside you is not working right and I would bet my life on that.

I have been tested for epstein bar (have it) and thryoid testing (TSH, T3, T4)was normal, also no to the bacteria testing, had ANA tests 1:320 titer, homogenous but was not specific, last one was negative, C-reactive, ESR (negative), sleep studies (have mild sleep disordered breathing), brain MRI without contrast (negative).

Health problems really run in my family. My mom stays really tired all of the time, my grandfather did too.

Sister: thyroid disease, Brother: severe sleep apnea, high cholesterol, high blood pressure, cerebral brain atrophy (that could kill him), unexplained pain to one side of his body. Mom: high cholesterol, high blood pressure, severe sleep apnea unexplained pain to one side of her body, osteoarthritis. Grandfather: heart disease, thyroid disease, diabetes, brain atrophy, sleep apnea that was untreated, lung disease. Grandmother: kidney disease, diabetes, heart disease. Grandfather: heart disease. Grandmother: heart disease, diabetes. Great Aunt: thyroid disease. Great aunt: died from ovarian cancer. 2 great aunts died from an annurism. Myself, my other sister, & my uncle: kidney stones. Uncle: mini-strokes, heart disease, fibromyalgia, arthritis. 1st & 2nd cousin: kidney disease. I could keep going here but I won't.

So I think we all are just cursed here or something. Bad genes!

I take Iodine every day and it is helping me from being severely tired to just tired. I think I have thyroid issues that have been missed. My grandfather's doctor said that I was genetically cursed to his hypothryoid disease, and said that it was rare (I don't know if that means auto-immune thyroid disease or what) and said that doctors don't do the testing that needs to be done to detect this (I would LOVE to know what that testing is). I have had my TSH, T3 & T4 checked and it's always been normal.

One thing that worries me more than anything right now is how my brain is completely zonking out and I don't at all realize what is going on around me. I could do something and not be aware of it or aware that life even exists. The other day I was at a stop sign, the light turns green, and I just sit there. These things periodically occur off/on. I really hope it's just the fatigue. I try to open my house door with the key door lock to my car on 4 different occassions. I went to the bathroom & after i was done, I find myself standing at the cabinet with the door open, no memory whatsover of even doing it. I know forgetfullness is normal with fatigue but this feels more like Dementa. Like someone with alzhemers who goes wondering off and not realizing what they are doing.

I am not currently in Charlotte but that is where this clinic is and I have family there so if I can get in, I'll proably go. They have a website online that explains what all they do: http://www.drlapp.net

 
Old 05-12-2009, 08:49 PM   #4
Senior Veteran
(female)
 
Join Date: Aug 2008
Location: GA
Posts: 1,463
neveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB User
Re: CFS FMS Clinics

This doctor wants $350 an hour, AN HOUR! and will not take insurance. And says it usually takes several hours at an appt.

How is anybody in their right mind, that is not a millionaire, able to afford that?

Specialists in my area get paid $75 to $100 an hour. So $350 ++++++ Really sounds a bit out of wack to me.

So, I'm not going..

 
Old 05-13-2009, 05:31 AM   #5
Senior Veteran
(female)
 
jojo's Avatar
 
Join Date: Mar 2006
Location: California
Posts: 2,831
jojo HB Userjojo HB Userjojo HB Userjojo HB Userjojo HB Userjojo HB Userjojo HB Userjojo HB Userjojo HB Userjojo HB Userjojo HB User
Re: CFS FMS Clinics

Hi neveragain, sorry you hit another wall. Can you turn the receipts into your insurance and be refunded?

I have also heard of people going to Vanderbilt Medical Center in TN., that have cfs,fibro. You might want to look them up on the net and call them to see if they can help you.

You might find some answers if you get a doctor to test you for the things I mentioned in my other post. There is always a reason why your body and brain are doing these things. My doctor says, a huge percentage of people's problems are bacterial or viral.

Hope you find some answers soon!

Jodie

 
Old 05-16-2009, 02:26 PM   #6
Senior Veteran
(female)
 
Join Date: Aug 2008
Location: GA
Posts: 1,463
neveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB User
Re: CFS FMS Clinics

No because I get medicaid through Social Security. Well heck, even if I went, I really don't think the reason behind why I feel this way is going to show up. I'm sick of hoping that it will. I'm sick of wondering what it is. I'm sick of having tests done. I'm sick of running back & forth to doctors. I'm sick of it all! The only thing these people can do for me is introduce me to proper nutrition and make me exercise. Well I can make myself do that as unpleasant as it is. And I will, every day from now on, until I kick myself out of this bull snot fatigue.

