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Old 07-22-2010, 10:55 AM   #1
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Soodle HB User
Unhappy cut down in the prime of life

Have been suffering with this for 7 years since I was 25 and feel that I've been cut down in the prime of life. Is also putting pressure on my marriage as I have twin boys and am not able to help out with them as much as possible. Feel so low some of the times, like my aspirations and ambitions for life are all wrecked.

My symptoms are:

Fatigue, constant tiredness - sometimes can't get out of bed for lack of energy
Muscle tension in chest/neck/throat head which is only stopped with Ativan
Headaches
nausea
Vision problems - flashes, stars etc
shortness of breath
Excercise intollerance
Heart rate races when I stand up or do anything active

I've had lots of tests such as ECG's, Holter test, Stress ECG, Echo cardiogramme, xray and numerous blood tests though I can't recall what they were all for.

Are there any tests I should have e.g. - blood tests to check for a deficiency that could explain all this besides the obvious ones like Thyroid, blood count.
so desperate to find a solution as my quality of life is so bad.

My specialist (psych) currently has me on Ativan, an antidepressent (we keep changing to see which one will work best for me) and Tramadol which gives me a slight boost (i also drink a lot of caffeigne without which I don't think I'd ever get out of bed).

Any thought would be very welcome.

 
Old 07-23-2010, 12:13 PM   #2
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Location: AZ
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luvmyfamily924 HB User
Re: Loosing will to live, please help me

Quote:
Originally Posted by Soodle View Post
Have been suffering with this for 7 years since I was 25 and feel that I've been cut down in the prime of life. Is also putting pressure on my marriage as I have twin boys and am not able to help out with them as much as possible. Feel so low some of the times, like my aspirations and ambitions for life are all wrecked.

My symptoms are:

Fatigue, constant tiredness - sometimes can't get out of bed for lack of energy
Muscle tension in chest/neck/throat head which is only stopped with Ativan
Headaches
nausea
Vision problems - flashes, stars etc
shortness of breath
Excercise intollerance
Heart rate races when I stand up or do anything active

I've had lots of tests such as ECG's, Holter test, Stress ECG, Echo cardiogramme, xray and numerous blood tests though I can't recall what they were all for.

Are there any tests I should have e.g. - blood tests to check for a deficiency that could explain all this besides the obvious ones like Thyroid, blood count.
so desperate to find a solution as my quality of life is so bad.

My specialist (psych) currently has me on Ativan, an antidepressent (we keep changing to see which one will work best for me) and Tramadol which gives me a slight boost (i also drink a lot of caffeigne without which I don't think I'd ever get out of bed).

Any thought would be very welcome.
Hi Soodle.
It really sounds like you suffering from depression which you probably already know since you are seeing a psychiatrist. I really think you have been taking the wrong medication. Tramadol is for moderate to severe pain. It's side effects are almost everything you described you are feeling. Then you mentioned you are on Ativan. Ativan is a anti anxiety med not an antidepressant. It just works to control your level of anxiety... keep you calm. It is also highly addictive.
You need to get the right antidepressant and maybe find out about an breathing exercises you could do once or twice a day and start being active by walking for 10 minutes everyday and increase as you start to feel some energy coming back.
Also, Tramadol has nothing in it that is supposed to give you a "boost" on the contrary it makes you want to lie down.
It would not be a bad idea to get blood tests to check everything.

Research these meds and you will see what they do.
Take care,
LMF

 
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Old 07-23-2010, 02:38 PM   #3
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dhurlbert3 HB Userdhurlbert3 HB Userdhurlbert3 HB User
Re: Loosing will to live, please help me

I would have the dr run a full thyroid panel and possibly a thyroid ultrasound to make sure it isnt enlarged. Thats how they found my problem..... Hypothyroidism and a mass in the thyroid. Keep pushing the dr until you are satisfied with the results.

 
Old 07-23-2010, 03:02 PM   #4
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Re: Loosing will to live, please help me

I would ask for a thyroid panel. I have thyroid disease, which has many of the symptoms of chronic fatigue, and I recently read a book called "Overcoming Thyroid Disorders" by Dr David Brownstein, MD. In addition to thyroid he goes over related diseases like chronic fatigue and he said that in his practice he has never once seen a chronic fatigue patient who did not also have thyroid disease, and that it's not possible to recover from chronic fatigue without treating the underlying thyroid problem as well. Now, this is just one doctor's opinion, so who knows but I think it'd be worth it to get the simple blood tests to check for any possible thyroid disorder.

Good luck- I hope you are able to get this fixed. Please don't give up!

 
Old 07-25-2010, 07:32 PM   #5
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Location: Friendswood, TX
Posts: 76
jshu43 HB User
Re: cut down in the prime of life

So sorry Soodle that things are so tough. It's very hard when you really don't know what's wrong. It's like fighting with the wind.

Of course there are some bits of advice you may have already tried - try to see if you can do any exercise - a few stretches, etc - that will help many problems - your mood, your pain, etc. Thyroid tests like you mentioned, but it sounds like you have had a lot of tests. At this point, you may have to accept that there is nothing medicine has right now that will make much of a difference. I know that's hard to cope with! But, you just have to do little things - eat healthy, maybe get B12 shots, CoQ10 seems to help some people, get a bit of stretching in, perhaps pool exercise. Then focus on positive thinking. For me, my faith has really seen me through. I try to put things in a positive point of view. For instance, when I am utterly exhausted and someone asks how I am doing, I say something like "I am working on getting some strength." You would be surprised how that actually is helpful.

I try to do what I can for others. I write my son a note telling him how much he means to me, I pray for others, I try to be an ear for those who need a friend. But it's very frustrating not to be able to more - especially when your twins are so small!

Just be an example for them of strength in suffering right now. Tomorrow may bring healing and health, but for today, you just play with the cards you are dealt with.

I know how down one can get when your life is going by. I've had dreams where everyone around me were talking and having a good time, and all I could do is sleep. But you need someone you can talk to. Someone who can understand. You are not alone, many can understand what you are going through. But you are made for a purpose, and I believe that your life is important. Sending you good thoughts!

 
Old 07-25-2010, 07:34 PM   #6
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jshu43 HB User
Re: cut down in the prime of life

Another thought - have you had a sleep study? I think a lot of people suffer from sleep apnea that affects their health and they have no idea.

 
Old 07-28-2010, 02:29 AM   #7
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jamesgordon HB User
Re: cut down in the prime of life

do you have painless enlarged lymph nodes??? with your cfs?

 
Old 07-28-2010, 06:04 AM   #8
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sarahke HB User
Re: cut down in the prime of life

Hi Soodle,
Have had CFS/Fibro for about 5 years now and I have experienced all of those problems. The problem is there is no definitive diagnosis as far as I can tell, however, the Canadian Guidelines for diagnosis for CFS were good in that for me it gave me a diagnosis which blood and other tests couldn't.
The only other tests I have found to be indicative of CFS are "leaky gut" which showed mannitol/lactulose absorption problems and also I had another gut test (can't remember which) that indicated quite exteme gut dysfunction.
In addition to your symptoms above I have also had sleep problems (mainly problems getting to sleep) and also gut problems, although over the course of CFS my symptoms have varied, with different ones occurring at different times.
Most doctors recommend a antidepressant for this, but otherwise management has been very careful exercise, being kind to myself, avoiding stress (mental, physical and emotional) and patience.
Good luck with it....perhaps read the canadian guidelines for chronic fatigue syndrome and see if this fits what you are experiencing.

 
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