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Old 05-02-2009, 09:22 AM   #1
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CFS FMS Clinics

I found this clinic where this doctor specializes in just CFS & FMS. They even have an inpatient program. They do evaluation testing, behavioral therapy, and an exercise program. Manage sleep, pain, fatigue, congnitive dysfunction, allergies, & hormonal imbalance. Anyone ever tried a place like this and had any success? I would have to leave the state & go stay with my brother in order to go.

 
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Old 05-02-2009, 06:16 PM   #2
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Re: CFS FMS Clinics

Hi Neveragain...

No I have never been to one of those places. I just was wondering, what kinds of test have been ran on you?

Anything for bacteria's such as Chlamydia Pnumoniae, Mycoplasma Pnumoaniae, Lyme Disease or any other types of bacteria.

Have you had your thyroid tested for t-3 and t-4?

Have you been tested for any of the herpes family such as Cytomeglovirus, or Epstein Barr or any other viruses?

I was diagnoised with Fibro/CFS. Was told it was all in my head and due to stress......I thought what a bunch of crap that is. And kept searching for answers.
One can not tell me that the pain and fevers I was running had to do with stress or I was making it up....ugh....

What does this clinic do? What types of treatments.
Doctors can pump us full of pain pills and antidepressants (been there) and they don't cure the problems.

I have been diagnoised with everything I said above except the mycoplasma. Bacterias and viruses can cause pain, m.s. fibro, dementia, brain fog all of that and tons more.

I hope you can find your answers and find a treatment plan.

Jodie

 
Old 05-03-2009, 09:14 AM   #3
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Re: CFS FMS Clinics

Well I've been through my share of doctors that tried making me think it was all in my head too, dump their rear-ends in the nearest garbage disposal! Don't waist your time dealing with stupid retarded doctors like that. The only thing they are going to do for you is make you feel bad because you don't know what's wrong, which is at no fault of your own, and make you think your going crazy, when your not.

I have heard repeadedly that stress/depression can make you tired and hurt all over. I can't argue that it can't bring on fatigue, especially high stress, but it's temporary while the problems are occuring, and if you wasn't already drained, maybe it wouldn't be so easy for you to become so stressed out and depressed, and you probably would be able to handle it better.

I got sick when I was 26 with the CFS. The depression & fibromyalgia didn't occur until 4-5 years later. So I really can't blame this exhausting fatigue on depression. I got over the depression years ago and it occurred when my marriage went down hill & I was being mentally & sexually abused by my ex after I decided to divorce him. I stayed with him for sometime after we divorved because my kids did not want to leave. I went to overdosing and trying to kill myself. Then I had to deal with his family doing everything in their power to make my kids hate me. Darn, my son even got to the point that he held a gun to my head and said if you make me leave, I will shoot you. The family threatened to kill me. My ex took advantage of days I'd get in bed in my room (NOT HIS) and when I had taken a little too much medication over migranes I used to get, things happened I had no control over & that he knew I wouldn't want happening. I can't say he held me down but the horrific threats he made, was either do it or else this is what's going to happen was really messed up. I had post traumatic stress for a very long time afterwards. Divorces are an ugly thing to go through, especially when one acts like a freeking 2 year old baby. I eventually had to let my kids stay with him and they became aware of the fact of how DAD really was and how he blamed you for everything when you done nothing wrong. It took that to make them understand it wasn't all my fault like he claimed it was. And then they ended up coming back home to me. Actually my son was thrown out prior to coming back to stay with me, my ex tried to get him to fight him, and then tried running over top of him with my car. And doctors think I am the one with the mental health issues, okay. Well whatever.

My life is pretty much stress free now, except with my health issues. That is the only thing that makes me break down and cry. I am not living in a 24-7 depressed state of mind anymore and I tell you the truth, I do not at all feel at all better because of that. I have actually worsened with my health.

If a doctor isn't telling you why you feel this bad. Maybe your problems haven't manifested far enough for them to detect the problem. Or maybe they aren't keeping a close enough eye on you to see if it does manifest. Or maybe they just haven't done the appropriate testing to show what the problem is. Whatever makes a person feel this bad, I know without doubt, that you'd never get that down sick, without a very good reason. Something inside you is not working right and I would bet my life on that.

I have been tested for epstein bar (have it) and thryoid testing (TSH, T3, T4)was normal, also no to the bacteria testing, had ANA tests 1:320 titer, homogenous but was not specific, last one was negative, C-reactive, ESR (negative), sleep studies (have mild sleep disordered breathing), brain MRI without contrast (negative).

Health problems really run in my family. My mom stays really tired all of the time, my grandfather did too.

Sister: thyroid disease, Brother: severe sleep apnea, high cholesterol, high blood pressure, cerebral brain atrophy (that could kill him), unexplained pain to one side of his body. Mom: high cholesterol, high blood pressure, severe sleep apnea unexplained pain to one side of her body, osteoarthritis. Grandfather: heart disease, thyroid disease, diabetes, brain atrophy, sleep apnea that was untreated, lung disease. Grandmother: kidney disease, diabetes, heart disease. Grandfather: heart disease. Grandmother: heart disease, diabetes. Great Aunt: thyroid disease. Great aunt: died from ovarian cancer. 2 great aunts died from an annurism. Myself, my other sister, & my uncle: kidney stones. Uncle: mini-strokes, heart disease, fibromyalgia, arthritis. 1st & 2nd cousin: kidney disease. I could keep going here but I won't.

So I think we all are just cursed here or something. Bad genes!

I take Iodine every day and it is helping me from being severely tired to just tired. I think I have thyroid issues that have been missed. My grandfather's doctor said that I was genetically cursed to his hypothryoid disease, and said that it was rare (I don't know if that means auto-immune thyroid disease or what) and said that doctors don't do the testing that needs to be done to detect this (I would LOVE to know what that testing is). I have had my TSH, T3 & T4 checked and it's always been normal.

One thing that worries me more than anything right now is how my brain is completely zonking out and I don't at all realize what is going on around me. I could do something and not be aware of it or aware that life even exists. The other day I was at a stop sign, the light turns green, and I just sit there. These things periodically occur off/on. I really hope it's just the fatigue. I try to open my house door with the key door lock to my car on 4 different occassions. I went to the bathroom & after i was done, I find myself standing at the cabinet with the door open, no memory whatsover of even doing it. I know forgetfullness is normal with fatigue but this feels more like Dementa. Like someone with alzhemers who goes wondering off and not realizing what they are doing.

I am not currently in Charlotte but that is where this clinic is and I have family there so if I can get in, I'll proably go. They have a website online that explains what all they do: http://www.drlapp.net

 
Old 05-12-2009, 09:49 PM   #4
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Re: CFS FMS Clinics

This doctor wants $350 an hour, AN HOUR! and will not take insurance. And says it usually takes several hours at an appt.

How is anybody in their right mind, that is not a millionaire, able to afford that?

Specialists in my area get paid $75 to $100 an hour. So $350 ++++++ Really sounds a bit out of wack to me.

So, I'm not going..

 
Old 05-13-2009, 06:31 AM   #5
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Re: CFS FMS Clinics

Hi neveragain, sorry you hit another wall. Can you turn the receipts into your insurance and be refunded?

I have also heard of people going to Vanderbilt Medical Center in TN., that have cfs,fibro. You might want to look them up on the net and call them to see if they can help you.

You might find some answers if you get a doctor to test you for the things I mentioned in my other post. There is always a reason why your body and brain are doing these things. My doctor says, a huge percentage of people's problems are bacterial or viral.

Hope you find some answers soon!

Jodie

 
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