I'm 160 lbs, really don't think I'm extreme in overweight to cause this, but truth is, I have too much weight on my belly, I can only do about 3 situps, I get short of breath from the least bit of exertion, I almost spranged my ankle just walking today, that is how pathetically out of shape I am. Seriously, hurts to exercise. My hips/legs OMG. I can barely do it but I guess time will heal that problem.

Thanks for trying to help me, but this is a hopeless issue as far as a test showing what is wrong. I am giving up on that as of right now.

Last edited by neveragain444; 05-16-2009 at 02:29 PM.

 
Old 05-17-2009, 06:52 AM   #7
Senior Veteran
(female)
 
Join Date: Aug 2008
Location: GA
Posts: 1,463
neveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB User
Re: CFS FMS Clinics

I took 3 walks yesterday and by the time I tried going to sleep last night, I couldn't. I had to double up on my sleeping pill. It was amazing. I didn't want to go to sleep (I wasn't tired) but my TMJ/Bruxism was flared up so bad, I couldn't handle the pain. But the energy rush I had, I am unbelievably amazed by.

I sware if this extra amount of exercising fixes me, I am going to take a ball bat to my head and pop myself a good one.

I have been suffering 12 years of disabling fatigue. I can't imagine walking 3 times a day is going to fix that, if that's all I had to do to feel better though, I am going to beat myself up!!!!!!!!!!!!!!!!

I am not lazy regardless of what people have said to me. The claim that not doing nothing means your lazy. When this happened to me, it wasn't because I wasn't doing anything! GRRRRRRRRRRRRRRRRRRRRRR. It's just been so bad, that it made me not want to do anything. I may not have been exercising at the time, but I was doing other things, and why is it that some people don't ever exercise, yet they don't stay tired because of it?

I would jump off a darn cliff if it meant I'd feel better. Those "lazy" remarks really hurt. I mean, at one point and time, I wanted to die over this, it was so devistating to me. So when someone acts like this is nothing but my own fault, yea I get mad!

Maybe getting married was my downfall. He was so jealous, he made me stop talking to all of my friends. I stopped drinking, and that equals misery + boredum... My husband may as well of been 80 years old. All he wanted to do was hang around at flea markets & yard sales & obsess over antiques. At the age I was then, that was so freekin boring! Yea now I don't mind it so much. LMAO. I had another kid, start putting on too much weight. Then he turned out to be the biggest jerk you could ask for. No, that did not end so well. Like trying to divorce the mofia.

Well, if this works, I will be back to let you all know how it's going.

 
Old 05-19-2009, 02:37 PM   #8
Senior Veteran
(female)
 
Join Date: Aug 2008
Location: GA
Posts: 1,463
neveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB User
Re: CFS FMS Clinics

I'm not sure I'd recommend walking 3 times a day to someone with both CFS and Fibromyalgia. It's too much. The pain you have to endur if your not used to being physically active, it's horrible. But I without question, have more energy during the day. Evening time though, I crash, and I really want to go to bed way too early. I'm not sleeping good either since I started this.

Don't know how it's all going to work out but I think it will eventually make a difference with my fatigue. It's actually already made at least a 40% change in the way I feel. The Fibro though, it is that much worse.

 
Old 05-22-2009, 11:41 PM   #9
Senior Member
(female)
 
byoung6's Avatar
 
Join Date: Jan 2009
Location: Martinsville,Ohio,us
Posts: 122
byoung6 HB Userbyoung6 HB Userbyoung6 HB Userbyoung6 HB User
Re: CFS FMS Clinics

when your younger it all in your head because of homones and stress of being child-bearing age, when your in the middle its pre-menopause, later its the menopause, still all in your head and your nerves, or I should say "stress", got no stress now, well its that thing that happened to you when you were 8yrs old or 15yrs. old or 25 years old. But its still in your head. Apparently the only thing a women can get thats not in her head is pregnancy and broken bones!

