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Old 02-24-2011, 02:25 PM   #1
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new here hello :)

Hi my name is mandy and i was only diagnosed with m.e./cfs three weeks ago.
I had been feeling terrible for a while and my doctor thought my symptoms were all in my head until i started feeling worse and then i was diagnosed.
My symptoms are:
bad muscle and joint pain (gets so bad i find it hard to walk)
headaches
Chronic exhaustion all the time which gets worse with minor exertion
Sweating
low appetite
Nausea
Forgetfulness
Dizziness




Can anybody relate? Its really frustrating not being able going short trips around town or going to my friends house.When im bad i can't get out of bed and the pain's bad.Thanks for reading.It feels good to talk about it

 
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Old 03-12-2011, 10:23 AM   #2
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Re: new here hello :)

Quote:
Originally Posted by DaniaNeicus View Post
My symptoms are:
bad muscle and joint pain (gets so bad i find it hard to walk)
headaches
Chronic exhaustion all the time which gets worse with minor exertion
Sweating
low appetite
Nausea
Forgetfulness
Dizziness
Did your doctor first try to eliminate other possible causes for your symptoms? For example, muscle and joint pain could be arthritis. And exhaustion could be caused by disrupted sleep or "sleep apnea". Sweating and dizziness could be caused by dehydration.

Perhaps one thing, like sleep apnea, might trigger the others.

What did your doctor suggest that you do? Did he/she suggest any form of treatment?

 
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Old 03-12-2011, 11:08 AM   #3
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Re: new here hello :)

its not arthritis as i had blood tests done for it.The doctors never suggested sleep apnea im on sleeping tablets for insomnia.I recently moved doctors back to my old doctor and a doctor in his practice has been trying me on anti-inflammatorys which only help a tiny bit.Im going to see the main doctor on tuesday.I dont think its dehydration i drink a lot of fluids.

 
Old 03-15-2011, 10:18 AM   #4
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Re: new here hello :)

Quote:
Originally Posted by DaniaNeicus View Post
Im going to see the main doctor on tuesday.
After you see the doctor, let us know what happened if there are any new developments/suggestions/treatments.

 
Old 03-15-2011, 02:57 PM   #5
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Re: new here hello :)

he didnt do much to be honest just gave me more melfen.Feeling terrible.Terrible pains in arms and legs and ankles.

 
Old 03-20-2011, 05:04 AM   #6
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Re: new here hello :)

I know just what you are going through. I have been suffering from this for about a year now. I found large doses of prednisone (100 tablets) helped me when I had to go overseas, but as soon as the medicine wears off, back comes the fatigue and pain. I am also suffering from fybromyalgia. My specialist has given me a pain killer, but I have only been on it for 5 days, so have not seen any improvements yet.

 
Old 03-20-2011, 05:07 AM   #7
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Re: new here hello :)

my doctor seems to think its related to my mental health =/im on melfen for it but im still sore.I'm really tired too. Ah well nothing can be done.

 
Old 03-20-2011, 06:03 AM   #8
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Re: new here hello :)

CFS is not a mental health problem. I would try another doctor. Is he saying you are depressed? Because I was put on anti-depressants and it never helped. It is linked to stress though.

 
Old 03-20-2011, 06:13 AM   #9
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Re: new here hello :)

yeah im already on anti-depressants but they don't work that much.I don't think my depression is related to my me/cfs.

 
Old 03-20-2011, 06:20 AM   #10
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Re: new here hello :)

Well, we seem to be suffering from the same illnesses. Will keep in contact to see how it goes with you.

 
Old 03-20-2011, 06:27 AM   #11
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Re: new here hello :)

ok that sounds like a plan

 
Old 03-22-2011, 08:18 AM   #12
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Re: new here hello :)

Quote:
Originally Posted by DaniaNeicus View Post
Hi my name is mandy and i was only diagnosed with m.e./cfs three weeks ago.
How did your doctor arrive at this diagnosis? Was it a process of elimination? Is there a specific test for CFS?


Quote:
low appetite....nausea
How about diet? Wouldn't that be something worth looking at? Is it possible you may be eating something that may have an adverse effect on your system? Or, could there be something missing from your diet? Some nutrient? Most doctors are not nutritionists or dietitions.

Could "low appetite" cause you to eat too few calories or the "wrong" foods? And could "low appetite" translate to low energy and fatigue? If there's any possibility, it should be explored.

 
Old 03-23-2011, 05:25 AM   #13
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Re: new here hello :)

Quote:
Originally Posted by DaniaNeicus View Post
Hi my name is mandy and i was only diagnosed with m.e./cfs three weeks ago.
I had been feeling terrible for a while and my doctor thought my symptoms were all in my head until i started feeling worse and then i was diagnosed.
My symptoms are:
bad muscle and joint pain (gets so bad i find it hard to walk)
headaches
Chronic exhaustion all the time which gets worse with minor exertion
Sweating
low appetite
Nausea
Forgetfulness
Dizziness
Can anybody relate? Its really frustrating not being able going short trips around town or going to my friends house.When im bad i can't get out of bed and the pain's bad.Thanks for reading.It feels good to talk about it
hello there. i have also experienced chronic fatigue for a while now(5 Years) until now. The best thing that you can do is have a hair analysis done so that you can see if there are heavy metals that are too high in the body. i have excessive amounts of copper in my system that are causing a chain reaction of problems in the body, with the outcome being "chronic fatigue" you might have this or another type of heavy metal in the body that blocks certain minerals from working as they should. this causes deficiency of minerls and vitamins, which as i said before, causes a major chain reaction through out the body. You need to find a naturopath or a nutritional medicine doctor that does a hair analysis cause im not sure if all of them do it. Remember this, medication is only masking what is truly going on in the body. for everything, think about finding the root cause, not treat the symptom as medication mainly does.

Last edited by Perthman; 03-23-2011 at 05:28 AM.

 
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Old 04-03-2011, 04:24 PM   #14
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Re: new here hello :)

Quote:
Originally Posted by DaniaNeicus View Post
Hi my name is mandy and i was only diagnosed with m.e./cfs three weeks ago.
I had been feeling terrible for a while and my doctor thought my symptoms were all in my head until i started feeling worse and then i was diagnosed.
My symptoms are:
bad muscle and joint pain (gets so bad i find it hard to walk)
headaches
Chronic exhaustion all the time which gets worse with minor exertion
Sweating
low appetite
Nausea
Forgetfulness
Dizziness

i have been diagnosed with ebv their is no cure hover i just started taking organo once in morning and once at super and it has help


Can anybody relate? Its really frustrating not being able going short trips around town or going to my friends house.When im bad i can't get out of bed and the pain's bad.Thanks for reading.It feels good to talk about it

 
Old 04-03-2011, 04:29 PM   #15
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chief12 HB User
Re: new here hello :)

im new at this but i was diagnosed ebv 5 years ago been fighting ebv all the time. i just started using organo and it has help fight the virus

 
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