Originally Posted by jonathon003
anyone else been reading about the recent xmrv studies?? dont want to get anyone's hopes up, but they DO sound very promising.
Well, I looked up XMRV and am reading myself blind! You are so right; this sounds
very promising not only for CFS, but for other illnesses as well. It seems the Whittemore Peterson Institute has done something quite amazing, doesn't it? I'm watching for the replication studies, though, before I ask for the test, even though the National Cancer Institute and the Cleveland Clinic, all esteemed researchers, were in on the pilot study. That study showed that 67 out of 101 patients had XMRV in their blood and 95 (or was it 98?) percent had antibodies to it. The alarming thing to me was that it was in 3.7% of the 'controls'! That adds up to a lot of people.
Maybe it is just another virus like EBV or HHV6 or CMV that rears its ugly head because the immune system is lowered for some reason (many of the study patients had something called R Nase L deficiency (don't understand that at all, at all), which may have made them susceptible to this new virus.
What scares me is that it is a Retrovirus, like HIV and HTLV I-II. It can enter into the genetic structure of the patient and be passed on from mother to child. Now that is very bad. It was in Discovery magazine (#55) as one of the biggest 'finds' in science in the last decade.
Seventy-five scientists/researchers met at the Cleveland Clinic in November, I believe, to begin the process of replication studies (and in fact, it's being done all over the world as I write), and to begin to find a fast test that will protect the blood supplies of the world. That tells me they think this is very important. In fact, the publication in Science magazine is indicative of how well this study was done; they are the most prestigious in the world, and their publication criteria is very stringent. I read that the WPI had to make them include the words CFS in the article, that the WPI founders have a daughter with CFS, and she is mostly wheelchair bound from the illness. The Nevada legislature helped fund them in order for them to be able to have the space and equipment to do the research. Bless their hearts!
I've always said "NO TEST=NO HELP=NO HOPE" but how I'm looking forward
to a test, help and hope all of a sudden. May we all get it soon.