 
Old 05-29-2009, 09:14 AM   #10
Senior Veteran
(female)
 
Join Date: Aug 2008
Location: GA
Posts: 1,463
neveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB User
Re: CFS FMS Clinics

Quote:
Originally Posted by byoung6 View Post
when your younger it all in your head because of homones and stress of being child-bearing age, when your in the middle its pre-menopause, later its the menopause, still all in your head and your nerves, or I should say "stress", got no stress now, well its that thing that happened to you when you were 8yrs old or 15yrs. old or 25 years old. But its still in your head. Apparently the only thing a women can get thats not in her head is pregnancy and broken bones!
I can't believe these kind of remarks from people, including the one's that have sit and actually watch you suffer, still think it's funny to say your not sick, your just lazy.

Who in their right mind would purposely make themselves feel this way?

And to add another insult on top of the one you already have, your doctor can't give you any really reasonable explanation for it.

I wish I had the medical knowledge to know exactly how your body operates and know where all your energy comes from and what all would cause it to go hay wire but I don't know.

What I do know though, is that IT IS NOT YOUR FAULT. People who say that don't understand and they don't have the first clue as to what your going through. If they did, they'd never let such shxt utter out of their mouths the begin with.

 
Old 05-30-2009, 07:48 AM   #11
Senior Member
(female)
 
byoung6's Avatar
 
Join Date: Jan 2009
Location: Martinsville,Ohio,us
Posts: 122
byoung6 HB Userbyoung6 HB Userbyoung6 HB Userbyoung6 HB User
Re: CFS FMS Clinics

Exactly! who in their right mind would make themselves feel this way?! I have used those words exactly, and I have described it as its like my whole body has gone haywire too. Thats what it feels like! But I guess those are to vague description of symptoms for doctors, "haywire". I'm too drained and weak to move, but I'm not sleepy so I can't sleep. Or I hurt so bad I can't sleep. Boy did I learn to hate that antidepressant commerical that used to run that said depression hurts, because as soon as it started running my old GP decided it was depression, even said it," well honey, depression hurts..." I'll tell you what hurts, PAIN!, electrical zaps, sore joints, sore muscles,sore ligements, sore tendons, and all this traveling around your whole body all day everyday! Bone crushing fatigue that you never shake, you try vitamins, diet, excersize, herbs, cleanses,read this book, read that one , talk to a counsellor, what IS wrong with me? I was 47 years old when my body finally said "THATS IT!" and went after my heart, (diastolic dysfuction)and some kind of funky blood pressure thing where I have spells of my BP dropping and dropping over and over, then they found pre-diabetes, then neuropathy in my legs and arms, then my eyes went funky and I got a palsy in my eye and facial neuralgia. I'm so mad that it had to on so long and damage had to get so stark that even the the doctors got scared. Emg's, blood tests, mri's cardio caths, finally started to tell the story of the damage. Yes, my nerves are shot all the time, and I have been dealing with fibro fog a long time. What do they expect? I have been going to a psychologist for 5 months now just to sort things out, he's helped me alot with coping with my illness. I knew he could help me when he said at my first visit, " Pain and fatigue make you crazy, your not crazy because you have pain or fatigue, your being tortured, and torture by definition messes with your mind." Now He wasn't saying I was "crazy" in a clinical way but I knew I had become very emotional about everything and that part of my conditions was that I do not think clearly sometimes, this is very scarey, He has helped me cope, with all this. Given me tools and validated my feelings. Any reasonable person would get frustrated and angry when their body lets them down and doctors don't seem to listen. They listen NOW, and now I realize that far from being lazy, or hormonal or whatever else I have had to listen to all these years. I AM one of the strongest women in the whole freaking world, both physically and emotionally. I managed to work and raise 2 kids, keep a house, raise a garden, put up with a total jerk of a husband for all those years and do it by sheer will of mind and spirit. I had almost superhuman determination when I look back. Now, It has just all kind of come together with a vengance and layed me out. My strong will couldn't overcome my body anymore. My mental toughness failed me, I guess I'm just human afterall. But, its alright, I'm not afraid anymore.
I want anyone reading this to understand, its YOUR body, you know when something is not right, Doctors aren't God, and your not stupid or hysterical. If you think something is wrong, find somebody who can either help you find what it is or satisfy you that its nothing. But don't just take it if your not convinced of what ANY doctor says.
Sorry for such a long post, and hope its ok in this thread.

 
Old 06-11-2009, 09:54 AM   #12
Senior Veteran
(female)
 
Join Date: Aug 2008
Location: GA
Posts: 1,463
neveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB User
Re: CFS FMS Clinics

LOL. Those commercials always made me sick too. Drug companies are sending a clear message that depression causes both pain and fatigue. And when they start making antidepressants to treat Fibromyalgia, I think they're thinking your Fibromyalgia is being caused by depression. So they think if they alter your mood neurotransmitters, you'll feel better. So why don't they just blood test your serotonin level to see if your deficient and need that medication, because the truth is, most of us aren't. And then they wouldn't make that billion dollars on their new drug. I have never had an antidepressant help my mood and I took them for years and I know that is why I stayed so depressed, I first overdosed on a antidepressant. I got over the depression and it was after I finally quit taking that crap. Until last week, my doctor puts me on Savella and after years of being okay, it all comes back. But even when I wasn't going through depression, I was sick. If a doctor was to treat me that way and act like my problems were depression, I'd stick my foot right up his ____ & find a new doctor. There's no way I'd put up with that, nor should anyone!

 
Old 06-11-2009, 12:32 PM   #13
Veteran
(female)
 
Join Date: Jan 2008
Location: Illinois
Posts: 439
nscrbug HB User
Re: CFS FMS Clinics

Quote:
Originally Posted by neveragain444 View Post



I take Iodine every day and it is helping me from being severely tired to just tired. I think I have thyroid issues that have been missed. My grandfather's doctor said that I was genetically cursed to his hypothryoid disease, and said that it was rare (I don't know if that means auto-immune thyroid disease or what) and said that doctors don't do the testing that needs to be done to detect this (I would LOVE to know what that testing is). I have had my TSH, T3 & T4 checked and it's always been normal.
I believe the testing you would need to detect an auto-immune thyroid condition (Hashimoto's or Graves) is the antibody tests. Go to the thyroid board and I'm sure you will find the specific antibodies that they test for...or just post on there and ask...there are some really knowledgeable folks over there that truly know a wealth of information about thyroid disease.

Last edited by nscrbug; 06-11-2009 at 12:34 PM.

 
Old 06-15-2009, 02:18 PM   #14
Junior Member
(female)
 
Join Date: Feb 2009
Location: Warren, OH
Posts: 33
melody1 HB User
Re: CFS FMS Clinics

You are so correct and good for you hang in there you can do it

 
Old 06-18-2009, 11:35 AM   #15
Senior Veteran
(female)
 
Join Date: Aug 2008
Location: GA
Posts: 1,463
neveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB Userneveragain444 HB User
Re: CFS FMS Clinics

I had my TPO checked, negative. Really shocked me. I must accept the fact I will never know the reason behind why I stay so tired. That's a tough thing to do. It's just so hard for me to comprehend how a test wouldn't show what's wrong.

My CFS, auto-immune dysfunction, there's no way it's true. I was around my mom on mother's day, she had pnemonia, she hugged my daughter (really nice of her huh) and my daughter got fevered up & a sore throat, + cold symptoms, my neice, same thing, + spitting up green mucus, and I took all of them to the doctor, didn't get at all sick. I just don't believe my immune system is shot. Looks like to me it's working pretty darn good.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Free Clinics BlueAtlas Back Problems 3 01-29-2010 12:31 PM
Pain Clinics, do they really help?????GRRRR dolejaly Chronic Pain 3 04-22-2009 01:45 PM
Do insurances pay for pain clinics Anna hanson Pain Management 3 11-06-2008 06:30 PM
Trying to get some information on Pain Management Clinics jackson44 Pain Management 2 04-09-2008 05:36 PM
Clinics in Pharmacies keg General Health 1 02-02-2007 11:30 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



paulapage1980 (3), wigs123 (3), Brodie179 (3), ladybud (3), mare50 (3), RickinOH (3), CFIDS (3), sleepykitty44 (3), microwave (2), proudARMYmom (2)

Site Wide Totals

teteri66 (1180), MSJayhawk (1013), Apollo123 (909), Titchou (856), janewhite1 (823), Gabriel (763), ladybud (755), midwest1 (671), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 01:39 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!